Well things do change. I am in Portland. I met my daughter after not seeing her since she was 6. She is now 27. Things are going well with our relationship and I am looking to stay up here now for my daughter. I am having an issue with finding a place to live though. After I find a place to live I will be making a new appointment with the nurse. I do notice I am feeling a little weak and more brain fog when I'm tired. I'm thinking I need to get on with this thing.
Rich said
May 26, 2012
I finally have a date when I meet the new Dr.
He is located at the mare island clinic. It will be closer to Napa and no toll.
I talked to the nurse and we have an appointment set for 17th of July. I forgot to ask if that is when I will start treatment.
I got more info on follow ups and VL draws. Once every 2 weeks. That's more like it.
So as soon as I get back from visiting my daughter, who I haven't seen in 21 years, I hope to start this next life chapter.
Rich said
May 14, 2012
thanks Cinnamon Girl.
Kiwi- i never did a blood transfusion or got a tatoo. Unfortunitly i did do IV drugs during my stint.
Phil- I will be talking to a new Dr. in July. i will insist that we have consistant folllow ups.
Cinnamon Girl said
May 13, 2012
Hi Rich, have moved this thread to `General Discussion` for you, no prob.
All the best of luck to you with getting your tx plan sorted out, that`s just ridiculous and totally inappropriate for this type of tx.
~ Jill xx
ps - Love your `Sisyphus` avatar - I know it feels as though you will be trying to push that rock up the hill forever more, but you`ll get there in the end. Keep persevering!
hrsetrdr said
May 13, 2012
Yes, it would be an uphill battle for sure. Here is a document that may be of interest:
sorry to keep this topic going in the "on treatment form". if the mod could move it to General discussion, that would be great.
hrsetrdr
Anyway. thanks for the info . But i dont know after this long how i would prove that i had it when i got out of the service. I may have to do some research on that. Never dawned on me that i would of gotten it thru the innoculations.
kiwi said
May 13, 2012
yeh rich, i know a guy in florida who got hepc when he was in the marines, they lined them up for a jab, and wah lah, they all got hepc.... (hes never had a blood transfusion or used drugs or got tattoos)
its a real possibility depending on your age...
-- Edited by kiwi on Sunday 13th of May 2012 07:36:27 AM
hrsetrdr said
May 13, 2012
Rich,
Have you filed a claim for service-connected disability for the Hep C? Of course, the V.A. isn't acknowledging a service connection, but there is a lot of indicators pointing in that direction.
Began my tretment with the VA Marion, Ill., and have no complaints. After my biopsy they continued contact with regular labs. Began treatment 4/3/12 with peginterfiron/Ribi and just started the Victrelis today. Orriginal VL, 10,800,000. Today, five weeks in, 600,000. I agree with Phill 100%, I spend more time with the Nurses then With Dr. contact. Hang in there and I hope your local VA gets it together. I feel bad for you cause that's home for me, Walnut Creek, CA. So far so good, NO SIDE EFFECTS!!!!
-- Edited by fireflash on Saturday 12th of May 2012 06:28:09 PM
Phil G said
May 11, 2012
Before I started tx, I found the VA website, and liked the information they published. But I have had friends deal with them for mororcycle wrecks, and they don't seem to move very fast. I agree with Alan, this isn't right. I really think there is some confusion over the biopsy followup and the regular tx schedule. I would talk to your doctor or his office to verify, in person preferably. There was a lot of confusion when I started tx as the dr did not provide any clear instructions on blood draws. Once I sat down wth the nurses and got the schedule, it has gone well. To be honest, my followup visits with my dr aren't of much use, but regular contact with the nurses has been, mainly to get my lab results. I think I see the results before my dr does.
news said
May 11, 2012
No, I have not dealt with them. But I have to say, at the risk of sounding negative, that that is the stupidest treatment plan I have ever heard. What about regular bloods, to detect anemia and low whites and high liver enzymes. What about a VL just to see if the treatment is working? What about the common courtesy of letting the patient know his/her chances for success. For crying out loud. Now I'm all pissed off. Sorry.
Alan
Rich said
May 11, 2012
After finally meeting with the G.I. Today, I got the results from my biopsy done in Feburary.
Stage 4, level 3-4. VL of 1.6 mil.
Looks like I will start treatment in July. At martenez CA.
Once I start treatment my follow up appoint ment will be 9 mos. WHAT?
Dosn't look like they will be doing VL test, but will be doing biopsy at 9 mos.
Has anyone else delt with the VA in treatment.
I am having an issue with finding a place to live though. After I find a place to live I will be making a new appointment with the nurse.
I do notice I am feeling a little weak and more brain fog when I'm tired. I'm thinking I need to get on with this thing.
thanks Cinnamon Girl.
Kiwi- i never did a blood transfusion or got a tatoo. Unfortunitly i did do IV drugs during my stint.
Phil- I will be talking to a new Dr. in July. i will insist that we have consistant folllow ups.
Hi Rich, have moved this thread to `General Discussion` for you, no prob.
All the best of luck to you with getting your tx plan sorted out, that`s just ridiculous and totally inappropriate for this type of tx.
~ Jill xx
ps - Love your `Sisyphus` avatar - I know it feels as though you will be trying to push that rock up the hill forever more, but you`ll get there in the end. Keep persevering!
https://docs.google.com/open?id=1nF_do99D8ir88bMa7yr8HrFs6Mpj5xnLS-D255FRLFItBEj5LhJQanrlRfPI
Another link:
http://www.leatherneck.com/forums/showthread.php?8695-Hepatitis-C-Alert-Military-air-gun-shots
sorry to keep this topic going in the "on treatment form". if the mod could move it to General discussion, that would be great.
hrsetrdr
Anyway. thanks for the info . But i dont know after this long how i would prove that i had it when i got out of the service. I may have to do some research on that. Never dawned on me that i would of gotten it thru the innoculations.
yeh rich, i know a guy in florida who got hepc when he was in the marines, they lined them up for a jab, and wah lah, they all got hepc.... (hes never had a blood transfusion or used drugs or got tattoos)
its a real possibility depending on your age...
-- Edited by kiwi on Sunday 13th of May 2012 07:36:27 AM
Rich,
Have you filed a claim for service-connected disability for the Hep C? Of course, the V.A. isn't acknowledging a service connection, but there is a lot of indicators pointing in that direction.
Some informative links:
http://www.vietnow.com/pagesmagazine/rdarling.htm
http://usamma.detrick.army.mil/ftp/mmqc_messages/Q971169.txt
http://www.heathersveterans.org/hepatitis.htm
Began my tretment with the VA Marion, Ill., and have no complaints. After my biopsy they continued contact with regular labs. Began treatment 4/3/12 with peginterfiron/Ribi and just started the Victrelis today. Orriginal VL, 10,800,000. Today, five weeks in, 600,000. I agree with Phill 100%, I spend more time with the Nurses then With Dr. contact. Hang in there and I hope your local VA gets it together. I feel bad for you cause that's home for me, Walnut Creek, CA. So far so good, NO SIDE EFFECTS!!!!
-- Edited by fireflash on Saturday 12th of May 2012 06:28:09 PM
Before I started tx, I found the VA website, and liked the information they published. But I have had friends deal with them for mororcycle wrecks, and they don't seem to move very fast. I agree with Alan, this isn't right. I really think there is some confusion over the biopsy followup and the regular tx schedule. I would talk to your doctor or his office to verify, in person preferably. There was a lot of confusion when I started tx as the dr did not provide any clear instructions on blood draws. Once I sat down wth the nurses and got the schedule, it has gone well. To be honest, my followup visits with my dr aren't of much use, but regular contact with the nurses has been, mainly to get my lab results. I think I see the results before my dr does.
Alan