Glad to read these comments. I cut some vines down in our back yard this morning and that was all she wrote. So weak. Still wrestling with feeling like a slug on a rug, so I appreciate your encouraging comments!
I "should" do this and I "should" be doing that is driving me nuts. I guess perhaps I should be watching Dodger baseball, the Stanley Cup, and Locked Up Abroad! Cool.
hrsetrdr said
Jun 3, 2012
kiwi wrote:
i call this
THE NEW NORMAL.
^^this.
I was just thinking to myself yesterday about "normal", and whether or not I would recognize it if I ever experianced it again.
kiwi said
Jun 3, 2012
i call this
THE NEW NORMAL.
JoAnneh said
Jun 3, 2012
I have always been on the go all my life. Nog a lazy bone in me. Now is time for me to chill And heal. I do what I can and have to accept Limits. For one that likes doping things it's different But I am embracing it and as Surfer Girl says if has drawn Me into a warm and personal relationship w God! I hear birds chirping, I am enjoying 'my vacation of healing' With Dave's attitude all the way. I have moments of frustrations but I accept I am tired and therefore doing things that require Physical activity don't even appeal to me now. I called it healing chilling time :) Thinking of you all, JoAnne
Shep said
Jun 3, 2012
That's a great idea Dave!
davesf said
Jun 2, 2012
"I have been trying to imagine that I am enjoying a new leisurely lifestyle rather than just to tired to do anything."
Shep- I think you need to add that quote to your signature line.
kiwi said
Jun 2, 2012
yup im well over the guilt. no worries there. priorities in the house have changed, long as i can manage to feed myself (minimal) and the animals, who cares about the rest.? it aint goin anywhere. i get my laundry done for work. and i get firewood in, and yeh im SUCH A COUCH POTATO, and i have been dropping off for a nana nap, after work, easily for 3 hours... not bothered at all, in the past i would be horrified being so lazy, not now. someone said to me, kiwi, no you are not lazy you dont have a lazy bone in your body, and no you are not sick, you are tired and fatigued and its ok... go with it..
couch and me really bonded :) i even sleep on here most nights too, its a big couch, me and purple can fit no worries.
thanks for lettin me share. gettin it out with you guys who know how it feels is awesome. take it easy people. :)
Kellyw said
Jun 2, 2012
I agree at first I felt so bad I didn't care I was doing nothing.mthen when I felt a little better I felt guilty I still wasn't doing much, but when I got a little energy and used it I was rewarded with a 3-5 day headache so I've gotten over the guilt and am enjoying Shep's life of leisure too.
LanaiSurferGirl said
Jun 2, 2012
yes...the energy level being lower is quite frustrating but has really humbled me and deepened my relationship with God. I am more dependant on him than I ever have been and in a situation where I really have to trust him even though I struggle with trying to control my life all of the time. :)
hrsetrdr said
Jun 2, 2012
The couch seems to have become part of my body, as of late. I've always been industrious around the house, so just not giving a care about all the little things that I'm NOT doing has taken some adjustment.
davesf said
Jun 2, 2012
I've embraced Shep's new life of leisure as well. The old me used to feel guilty if I didn't get to the gym or exercise on a regular basis. Today Jen asked me if I wanted to go for a walk and I happily declined and chose to remain on my couch instead. Thanks Shep for putting some positive spin on it for me.
Shep said
Jun 2, 2012
I have been trying to imagine that I am enjoying a new leisurely lifestyle rather than just to tired to do anything.
news said
Jun 2, 2012
There will be side effects, particularly where energy levels are concerned, all the way to the end of treatment. Even without the Incivek or Victrelis, the peg and riba can kick your butt at times. Good thing is, some weeks are milder than others. I feel pretty good most of the time. But I have the Incivek days to compare to. Those were tough days. I would prefer a poke in the eye with a sharp stick. But the sad fact is being UND has nothing to do with how lousey you feel. Just try to enjoy the good days when they come. I really think I have gotten used to being tired, losing hair, having delicate skin with cuts and bruises that won't heal, etc. It's all in a day's treatment. And there is an end to it in July.
Alan
jwmaher said
Jun 1, 2012
Hi
It's Mike and I've been undetected for aabout a month now and I'm still experiencing side effects from the drugs; unfortunately I have to be on them until November but very grateful for being und.
I'm assuming that when the virus becomes undetected your body is just dealing with the side effects without the war going on in your body so it doesn't seem so severe. My energy level has improved quite a-bit since then. Has anyone else had this experience?
Scout said
Jun 1, 2012
The war doesn't end. UND is in your blood but the virus lurks. Hang in there. I'm a week out after ending the incevik but still a bit tired and lathargic while still on Peg and Riba. These 2 have pretty rough sides of their own.
-- Edited by Scout on Saturday 2nd of June 2012 09:06:49 PM
^^this.
I was just thinking to myself yesterday about "normal", and whether or not I would recognize it if I ever experianced it again.
i call this
THE NEW NORMAL.
Nog a lazy bone in me. Now is time for me to chill
And heal. I do what I can and have to accept
Limits. For one that likes doping things it's different
But I am embracing it and as Surfer Girl says if has drawn
Me into a warm and personal relationship w God!
I hear birds chirping, I am enjoying 'my vacation of healing'
With Dave's attitude all the way.
I have moments of frustrations but I accept
I am tired and therefore doing things that require
Physical activity don't even appeal to me now.
I called it healing chilling time :)
Thinking of you all,
JoAnne
"I have been trying to imagine that I am enjoying a new leisurely lifestyle rather than just to tired to do anything."
Shep- I think you need to add that quote to your signature line.
yup im well over the guilt. no worries there. priorities in the house have changed, long as i can manage to feed myself (minimal) and the animals, who cares about the rest.? it aint goin anywhere. i get my laundry done for work. and i get firewood in, and yeh im SUCH A COUCH POTATO, and i have been dropping off for a nana nap, after work, easily for 3 hours... not bothered at all, in the past i would be horrified being so lazy, not now. someone said to me, kiwi, no you are not lazy you dont have a lazy bone in your body, and no you are not sick, you are tired and fatigued and its ok... go with it..
couch and me really bonded :) i even sleep on here most nights too, its a big couch, me and purple can fit no worries.
thanks for lettin me share. gettin it out with you guys who know how it feels is awesome. take it easy people. :)
yes...the energy level being lower is quite frustrating but has really humbled me and deepened my relationship with God. I am more dependant on him than I ever have been and in a situation where I really have to trust him even though I struggle with trying to control my life all of the time. :)
The couch seems to have become part of my body, as of late. I've always been industrious around the house, so just not giving a care about all the little things that I'm NOT doing has taken some adjustment.
I've embraced Shep's new life of leisure as well.
The old me used to feel guilty if I didn't get to the gym or exercise on a regular basis. Today Jen asked me if I wanted to go for a walk and I happily declined and chose to remain on my couch instead. Thanks Shep for putting some positive spin on it for me.
There will be side effects, particularly where energy levels are concerned, all the way to the end of treatment. Even without the Incivek or Victrelis, the peg and riba can kick your butt at times. Good thing is, some weeks are milder than others. I feel pretty good most of the time. But I have the Incivek days to compare to. Those were tough days. I would prefer a poke in the eye with a sharp stick. But the sad fact is being UND has nothing to do with how lousey you feel. Just try to enjoy the good days when they come. I really think I have gotten used to being tired, losing hair, having delicate skin with cuts and bruises that won't heal, etc. It's all in a day's treatment. And there is an end to it in July.
Alan
Hi
It's Mike and I've been undetected for aabout a month now and I'm still experiencing side effects from the drugs; unfortunately I have to be on them until November but very grateful for being und.
I'm assuming that when the virus becomes undetected your body is just dealing with the side effects without the war going on in your body so it doesn't seem so severe. My energy level has improved quite a-bit since then. Has anyone else had this experience?
The war doesn't end. UND is in your blood but the virus lurks. Hang in there. I'm a week out after ending the incevik but still a bit tired and lathargic while still on Peg and Riba. These 2 have pretty rough sides of their own.
-- Edited by Scout on Saturday 2nd of June 2012 09:06:49 PM