Many prayers are going out to you! I know there are no new treatments right now, but I know some are in the pipeline for the next few years. Maybe one of them will work if you decide to give it a try. Hang in there and I hope the results of the biopsy come back ok.
Lindsay
Kellyw said
Jun 14, 2012
I'm so sorry to hear your news. I will hope one of the new tx's come along quickly
Shep said
Jun 14, 2012
Hey Taz Hang in there! They are developing newer tx all the time. I was in my doc's office yesterday and on the counter was an application for the drug trial that Jime's doing the 7977. It was dated May 8.
Margo said
Jun 14, 2012
TazKat wrote:
i am gento type 1A
Thanks. Taz, don't get discouraged. Go get 2nd opinion and go to the best. Pay out of pocket for a consultation if you have to, but go the knowledgeble one. I was treated before and on the treatment, my lymph nodes became enlarged. She told me might have lymphoma, she scared the living hell out of me, scedualed CT same day and oncologist app. I was 27 with small kids, i buried myself that day. Turned out to be the bodys reaction to meds. Made me go 48 weeks of treatment while it took me to respond later in the beginning and I relapsed.. Switched doctor this time by recommendation and very happy. Which state to you live in?
Judy S said
Jun 14, 2012
LanaiSurferGirl - do you know what grade and stage your bx showed? My only bx was in 2000 and it was also the Worst pain ever! I got the referred shoulder pain. My recent CT Scans also show Splenomegaly and Portal Hypertension....that's how they know I have cirrhosis.
TazKat - my dr also says 5 yrs before newer tx but I keep hearing differently from others.
TazKat said
Jun 14, 2012
I HAD A BIOPSY IN 2010 & it showed stage 3 fibrosis. hopefully the liver scan will tell what is what. are there new drugs coming out without the protease inhibitor?
TazKat said
Jun 14, 2012
i am gento type 1A
LanaiSurferGirl said
Jun 14, 2012
I feel so bad for you...I hate coming on here to read that people have relapsed!! How do you know which stage of cirrhosis you have? I had a biopsy in 2002 that showed fibrosis but in 2007-current, imaging studies (CT scans and ultrasounds) have confirmed I have cirrhosis by splenomagaly (enlarged spleen) and portal vein hypertension. Did you have a biopsy that confirmed it?
My biopsy experience was the worst pain I have ever felt in my entire life...the nurse literally said "you will know we are in the right spot when you feel pain". It was extremely painful, my whole right side was numb, and I was nauseous. This is why I have not had another since then and even if I did, it wouldn't change the fact that I had hepatitis C.
Judy S said
Jun 14, 2012
Thank you Margo!
Taz is geno 1. I am geno 1a.
Taz, your bio doesn't mention if you are 1a or 1b?
One of few!
http://m.seekingalpha.com/article/494271-achillion-will-soar-higher-on-new-hepatitis-c-drug-in-2013
Judy S said
Jun 14, 2012
Margo, your post just popped in. I'll be checking to see if you have found a link; I'd be very interested. Thank you.
Judy S said
Jun 14, 2012
That is Exactly what I was going to ask, Taz. Do you qualify for newer tx if you are no longer tx naive and cirrhotic? I am crushed by your news; I'm so very sorry. I know you had that horribly painful broken tooth sticking into your gums. I've had the virus for 27 years and I know that things are limited for us long-timers. Please don't give up hope......they are constantly gaining ground on our virus and all of its types; I have faith.
Jim, that is Really good to hear! Can you provide any more info?
Margo said
Jun 14, 2012
TazKat wrote:
doc says it would be 5 yrs b4 they have something else that does not have the protease inhibitor. that i can't do anymore..
I just read recently about the new medication, I'll try to find the link for you. It's an addition to these 3.
JIme said
Jun 14, 2012
Not true. 7977 will be approved within 2 years. Many other drugs out there also. You proved you can clear the virus on triple tx. The oral meds will be the new soc in a few short years.
Stay the course. There is hope.
TazKat said
Jun 14, 2012
doc says it would be 5 yrs b4 they have something else that does not have the protease inhibitor. that i can't do anymore..
Iris Dragonfly said
Jun 14, 2012
Kathy, I'm so so sorry this is happening to you. Hang in there girl, the new treatments are working there way to the surface.
Stages within a stage makes sense to me, can you find out? As for eating well, that can never hurt. My prayers are with you, please feel free to pm me anytime. Blessings, Iris
Margo said
Jun 14, 2012
That's crazy...don't give up talk to your doctor on other options that will be available very soon. I also relapsed last time, I know exactly how you feel...
K2 said
Jun 14, 2012
I am soooo sorry for what you must be feeling right now. You have my prayers.
TazKat said
Jun 14, 2012
after doing 32 weeks of treatment. off of it for three weeks & viral load is 582,000 i just can't believe this. no treatments or anything out there. will have a liver scan monday. i am stage 3 of 4 fibrosis. which i am still trying to figure out are there different stages within a stage. did that make any sense? i have a friend in hospice right now who is 58 that is dying from all liver crap. geex. what can i do? what to eat? that may help.. i am fooling myself i guess.. prayers please..
Many prayers are going out to you! I know there are no new treatments right now, but I know some are in the pipeline for the next few years. Maybe one of them will work if you decide to give it a try. Hang in there and I hope the results of the biopsy come back ok.
Lindsay
Hang in there! They are developing newer tx all the time. I was in my doc's office yesterday and on the counter was an application for the drug trial that Jime's doing the 7977. It was dated May 8.
LanaiSurferGirl - do you know what grade and stage your bx showed? My only bx was in 2000 and it was also the Worst pain ever! I got the referred shoulder pain. My recent CT Scans also show Splenomegaly and Portal Hypertension....that's how they know I have cirrhosis.
TazKat - my dr also says 5 yrs before newer tx but I keep hearing differently from others.
I HAD A BIOPSY IN 2010 & it showed stage 3 fibrosis. hopefully the liver scan will tell what is what. are there new drugs coming out without the protease inhibitor?
i am gento type 1A
I feel so bad for you...I hate coming on here to read that people have relapsed!! How do you know which stage of cirrhosis you have? I had a biopsy in 2002 that showed fibrosis but in 2007-current, imaging studies (CT scans and ultrasounds) have confirmed I have cirrhosis by splenomagaly (enlarged spleen) and portal vein hypertension. Did you have a biopsy that confirmed it?
My biopsy experience was the worst pain I have ever felt in my entire life...the nurse literally said "you will know we are in the right spot when you feel pain". It was extremely painful, my whole right side was numb, and I was nauseous. This is why I have not had another since then and even if I did, it wouldn't change the fact that I had hepatitis C.
Thank you Margo!
Taz is geno 1. I am geno 1a.
Taz, your bio doesn't mention if you are 1a or 1b?
Margo, your post just popped in. I'll be checking to see if you have found a link; I'd be very interested. Thank you.
That is Exactly what I was going to ask, Taz. Do you qualify for newer tx if you are no longer tx naive and cirrhotic? I am crushed by your news; I'm so very sorry. I know you had that horribly painful broken tooth sticking into your gums. I've had the virus for 27 years and I know that things are limited for us long-timers. Please don't give up hope......they are constantly gaining ground on our virus and all of its types; I have faith.
Jim, that is Really good to hear! Can you provide any more info?
Not true. 7977 will be approved within 2 years. Many other drugs out there also. You proved you can clear the virus on triple tx. The oral meds will be the new soc in a few short years.
Stay the course. There is hope.
doc says it would be 5 yrs b4 they have something else that does not have the protease inhibitor. that i can't do anymore..
Kathy, I'm so so sorry this is happening to you. Hang in there girl, the new treatments are working there way to the surface.
Stages within a stage makes sense to me, can you find out? As for eating well, that can never hurt. My prayers are with you, please feel free to pm me anytime. Blessings, Iris
after doing 32 weeks of treatment. off of it for three weeks & viral load is 582,000 i just can't believe this. no treatments or anything out there. will have a liver scan monday. i am stage 3 of 4 fibrosis. which i am still trying to figure out are there different stages within a stage. did that make any sense? i have a friend in hospice right now who is 58 that is dying from all liver crap. geex. what can i do? what to eat? that may help.. i am fooling myself i guess.. prayers please..