Thanks for info On SLS Karen and rinsing w warm salty water too! I read on line last night that Maji Mouthwash is used by many ppl on interferon! Doctor has to prescribe it. Hope she knows what I am talking about. Also, frozen Popsicle are helping my tongue feel better. Thanks everyone, love my hep friends:) joAnne
Karen said
Nov 5, 2012
Dave is right about the SLS (sodium lauryl sulfate) in toothpaste. SLS are known to cause canker sores in the mouth...I find Tom's of Maine more difficult to find w/o SLS since getting involved w/ Colgate-Palmolive. Which one are you guys (dave/phil) using??? Any none "mint"??? Best thing..read the label.."no SLS"...please...
Malcolms' recommendation "gargle with salty water"...a tried and true way to sooth and heal.
mallani said
Nov 5, 2012
Hi JoAnne, For the sore tongue and gums I gargle with salty water. Wish I was on my boat, so I could just jump overboard and get a mouthful. Regular (in my case 3 monthly) cleaning by the Dental Tech. keeps the scale (tartar) in check, so it is easier to clean the fangs.
Phil G said
Nov 5, 2012
I had to change toothpaste about mid way thru tx. More gums than tongue. At first just the plain jane colgate without whitening, tarter control, peroxide, etc. That helped a lot. Then to the Tom's natural. Good stuff, just hard to find in my area.
JoAnneh said
Nov 4, 2012
Dave, thank you for the info! Will get gel ASAP and yes I may have thrust too. Go for doc visit and labs tomorrow. And yes will change toothpaste too. Thank you, JoAnne
davesf said
Nov 4, 2012
Are you getting white bumps on your tongue? Some people get thrush infections during treatment. If so get treatment from your doc. Is your tongue drying out at night from mouth breathing? If so use a dry mouth gel at bedtime. We're also much more sensitive to SLS, the foaming agent in toothpaste. So maybe try switching to a non foaming brand such as Toms natural. Hope this helps. Dave
JoAnneh said
Nov 4, 2012
I love having y'all! Thank you so much so support! Also, glad to know Malcomb I am not the only person sleeping 12-15 hours some days! 14 shots to go....I am jealous Of you! But we will get to the end! We will keep on keeping on! Sure is good to know others suffer too! Haha Xxoo
Shep said
Nov 4, 2012
Hey JoAnne--bless you girl! You have every right to whine or whatever you need to do. Wish knew something about a sore tongue. Hang in there --you are tougher than theses drugs!
LUV2RYDE said
Nov 4, 2012
JoAnne,
I am sorry your having a ouchy tongue. But sending ya healing vibes your way and clearing this nasty virus for good!
Karen said
Nov 4, 2012
and don't forget...you have a great attitude and lots of courage to add to the list of blessings..big hug;)
JoAnneh said
Nov 4, 2012
That's right guys! Got to live one day at a time and after living busy lifestyle it's time for some R&R! Thank you! Counting blessings.... I have a home, a bed, a husband, 2 dogs that love me and host of friends:)
hrsetrdr said
Nov 4, 2012
JoAnne,
I don't know what to say about your tongue hurting, but I can see that you need a hug, so here goes:
A long time ago when I attended a small town church, the pastor had a sign hanging on the wall in his office which read: "when life serves you lemons, make lemonade".
I have never forgotten that, and I will never forget a portion of what you posted a few days ago in another thread: "I find counting my blessings and not my burdens gives me the right perspective! " this saying has given me the courage to cast off the crutches(Xanax) and return to managing my sanity on my own; for this gift I thank you.
Tomorrrow will be a new day, I hope & pray that it will be a better one for you, JoAnne.
kiwi said
Nov 4, 2012
you can handle it mate. one day at a time eh. i know how ya feel, yeh 48 weeks is a long long time out of our lives. i cant tell ya it is gonna get any easier coz it wont, but i can say, after a while, it becomes ''the new normal''', i guess we just get used to how we feel and carry on anyways.
always feel free to whine mate. i got a couple of friends who have listened to me whine for the whole 48 weeks, haha, they would say, '''ya want some cheese with that wine kiwi''' cheeky buggars.
i go for appt on tuesday, hope my viral load results are in by then. ive been so freakin nervous and worried. i hear ya, its like omg i hope its ok after that slog. but ya know what, if it wasnt ok, i almost feel like saying ''bring on the treatment,'' i could do it again. we have no choice. and i lost about 15kg, which is AWESOME. helluva diet, probably wouldnt recommend it. but hahaha im lookin pretty good. and all my jeans hang off my ass, i need a belt or they literally fall off. hahaha. even the last pair of jeans i bought, only bout 3 months ago, are too big now. wooo hooo. now thats a bonus i like.
and yeh, 'why did we do drugs''', yeh mate, same ol same ol for me too. ah well, least we have a chance of gettin rid of it ay.??
spring here, i am gettin a little energy back, so i been busy catchin up on the ton of chores that have piled up coz i didnt have the energy of the ooomph to even bother. and ya know what, thats fine. its all gonna be there waiting for me. no worries,.
take care mate.
JoAnneh said
Nov 4, 2012
Since starting triple tx in May my tongue hurts!
And I am on shot 25 of 48!
Any suggestions? I use sensitive toothpaste
And doc prescribe mouth wash too. Is this staying till I stop tx?
I have slept all day after my 25th shot too. To think some stop at 24
Oh I just need to focus and be thankful for any chance to beat hep c!
I get VL checked Monday.
I need some encouraging that I won't be wiped out all the time.
It has allowed me lots of time to study Old Testament.
48 weeks is a LONG time! Wonder what percentage of SVR Do the 48 weekers with geno 1a achieve?
I can't bear staying on this 48 weeks to relapse but what choice do we have. I don't want liver transplant. Sorry for whining I am just wiped out after shot 25 and have 23 more to do. Grrrrrrr why did I use drugs as a teenager!! I need to know 48 weekers make it and get SVR! Tomorrow will be a new day, JoAnne
mallani said
Nov 3, 2012
Hi JoAnne, think on the bright side- at least you're not on Victrelis! I completely agree about the Rx length. I've had a bad couple of weeks, sleep 12-15 hours/day, crawl onto couch and watch rubbish TV for the rest of the day. I have this illogical, depressing feeling that my Rx outcome has already been decided, and I'm just making up time doing the last 14 weeks. This probably started when my doc admitted there was now controversy over Rx length for cirrhotics with an eRVR. Previously he was adamant that 48 weeks was non-negotiable. I'm probably depressed, but as I will not take AD's, there is no point seeing anyone about it. The mental and physical effects of Rx seem to be cumulative, and we reach a point where we say 'enough'! We have to get past that point, stop the 'stinkin' thinkin'', and summons the strength to go on. The forum plays a huge part in this for me, as I feel I would let you all down by saying 'I can't take it anymore'. I can, and will. We can both help each other over the line- XXX Hugs
-- Edited by mallani on Sunday 4th of November 2012 02:49:47 AM
I read on line last night that Maji Mouthwash is used by many ppl on interferon!
Doctor has to prescribe it. Hope she knows what I am talking about.
Also, frozen Popsicle are helping my tongue feel better.
Thanks everyone, love my hep friends:) joAnne
Dave is right about the SLS (sodium lauryl sulfate) in toothpaste. SLS are known to cause canker sores in the mouth...I find Tom's of Maine more difficult to find w/o SLS since getting involved w/ Colgate-Palmolive. Which one are you guys (dave/phil) using??? Any none "mint"??? Best thing..read the label.."no SLS"...please...
Malcolms' recommendation "gargle with salty water"...a tried and true way to sooth and heal.
Hi JoAnne, For the sore tongue and gums I gargle with salty water. Wish I was on my boat, so I could just jump overboard and get a mouthful. Regular (in my case 3 monthly) cleaning by the Dental Tech. keeps the scale (tartar) in check, so it is easier to clean the fangs.
I had to change toothpaste about mid way thru tx. More gums than tongue. At first just the plain jane colgate without whitening, tarter control, peroxide, etc. That helped a lot. Then to the Tom's natural. Good stuff, just hard to find in my area.
Thank you, JoAnne
Also, glad to know Malcomb I am not the only person
sleeping 12-15 hours some days! 14 shots to go....I am jealous
Of you! But we will get to the end! We will keep on keeping on!
Sure is good to know others suffer too! Haha
Xxoo
JoAnne,
I am sorry your having a ouchy tongue. But sending ya healing vibes your way and clearing this nasty virus for good!
and don't forget...you have a great attitude and lots of courage to add to the list of blessings..big hug;)
Thank you! Counting blessings.... I have a home, a bed, a husband, 2 dogs that love me and host of friends:)
JoAnne,
I don't know what to say about your tongue hurting, but I can see that you need a hug, so here goes:
A long time ago when I attended a small town church, the pastor had a sign hanging on the wall in his office which read: "when life serves you lemons, make lemonade".
I have never forgotten that, and I will never forget a portion of what you posted a few days ago in another thread: "I find counting my blessings and not my burdens gives me the right perspective! " this saying has given me the courage to cast off the crutches(Xanax) and return to managing my sanity on my own; for this gift I thank you.
Tomorrrow will be a new day, I hope & pray that it will be a better one for you, JoAnne.
you can handle it mate. one day at a time eh. i know how ya feel, yeh 48 weeks is a long long time out of our lives. i cant tell ya it is gonna get any easier coz it wont, but i can say, after a while, it becomes ''the new normal''', i guess we just get used to how we feel and carry on anyways.
always feel free to whine mate. i got a couple of friends who have listened to me whine for the whole 48 weeks, haha, they would say, '''ya want some cheese with that wine kiwi''' cheeky buggars.
i go for appt on tuesday, hope my viral load results are in by then. ive been so freakin nervous and worried. i hear ya, its like omg i hope its ok after that slog. but ya know what, if it wasnt ok, i almost feel like saying ''bring on the treatment,'' i could do it again. we have no choice. and i lost about 15kg, which is AWESOME. helluva diet, probably wouldnt recommend it. but hahaha im lookin pretty good. and all my jeans hang off my ass, i need a belt or they literally fall off. hahaha. even the last pair of jeans i bought, only bout 3 months ago, are too big now. wooo hooo. now thats a bonus i like.
and yeh, 'why did we do drugs''', yeh mate, same ol same ol for me too. ah well, least we have a chance of gettin rid of it ay.??
spring here, i am gettin a little energy back, so i been busy catchin up on the ton of chores that have piled up coz i didnt have the energy of the ooomph to even bother. and ya know what, thats fine. its all gonna be there waiting for me. no worries,.
take care mate.
Hi JoAnne, think on the bright side- at least you're not on Victrelis! I completely agree about the Rx length. I've had a bad couple of weeks, sleep 12-15 hours/day, crawl onto couch and watch rubbish TV for the rest of the day. I have this illogical, depressing feeling that my Rx outcome has already been decided, and I'm just making up time doing the last 14 weeks. This probably started when my doc admitted there was now controversy over Rx length for cirrhotics with an eRVR. Previously he was adamant that 48 weeks was non-negotiable. I'm probably depressed, but as I will not take AD's, there is no point seeing anyone about it. The mental and physical effects of Rx seem to be cumulative, and we reach a point where we say 'enough'! We have to get past that point, stop the 'stinkin' thinkin'', and summons the strength to go on. The forum plays a huge part in this for me, as I feel I would let you all down by saying 'I can't take it anymore'. I can, and will. We can both help each other over the line- XXX Hugs
-- Edited by mallani on Sunday 4th of November 2012 02:49:47 AM