Newly Diagnosed HEP C 1A - desperately needing advice
LUV2RYDE said
Mar 1, 2013
Mike,
I learned so much here on this forum. I am also in a clinical trail for treating my Hep C and if you don't have insurance a clinical trial might be a great choice for you. Educate yourself and just know there are so many wise tales about HEP. The more you know the better you are. Good luck.
Bouba said
Mar 1, 2013
Hey Mike
As Guru Malcolm said you need to know your liver condition first.
My hepatologist advises his Genotype 1 patients upto F2 (case by case of coz) to wait a year for Sofosbuvir.
Financial aspect is unknown though and afraid it may be an issue, taking into account billions Gilead spent on it.
Matt Chris said
Mar 1, 2013
Hello Mike
Welcome to the board , best advice I can give is do alot of research. There are some options now and many more to come. READ READ READ
Matt
mallani said
Mar 1, 2013
Hi Mike,
Welcome to the Forum. I don't like the 'I am aging' bit of your post! I'll be 70 in 12 days and have just completed 48 weeks of triple Rx with Victrelis.
You need to know the state of your liver. The only reliable way to do this is by liver biopsy. When you have these results, you can decide whether you want Rx now, or can afford to wait for a non-interferon treatment regime. At your age, I would advise Rx now. The Forum Members are getting excellent SVR results from Triple Rx (Peginterferon, Ribavirin and either Victrelis or Incivek). There are side effects but these vary from person to person. Keep us informed and good luck. Cheers
Biggyb said
Mar 1, 2013
MikeJJ wrote:
I recently was confirmed with Hep C 1A after a routine blood test by a life insurance company,
I too am 1a and i chose to due treatment with Victrelis, alot less side effects. Good luck
MikeJJ said
Mar 1, 2013
I was told it was genotype 1a
LC said
Mar 1, 2013
I am waiting, but I have a low viral load and my liver isn't in too bad of shape. Hopefully there should be better meds available next year. At least we picked a good time to be diagnosed with this! Check out the News and Events section in this forum because there are a lot of updates about what is coming on the market soon. I would see what your doc thinks about you waiting and whether he or she thought it would be ok for you.
GodsGrl said
Mar 1, 2013
Welcome! We are all here to help and offer support. Do you know what geno type you are?
Iris Dragonfly said
Mar 1, 2013
Hey Mike ...just wanted to say hi. There are lots of folks here on treatment who can give you loads of advise.
I have choose for the time not to treat....waiting to see less toxic stuff.
Blessings in your information quest.... Iris Dragonfly
MikeJJ said
Mar 1, 2013
I recently was confirmed with Hep C 1A after a routine blood test by a life insurance company, which declined me. My viral count is roughly 14,631,000. I very likely have been living with this 20-30 years. I have had several blood tests and a sonogram. My liver function tests are all pretty much normal or barely out of spec, and also my sonogram except for a small cyst on one of my kidneys.
I am not sure if it is related to the HEP or not , but I have frequent dull pain (daily) under my rib cage in front and around the back on the right side. I have fairly frequent fatigue, and possibly other issues. Since I am aging, I will be 58 this month, I am not sure if some of my forgetfullness, depression, irratability etc. is age related. For instance, in the last few months I have found it hard to spell words that I don't frequently write when I used to be a dynamo at spelling...just seems weird.
I have had the pains in my rib cage for years, and had tests run for gall bladder, sonograms etc. which were all inconclusive so I thought it was no big deal. They never tested me for HEP C.
I was referred to a Gastroenterologist and he has stated that I am an "excellent candidate for treatment" I have no idea why I would be excellent.
The treatement he is referring to is the interferon ****tail for like 24 weeks.
I am not sure what to do or who to trust. I really need some honest advice from anyone who knows what I am going through.
I have read that the current treatment is very tough, and even dangerous. I have also read that there are new treatments in the works, but there are no guarantees when they will be available and, even when they are available, if they will be effective for a 20-30 year persistent HEP C 1A case.
Any advice anyone has the time to share will be greatly appreciated...God Bless.
Mike,
I learned so much here on this forum. I am also in a clinical trail for treating my Hep C and if you don't have insurance a clinical trial might be a great choice for you. Educate yourself and just know there are so many wise tales about HEP. The more you know the better you are. Good luck.
Hey Mike
As Guru Malcolm said you need to know your liver condition first.
My hepatologist advises his Genotype 1 patients upto F2 (case by case of coz) to wait a year for Sofosbuvir.
Financial aspect is unknown though and afraid it may be an issue, taking into account billions Gilead spent on it.
Hello Mike
Welcome to the board , best advice I can give is do alot of research. There are some options now and many more to come. READ READ READ
Matt
Hi Mike,
Welcome to the Forum. I don't like the 'I am aging' bit of your post! I'll be 70 in 12 days and have just completed 48 weeks of triple Rx with Victrelis.
You need to know the state of your liver. The only reliable way to do this is by liver biopsy. When you have these results, you can decide whether you want Rx now, or can afford to wait for a non-interferon treatment regime. At your age, I would advise Rx now. The Forum Members are getting excellent SVR results from Triple Rx (Peginterferon, Ribavirin and either Victrelis or Incivek). There are side effects but these vary from person to person. Keep us informed and good luck. Cheers
I too am 1a and i chose to due treatment with Victrelis, alot less side effects. Good luck
I was told it was genotype 1a
Welcome! We are all here to help and offer support. Do you know what geno type you are?
Hey Mike ...just wanted to say hi. There are lots of folks here on treatment who can give you loads of advise.
I have choose for the time not to treat....waiting to see less toxic stuff.
Blessings in your information quest....
Iris Dragonfly
I recently was confirmed with Hep C 1A after a routine blood test by a life insurance company, which declined me. My viral count is roughly 14,631,000. I very likely have been living with this 20-30 years. I have had several blood tests and a sonogram. My liver function tests are all pretty much normal or barely out of spec, and also my sonogram except for a small cyst on one of my kidneys.
I am not sure if it is related to the HEP or not , but I have frequent dull pain (daily) under my rib cage in front and around the back on the right side. I have fairly frequent fatigue, and possibly other issues. Since I am aging, I will be 58 this month, I am not sure if some of my forgetfullness, depression, irratability etc. is age related. For instance, in the last few months I have found it hard to spell words that I don't frequently write when I used to be a dynamo at spelling...just seems weird.
I have had the pains in my rib cage for years, and had tests run for gall bladder, sonograms etc. which were all inconclusive so I thought it was no big deal. They never tested me for HEP C.
I was referred to a Gastroenterologist and he has stated that I am an "excellent candidate for treatment" I have no idea why I would be excellent.
The treatement he is referring to is the interferon ****tail for like 24 weeks.
I am not sure what to do or who to trust. I really need some honest advice from anyone who knows what I am going through.
I have read that the current treatment is very tough, and even dangerous. I have also read that there are new treatments in the works, but there are no guarantees when they will be available and, even when they are available, if they will be effective for a 20-30 year persistent HEP C 1A case.
Any advice anyone has the time to share will be greatly appreciated...God Bless.