I would like a like button..lol

Hello Smile

I understand your optimism, for I was recently was enrolled in a 12 week program with powerful new HCV DAA,s  You can check my thread at New Trials Turquoise II 

Something to keep in mind,  though many say that we wil see a cure for HCV in the coming years. We have to remember that there are many Geno forms and variations of Hepatitis so nothing is guaranteed , time will prove what is to be the truth. 

Also it's wise to take into account like yourself, other members have fought hard and failed previous treatments that have held out similar hopes.

By the way I have just completed my fourth week and most of the HVC is gone but much more time remains to prove it final effectiveness, but I am highly optimistic.

Matt

Oh boy.......lol

Ok, that`s fine, you can continue on a new thread, but it would be nice if you could reply to Bills.   To be able to give people hope we need to hear some details!  ~ Jill

Thanks.

I will post all updates on this thread.

http://hepcfriends.activeboard.com/t52943661/starting-a-new-trial-maybe/#lastPostAnchor

Hi

New Drugs and a cure....I'm all ears. I'm waiting too  stage 3 Geno 1a  non responder I did 74 weeks of interferon / Riba Strait through 48 on a trail and 26 on incivek.I just failed my third treatment. and believe me I gave all I could. I'm done with interferon.

Can you find out what trial they are talking about ( what drug or company is doing it. and what phase it's in ?) For all we know it could be a trial that is in progress.  We all want to hear it's finally coming.   If there is something NEW We would love to hear about it Maybe even sign up to the same one.

Thanks BillS

12Step Guy, sorry about using the name Smile.

I have used that name on Hep C discussion boards for over five years giving support out to others. Unfortunately, the last board I was on has been overrun with spam about video games and it is hard to dig throught the "real" posts. I moved to this one because I thought I could reach more people.

I also use Smile because I am in a position where I might be discriminated against due to my Hep C.

My only purpose is to inform people of my experience so they might have hope. I personally had my brain turned to jello, lost large portions of my gums on my teeth and jaw area and have permanent problems due to the previous treatment. I swore I would die before going back to Peg/Riba.

I was excited about sharing my new "hope" only to be squashed.

I will just post on the new thread I made from now on. I will only post info and not let my emotions get in the way.

The Guy wrote:

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I am going to start fresh with a new thread as this appears to be getting off topic.
Maybe we can Mallani remove this one as it doesnt serve a purpose.

---

 I think we all need to calm down here.  As Vern pointed out, you`re new here and we haven`t got to know you yet, and you haven`t got to know us or our way of doing things. 

Please do continue to post on this thread, you are welcome here.  ~ Jill

What Guy? Whats rubbing me the wrong way is your focus on Mallani by asking him not to post and name calling him a cyber bully.

For a guy who we don't know yet and lists his name as "Smile" on his account. I have to think that youre used to being in conflict with folks on message boards. Whatever your pay-off is for doing this, youre welcomed here even if your beliefs are unique, no need to be quite so defensive.

I hope there is a new treatment for Hep C that does wipe it out; the sooner the better. A very good friend of mine is waiting for a better treatment then we have now. Im not sure he understands the dice he is rolling. Hope he doesnt Crap Out.

Vern

The Guy wrote:

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Thanks Jill,
I enjoy responses like yours because they are constuctive. I felt cyber-bullied by Mallani and I do not tolerate that.

I agree that I used the term "cured" loosely since all major diseases "cured" in the 20th century are not really cured. They still exist such as polio and TB. You just rarely see or hear about them anymore. I am betting that we are heading that direction with hep C. Call me a dreamer but with studies posting greater than 90 percent cure rates and some smaller studies posting 100 percent, I going to be an optimist instead of a "debbie downer".

I will definitely give as much info as I can as I get it when I get it.

---

Thanks for your reply, and we would definitely like to hear more about the trial you`re hoping to start.  So from what you wrote, I take it that getting on the trial is conditional on the results of your liver biopsy?

A 100 % cure across the board for everyone with Hep C is certainly what we all hope for at some point in the future, and great progress is being made on the experimental front, but the fact is that it will be years before even the current treatments will be widely available outside the US, unfortunately.

On the other hand, it`s good be optimistic, we all need hope to keep us going.  

Rest assured that we don`t condone bullying at any level here.   But we do discourage misleading and/or incorrect information to be posted on this forum, and Malcolm was just making a point to express that.

Best of luck  ~ Jill

The Guy wrote:

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I will hopefully be starting this study in April after my liver biopsy. I did a Riba/Interferon study with this same site about 5 years ago and failed.

This time, instead of a 48 week study, it will be a 3 month study where I only take pills. The pills stop the virus from replicating and there is a greater than 90 percent success rate. There are supposed to be almost no side-effects.

The doctor came out and said that hep C is a thing of the past and you can do this treatment without feeling sick, depression or even missing work. There are multiple variations on this treatment and the first one should be released at the end of this year or early 2014.

I will update once I start treatment. Since it is only 3 months, we should know pretty fast how everything goes.

Congratulations folks, it appears that we have beat Hep C.

---

I'll be interested to hear more about your experiences when you start the clinical trial.        The doctor you mentioned is being quite overly optomistic, which could lead a patient to embrace a false hope.      I wish that my gastro doc was more "upbeat", but perhaps he's been in the battle too long to get giddy about experimental treatments.

Good luck, and good health.

I sure hope it goes well for you. After this 3rd time for me and on Incevick, the side effects were the worst I ever experienced. Personally, I don't see us ever "beating" HepC. Too many mutations of the virus and variations of the people it infects. I don't ever think there will be vaccine for it either d/t the same reasons. A treatment w/o side effects, now that would wonderful but even aspirin has a side effect. I would interested on what drugs you are taking and the effect on you. Keep us posted.

Bills, looks like we have someone that may already be in my study that is just about to finish their 12 weeks. I will try to find out if we will be using the same ****tail of drugs.

http://hepcfriends.activeboard.com/t52943661/starting-a-new-trial-maybe/#lastPostAnchor

HA!
It **** out coc*tail. Funny.

hrsetrdr, the doctor was the head of the clinical Hep C research trial. It was not one of my personal doctors. He was giving me the results of the current drug treatment that they are working with now which is brand new. He says that each new drug that they test is better than the previous one. The one that he says will be availabe at the end of this year or early next was one that they tested previously.

He knows me from a previous study that I failed with Peg/Riba so it is possible he was trying to give me hope but I read people really well and his statements were not wishy-washy.

Thanks for the support.

Sure hope I am not rubbing people the wrong way here.

-- Edited by The Guy on Monday 11th of March 2013 04:12:04 PM

 Hi, we can understand your enthusiasm, but to say that we have beaten Hep C is completely inaccurate.  There are some very promising new treatment drugs in the pipeline but there`s a long way to go before we reach that point, if we ever do.

You`re welcome to post more information on the trial and the drugs you`ll be taking, but I must tell you that Malcolm (mallini) is one of our forum Moderators and has the right to post on whichever thread he likes.    ~ Jill

Hmmmm.

I am sorry my enthusiasm and excitement offended you Mallani. I have had this disease for a very long time and for one of the leading researchers to tell me he can cure me without going through the hell of the old treatment again, I was a little overjoyed.

When I meant that we "beat Hep C" I meant that future generations will have a cure. I could have made that same statement about polio and of course it would not be true since the disease still exists.

I will try to keep my posts more logical than emotional. Mallani, I am going to ask you to NOT post on this thread again unless you see that I make an inaccurate statement that you that you think is important to correct.

To everyone else, once I get in the study and they let me know which drug I will be taking I will update this thread and let you know if I have any side-effects. The doctor said that the drug I will be taking will not be available commercially for about three years but that there are other similar drugs that he expects to be available late this year or early next.

Beat HepC?? What hell, news to me. 

I will hopefully be starting this study in April after my liver biopsy. I did a Riba/Interferon study with this same site about 5 years ago and failed.

This time, instead of a 48 week study, it will be a 3 month study where I only take pills. The pills stop the virus from replicating and there is a greater than 90 percent success rate. There are supposed to be almost no side-effects.

The doctor came out and said that hep C is a thing of the past and you can do this treatment without feeling sick, depression or even missing work. There are multiple variations on this treatment and the first one should be released at the end of this year or early 2014.

I will update once I start treatment. Since it is only 3 months, we should know pretty fast how everything goes.

Congratulations folks, it appears that we have beat Hep C.

Unfortunately, HepC isn't a thing of the past. Tell that to all the cirrhotics who are dying from liver failure, portal hypertension and HCC. There are a large number of patients who have failed treatment particularly Genotype 2 and 3, and as yet no new treatment is available.   There are millions of patients with HCV in third world countries. Many will die as the new drugs will not be available there for up to 10 years. Progress is certainly being made but it is annoying to read such flippant remarks about a still deadly disease. Why don't you name the drugs you will be taking? All new DAA's stop the virus replicating.