Welcome Misfis! And congratulation on getting in on such a promising trial. It's good to see so many new members in on new trials. It means there a great thing coming for all those that need them so much. Keep us all up to date with your progress, many are very interested. And ask any questions you may have, there are many people who want to help.
Misfis said
Jun 2, 2013
I'm a newbie, too. First time on any chat forum. Not quite sure how to do it, but I'll figure it out. Diagnosed in 2009, probably contracted it 35 years ago. Just started clinical trial with sofosbuvir and lednesvir (sp). 12 week treatment. I"m 1a, like a lot of us. Glad to be here!
Hi Misfits, welcome! I`m glad you found us, we`re a friendly group and you`ll soon be feeling at home here! Well done for getting on a Gilead`s sofosbuvir and ledipasvir trial, that`s great. We have a section especially for people doing trials, `Clinical Trial Participants`, and you`re very welcome to start a new thread there to post your updates. If you have a browse through you`ll see we have other members also doing ION -3 trials. We`ll be looking forward to following your progress.
All the best of luck...stay in touch! ~ Jill
nurschic said
May 31, 2013
Hi Amanda and welcome! I am going to be starting treatment this Sunday, but this site has helped me so much in preparing for treatment and questions to ask the doctor! I have great hope and strength from reading the posts. Keep us informed on your progress!
JoAnneh said
May 31, 2013
Welcome to the forum! It's been huge Support and world of I go and experience! I finished 48 weeks triple w Invicek May 19th! I felt pretty good the first few weeks then it Wasn't easy. Easier after Invicek. It's all worth it to save out liver. Once again, Welcome!!
Dillo said
May 31, 2013
Hi Amanda welcome.
I am on the same treatment as you. I don't think I felt the sides for the first few weeks. Maybe I thought I was superman saving my world. Got a bit tougher after that. Better when the Incivek is through.
Hope your tx goes well without a lot of sides. If you have a question there's a lot of people and information here for ya.
Kellie said
May 31, 2013
Hi Amanda, Welcome to the forum. You are among friends - they let me express myself without judgement - its good for the heart. - Kellie
Matt Chris said
May 31, 2013
Hello Amanda
Welcome to our group, you will find many helpful souls here.
Just open up and let the forum help.
Matt
lpetie said
May 31, 2013
Hello fellow newbie.
Amandums said
May 28, 2013
Thank you for the welcome :) It's comforting to know that other people are going through the same thing, and that I'm not alone in this battle. My starting viral load was in the 3 million range, and I go for my first lab visit this coming Friday. I will post the results soon as I get 'em :)
Yeah I'm already despising Incivek....I believe it's time to invest in a doughnut for me to sit on. I've never experienced such an uncomfortable feeling in my bum :( But thankfully I just read a sticky post on managing that side effect -- I will be trying some of those remedies for sure.
mallani said
May 28, 2013
Hi Amanda,
Welcome to the Forum. Many of us have done or are doing triple therapy with Incivek or Victrelis. Hopefully we can help with any questions you may have. The Incivek members have had problems with rash and anorectal issues and will be happy to give advice. Fatigue is also common associated with anaemia. Good luck and let us know your 4 week Viral Load. Cheers.
Amandums said
May 28, 2013
Howdy all :) I was diagnosed with Hep C in 2008, genotype 1A (lucky me lol). Due to a lack of health insurance, I didn't rush into treatment. I had a few symptoms of the disease, but they were manageable....up until a year ago. After being fed up with the random spells of nausea/vomiting, and feeling exhausted all the time, I was put on a waiting list to see a local GI who helped patients without insurance. I had a liver biopsy and was told my hep c was in stage 2, so it was a good idea to opt for treatment, but not absolutely necessary at this time. Since my current job is very flexible and not very demanding, I figured now would be a good time to give this whole treatment thing a shot. I am currently taking Incivek, Ribavirin, and Inteferon. I had my first shot Friday, May 17th. So I guess I'm going on my 3rd week of treatment. I'm beginning to struggle coping with the side effects, and hope I can find suggestions and support here :) I look forward to getting to know you all! - Amanda
Welcome Misfis! And congratulation on getting in on such a promising trial. It's good to see so many new members in on new trials. It means there a great thing coming for all those that need them so much. Keep us all up to date with your progress, many are very interested. And ask any questions you may have, there are many people who want to help.
I'm a newbie, too. First time on any chat forum. Not quite sure how to do it, but I'll figure it out. Diagnosed in 2009, probably contracted it 35 years ago. Just started clinical trial with sofosbuvir and lednesvir (sp). 12 week treatment. I"m 1a, like a lot of us. Glad to be here!
Hi Misfits, welcome! I`m glad you found us, we`re a friendly group and you`ll soon be feeling at home here! Well done for getting on a Gilead`s sofosbuvir and ledipasvir trial, that`s great. We have a section especially for people doing trials, `Clinical Trial Participants`, and you`re very welcome to start a new thread there to post your updates. If you have a browse through you`ll see we have other members also doing ION -3 trials. We`ll be looking forward to following your progress.
All the best of luck...stay in touch!
~ Jill
Hi Amanda and welcome! I am going to be starting treatment this Sunday, but this site has helped me so much in preparing for treatment and questions to ask the doctor! I have great hope and strength from reading the posts. Keep us informed on your progress!
Support and world of I go and experience!
I finished 48 weeks triple w Invicek May 19th!
I felt pretty good the first few weeks then it
Wasn't easy. Easier after Invicek.
It's all worth it to save out liver.
Once again, Welcome!!
Hi Amanda welcome.
I am on the same treatment as you. I don't think I felt the sides for the first few weeks. Maybe I thought I was superman saving my world. Got a bit tougher after that. Better when the Incivek is through.
Hope your tx goes well without a lot of sides. If you have a question there's a lot of people and information here for ya.
Hi Amanda,
Welcome to the forum. You are among friends - they let me express myself without judgement - its good for the heart. - Kellie
Hello Amanda
Welcome to our group, you will find many helpful souls here.
Just open up and let the forum help.
Matt
Hello fellow newbie.
Thank you for the welcome :) It's comforting to know that other people are going through the same thing, and that I'm not alone in this battle. My starting viral load was in the 3 million range, and I go for my first lab visit this coming Friday. I will post the results soon as I get 'em :)
Yeah I'm already despising Incivek....I believe it's time to invest in a doughnut for me to sit on. I've never experienced such an uncomfortable feeling in my bum :( But thankfully I just read a sticky post on managing that side effect -- I will be trying some of those remedies for sure.
Hi Amanda,
Welcome to the Forum. Many of us have done or are doing triple therapy with Incivek or Victrelis. Hopefully we can help with any questions you may have. The Incivek members have had problems with rash and anorectal issues and will be happy to give advice. Fatigue is also common associated with anaemia. Good luck and let us know your 4 week Viral Load. Cheers.
Howdy all :) I was diagnosed with Hep C in 2008, genotype 1A (lucky me lol). Due to a lack of health insurance, I didn't rush into treatment. I had a few symptoms of the disease, but they were manageable....up until a year ago. After being fed up with the random spells of nausea/vomiting, and feeling exhausted all the time, I was put on a waiting list to see a local GI who helped patients without insurance. I had a liver biopsy and was told my hep c was in stage 2, so it was a good idea to opt for treatment, but not absolutely necessary at this time. Since my current job is very flexible and not very demanding, I figured now would be a good time to give this whole treatment thing a shot. I am currently taking Incivek, Ribavirin, and Inteferon. I had my first shot Friday, May 17th. So I guess I'm going on my 3rd week of treatment. I'm beginning to struggle coping with the side effects, and hope I can find suggestions and support here :) I look forward to getting to know you all! - Amanda