rebeca wrote:

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mallani wrote:

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Hi Rebeca,

Your post demonstrates what the real issue is with HepC Rx. COST! As they will lose the profits from Incivek and Victrelis in the USA shortly, Vertex and Merck should be reducing the price to make these drugs more affordable for poorer countries like Spain.

I would rethink the decision not to try Peg/Riba.  In your Biography, you state that you have the CC allele at Interleukin 28B.  Could you ask your doctor whether you also had the gene test for rs8099917? If you are TT at this site, you have a 80% of SVR using SOC.  It would be a shame not to try Rx as you are F2 at present, and who knows when the Spanish Government will decide it can afford to fund Victrelis and Incivek.  I would give it a try, and you will know by the 4 week VL what the chances of success are.  It is easier to treat an F2 than an F3-4!

As to telling friends about HepC, it is really a personal decision. However, if  'friends' disappear after being told, they are not real friends. Good luck. Don't despair, you'll get there.

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 Hi Mallani,

It´s really interesting what you say about the gene re8099917 . Do you know where I can find some information about it?

Thank you very much

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 Hi Mallani,

Thanks for the explanations of "gene testing", and other topics.They are very clear and helpful. I am preparing many questions for my appointment with the hepatologist.

You're very welcome, we are all holding hands here and crossing fingers for everyone. Anytime you need a shoulder you can always PM me or shout on the forum. x

Loopy Lisa wrote:

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I just want to send you no words or suggestions, just a big hug. x

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 Thank you very much,

Since I found this forum,I´m more happier. ( really). It´s very important to me your support, today particularly your hug, Loopy Lisa.

I wish you the best for all.

I just want to send you no words or suggestions, just a big hug. x

mallani wrote:

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Hi Rebeca,

Your post demonstrates what the real issue is with HepC Rx. COST! As they will lose the profits from Incivek and Victrelis in the USA shortly, Vertex and Merck should be reducing the price to make these drugs more affordable for poorer countries like Spain.

I would rethink the decision not to try Peg/Riba.  In your Biography, you state that you have the CC allele at Interleukin 28B.  Could you ask your doctor whether you also had the gene test for rs8099917? If you are TT at this site, you have a 80% of SVR using SOC.  It would be a shame not to try Rx as you are F2 at present, and who knows when the Spanish Government will decide it can afford to fund Victrelis and Incivek.  I would give it a try, and you will know by the 4 week VL what the chances of success are.  It is easier to treat an F2 than an F3-4!

As to telling friends about HepC, it is really a personal decision. However, if  'friends' disappear after being told, they are not real friends. Good luck. Don't despair, you'll get there.

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 Hi Mallani,

It´s really interesting what you say about the gene re8099917 . Do you know where I can find some information about it?

Thank you very much

Thanks to all,

Today I´m more relaxed. Definitely, I have to be patient. In december I´ll talk to the hepatologist, and I ´ll ask him about the near future.

Until then, my intention is to keep learning things in this fórum, and try to be happy, like all people.

It´s true that in Spain the restrictions in health are large, but perhaps they prefer to assess the effectiveness.

I´ll tell you

Hi Rebeca,

I did a post about it in Knowledge Base-Useful Information called 'Gene Testing in Hepatitis C' .  Jill made it a 'sticky' so it's second from the top.  If you need more info, send me a PM. Cheers.

Hi Rebecca,

You know my opinion I wouldn't do a 48 weeks therapy , when there is in near future one with 12 weeks with a much better chance for svr.

Nobody knows the cost of the 12-week therapy with Sofosbuvir/Interferon/Ribavarin, but we will know it in a few weeks.

I would wait at least,  if you/your doc can estimate when this therapy will be available for you and only then making your decision.

cheers

Hi Rebeca,

Your post demonstrates what the real issue is with HepC Rx. COST! As they will lose the profits from Incivek and Victrelis in the USA shortly, Vertex and Merck should be reducing the price to make these drugs more affordable for poorer countries like Spain.

I would rethink the decision not to try Peg/Riba.  In your Biography, you state that you have the CC allele at Interleukin 28B.  Could you ask your doctor whether you also had the gene test for rs8099917? If you are TT at this site, you have a 80% of SVR using SOC.  It would be a shame not to try Rx as you are F2 at present, and who knows when the Spanish Government will decide it can afford to fund Victrelis and Incivek.  I would give it a try, and you will know by the 4 week VL what the chances of success are.  It is easier to treat an F2 than an F3-4!

As to telling friends about HepC, it is really a personal decision. However, if  'friends' disappear after being told, they are not real friends. Good luck. Don't despair, you'll get there.

Hi Rebeca

How high is your VL? If it was me and dual therapy was all I could get right now I think I would give it a shot. Back in 2004 my VL was high 17m. I did 3 months of dual and it went to 4m not enough for me to continue. But on the other hand my Doc said I was better off than if I hadn't tryed. I would talk to your Doc to see what he thinks. 50% beats a 0.

Good luck to you 

best wishes

Hi Rebeca, I`m sorry you`re feeling so down about the prospect of treatment, and I can understand your reluctance to do the dual combo of peginterferon and ribavirin, especially when you`re not sure about how much support you will get. 

It`s a shame you don`t have access to the triple therapy drugs yet, but from what you`ve already told us you have a moderate viral load and a fibroscan score of 2, so I should think you`ll be ok to wait until new drugs to come along, even though that could be quite a while yet.  But I agree with Scruffy that it would be a good idea to talk it all over with your doctor and see what he recommends, as all we can do is give our opinions.

Take care and best of luck to you, whatever you choose to do.  We`re here for you! 

Today  I feel really depressed, last week I decided not to treat with dual therapy, because there are  a % 50 of healing in genothype 1a.  As you now, in Spain,at the moment I can´t take another way.

Yesterday I started to  beat myself about it.  Now I´m thinking here the new therapies will not arrive at time  for me. I dont know how to cooperate  with this.

On the other hand, many of you have talked to friends. I shared with a friend and she was afraid. She dón´t  tell me nothing, but she has moved away. I have the support of my partner, but in his opinion, we will affront it, when I treat, and next question is: What do you want  to dinner,  darling?

I feel insecure about my decision and I have  many negative  thoughts. Some support?

Thank you