Welcome to the forum, you have found a good place with caring people that can help guide your treatment and all the questions and concerns that come with treatment.
I may have missed it but did you tell us what Geno type you were?
Hoping that all goes well with your insurance and your future treatment.
matt
mdmfoo said
Jan 22, 2014
I most likely acquired HCV in the late 60's, early 70's, from ex husband (deceased). First clue was in the early 70's when I tried to give blood, then later in 80's was told I had liver disease of unknown origin. In the late 90's I was experiencing early neurological difficulties, blood tests came back with ALT 1067, AST 434. This led to HepC dx and Interferon/Riba tx beginning Jan 2000. Within 10 days of start of tx, neurological symptoms required termination of treatment. I was unable to walk unassisted, or talk with any articulation, i.e. you couldn't understand a word I said ;-( Very scary, to say the least. Dx was Primary Lateral Sclerosis, a rare variant of ALS. I regained my strength slowly, but still have neurological issues. My current liver specialist (not the guy that prescribed the Interferon) has been waiting for a safe treatment for me. 2011 Fibroscore gave me a good result,38, but an actual earlier biopsy contradicted that.
So, we've been waiting for Sufosbuvir, and now it has finally arrived, yeah team! Doc is putting in for medicare/Aetna approval, but I doubt they'll deny. I need this treatment. In addition to the PLS, I'm pre-diabetic, with no other risk factors. Hope that will also resolve. I'm really putting all my eggs in the Sufosbuvir basket.
Genotype 2b
Hello Jennifer
Welcome to the forum, you have found a good place with caring people that can help guide your treatment and all the questions and concerns that come with treatment.
I may have missed it but did you tell us what Geno type you were?
Hoping that all goes well with your insurance and your future treatment.
matt
I most likely acquired HCV in the late 60's, early 70's, from ex husband (deceased). First clue was in the early 70's when I tried to give blood, then later in 80's was told I had liver disease of unknown origin. In the late 90's I was experiencing early neurological difficulties, blood tests came back with ALT 1067, AST 434. This led to HepC dx and Interferon/Riba tx beginning Jan 2000. Within 10 days of start of tx, neurological symptoms required termination of treatment. I was unable to walk unassisted, or talk with any articulation, i.e. you couldn't understand a word I said ;-( Very scary, to say the least. Dx was Primary Lateral Sclerosis, a rare variant of ALS. I regained my strength slowly, but still have neurological issues. My current liver specialist (not the guy that prescribed the Interferon) has been waiting for a safe treatment for me. 2011 Fibroscore gave me a good result,38, but an actual earlier biopsy contradicted that.
Biopsy 2000 Mild portal inflammation with mild portal fibrosis, Grade 0, Stage 1
Biopsy 2007 Stage 2 Fibrosis
2011 Fibroscore 38, but 2007 biopsy contradicts
2011 HCV RNA 5,030,000 Genotype 2
So, we've been waiting for Sufosbuvir, and now it has finally arrived, yeah team! Doc is putting in for medicare/Aetna approval, but I doubt they'll deny. I need this treatment. In addition to the PLS, I'm pre-diabetic, with no other risk factors. Hope that will also resolve. I'm really putting all my eggs in the Sufosbuvir basket.