Great video but I'm not sure about the cloudy sky! Come to Australia and do some kite-surfing in the sunshine! Cheers buddy.
Isiscat2011 said
Aug 27, 2014
Rockyfeller wrote:
Thanks all, I appreciate the report. The comment about windsurfing made me look through my last posts, as it was a coincidence that I got my 24 week SVR notice also while I was at the lake sailing. Attached is a 2 minute clip I shot while sailing.
The link worked fine for me. Very cool. I felt like I was there. I want to try that! How fast were you going?
Rockyfeller said
Aug 27, 2014
Thanks all, I appreciate the report. The comment about windsurfing made me look through my last posts, as it was a coincidence that I got my 24 week SVR notice also while I was at the lake sailing. Attached is a 2 minute clip I shot while sailing.
Congratulations Jim! It looks like the new S/L combo with Riba did the trick. SVR indeed! I think you've blazed the path for others who have failed prior treatments.
Enjoy life! Never tried windsurfing, but it looks like fun.
Matt Chris said
Aug 27, 2014
Hey Jim
Super congrats on making it to 24 UND and yes SVR! Yahoo !
matt
Isiscat2011 said
Aug 26, 2014
Congrats, Jim!
Really appreciate you letting us know how your tx went. As you know many of us hope to be on that combo (with or without riba) and it is great to read about your experience.
mallani said
Aug 26, 2014
Hi Jim,
Congrats. Persistence pays off! Enjoy life.
Tig said
Aug 26, 2014
Hey Jim,
Congratulations Brother!!! You've really had quite the battle and you really deserve this great news! Keep us in the loop, I have a feeling that your news is going to continue to get better with each visit! Good luck Jim...
Tig
Huey said
Aug 26, 2014
congrats, :
Rockyfeller said
Aug 26, 2014
Got my test results today. 24 week svr. Wahoo
Matt Chris said
Jun 2, 2014
Hey Jim
Its so wonderful to hear your continued good results and guess the hard to treat guys like you and me and many others will be doing 24 weeks of the Gilead combo it really seems to do the trick. Nice to hear about your upswing in energy, enjoy and thanks for letting us all know and get faith from your story.
matt
Isiscat2011 said
Jun 2, 2014
Rockyfeller wrote:
Issicat,
It was actually 14 months between treatments, October 2012 to December 2013
Wow, that's even more interesting. Those little buggers were back in full swing by the second go around and the 12 weeks still got 'em. Good stuff.
Rockyfeller said
Jun 2, 2014
Issicat,
It was actually 14 months between treatments, October 2012 to December 2013
Rockyfeller said
Jun 2, 2014
Thanks all, and I hope that everyone else can soon attain the same results. In the 3 months since ending treatment I have noticed a considerable improvement in my health, a lot of which is due to my workout schedule, but a lot is due to the new energy I seem to have found. I was at the lake windsurfing today when I got the call from my nurse practitioner, and I haven't felt like windsurfing for a couple of years.
It definitely took the better part of 2 months for the effects of the meds to wear off. The riba took it's normal toll, and made me somewhat anemic, but I think the sofosbuvir added an edge to it. When trying to swim while taking it, I experienced some severe chest pains. An exam showed nothing wrong, and within 5 weeks of ending treatment I was able to swim again with no problems.
Good luck to all, and I hope to repeat this good news in 12 weeks.
Isiscat2011 said
Jun 2, 2014
Very good news, Jim. Congrats!
Looks like 24 weeks with Sovaldi as the core drug did the trick even with a 3 month break in between. That is very interesting. I'm wondering if the next SOC will become 12 weeks for all GT1s (with various DAA combos) and then another 12 asap if no SVR after the first round. That sounds reasonable to me as long as the break in between doesn't compromise the tx. I wonder if it would have worked without the Riba.
mallani said
Jun 2, 2014
Hi Jim,
Congrats buddy. It's interesting that you didn't make it with Sovaldi/Peg/Riba but Sovaldi/Ledipasvir/Riba did the trick. Retreatment works! Cheers.
Groupergetter said
Jun 2, 2014
Congratulations Jim, you've made it. Glad to hear you're doing so well. I'm trying to figure out how get out of the chronic fatigue routine. Had it for so long it's become part of me. Just finished tx so hopefully in time things will improve. Really happy for you. Be well, enjoy your newfound life.
Tig said
Jun 2, 2014
Hey Jim,
Congratulations!!! Thanks for sharing your great news! There have been so many good reports recently, and here again, you offer us more good news and another indication that they have finally found treatments that work. Continued good luck my friend, and keep us advised....
Tig
pl1952 said
Jun 2, 2014
Awesome!!! Congrats!!!
Loopy Lisa said
Jun 2, 2014
Congratualtions, that is great news :D
Rockyfeller said
Jun 2, 2014
I got the call today from the clinic that I tested negative after 12 weeks. Wahoo. I was more relieved than I thought I would be.
hrsetrdr said
Apr 12, 2014
Jim,
congratulations on the good turn your life has taken! Thanks for the update, pls keep us informed of your future progress.
Best of luck,
Tim
Rockyfeller said
Apr 12, 2014
Maybe the first round weakened it, and being able to do the second round 14 months later helped.
maddie said
Apr 10, 2014
Great news Jim. Congratulations! Appears to back up the assurance of many Hepatologists, that re-treatment with Sovaldi in the mix a second time, can be successful.
Continued UND..... and SVR in 8 weeks!!!
mallani said
Apr 8, 2014
Hi Jim,
Welcome back. It appears that you have done it, this time.
It's interesting that you relapsed after 12 weeks of Sovaldi/ Peg/Riba but appear to have done so well after 12 weeks of Sovaldi/Ledipasvir. It's a strange disease.
Glad you're feeling better. Cheers.
OldenSlow said
Apr 8, 2014
Hi Jim,
Thanks for posting back and best of luck on sustaining that UND. Really happy to hear your workout energy returned within a few weeks of stopping treatment. I'm not a swimmer but a runner, and fatigue has been my biggest problem. Pretty much dead in the water since about week 3. I put it on the riba. I'm only mildly anemic, but think I need all the Hb I can get to sustain any serious effort. Anyway, that's been it's effect on me. Good to hear about the light at end of tunnel. Thanks!
wayne
Cinnamon Girl said
Apr 8, 2014
Hi Jim, good to hear from you again, and congrats on your 4 wks post tx Und result!
It certainly sounds like you were suffering badly from the side effects of the ribavirin, and it must have been a scary experience thinking you were having a heart attack! Most probably your Hb count was low and you were overdoing it at that point, and it must feel great to be back in the pool and swimming again, that is excellent.
Best of luck with your next results which I guess will be at 12 weeks, and thanks for sharing your news, it will give hope and inspiration to many!
Matt Chris said
Apr 8, 2014
Hey Jim
Way to go! that is super fantastic news for you and all of us other relapsers and your odds only get better every day that passes UND your percentage of SVR gets greater.
I guess I have some swimming in my future as well.
Hooray for you!
matt
Rockyfeller said
Apr 7, 2014
I finished up my clinical trial with sofosbuvir/ledispavir on March 4, got my 4 week results today and was undetected. I won't start celebrating yet, but I didn't make it this far after the first try, so I'm optimistic.
I retired 1 month into the treatment. I had been going to the health club infrequently prior to this, but started going daily hoping to offset some of the side effects. The lack of interferon made this trial easier than the first, but fatigue was still a factor. Swimming used to be a major part of my work out, but in January when I tried swimming, I could barely make a single lap, and had serious thoughts as to whether or not I was having a heart attack, so after a couple of attempts I put swimming off until after treatment. One week after finishing up I tried again, and had similar pains, although to a lesser degree. I sent an email to my doctor asking about "angina like symptoms", and got a call from her to go the emergency room immediately. I told her I was not in any distress at the moment, but I could see her the next day. She had me do a nuclear stress test, x-rays and treadmill, and the results were that I had no problems, so I went back to the pool. Now, 5 weeks after finishing treatment I can knock out 20 laps with no problem, so it was all a side effect from the meds, probably the ribavirin.
Overall,I feel better than I have in years. I would like to attribute it to maybe being hep c free (fingers crossed), but i is probably that I'm not sitting at a desk all day, and working out regularly. Now 69 doesn't feel as old as it used to.
Now I just hope they can make this more affordable.
Way to go on the SVR !!!
Congrats on the SVR Jim!!!
probably about 20-25 mph
Hi Jim,
Great video but I'm not sure about the cloudy sky! Come to Australia and do some kite-surfing in the sunshine! Cheers buddy.
The link worked fine for me. Very cool. I felt like I was there. I want to try that! How fast were you going?
Thanks all, I appreciate the report. The comment about windsurfing made me look through my last posts, as it was a coincidence that I got my 24 week SVR notice also while I was at the lake sailing. Attached is a 2 minute clip I shot while sailing.
[video=https://www.dropbox.com/s/om26p6rkrw6oi0s/Lake%20Swann.mp4?dl=0]
I hope that link works
Congrats Jim! Good to hear --- gives me hope!
Congratulations Jim! It looks like the new S/L combo with Riba did the trick. SVR indeed! I think you've blazed the path for others who have failed prior treatments.
Enjoy life! Never tried windsurfing, but it looks like fun.
Hey Jim
Super congrats on making it to 24 UND and yes SVR! Yahoo !
matt
Congrats, Jim!
Really appreciate you letting us know how your tx went. As you know many of us hope to be on that combo (with or without riba) and it is great to read about your experience.
Hi Jim,
Congrats. Persistence pays off! Enjoy life.
Hey Jim,
Congratulations Brother!!! You've really had quite the battle and you really deserve this great news! Keep us in the loop, I have a feeling that your news is going to continue to get better with each visit! Good luck Jim...
Tig
congrats, :
Got my test results today. 24 week svr. Wahoo
Hey Jim
Its so wonderful to hear your continued good results and guess the hard to treat guys like you and me and many others will be doing 24 weeks of the Gilead combo it really seems to do the trick. Nice to hear about your upswing in energy, enjoy and thanks for letting us all know and get faith from your story.
matt
Wow, that's even more interesting. Those little buggers were back in full swing by the second go around and the 12 weeks still got 'em. Good stuff.
Issicat,
It was actually 14 months between treatments, October 2012 to December 2013
Thanks all, and I hope that everyone else can soon attain the same results. In the 3 months since ending treatment I have noticed a considerable improvement in my health, a lot of which is due to my workout schedule, but a lot is due to the new energy I seem to have found. I was at the lake windsurfing today when I got the call from my nurse practitioner, and I haven't felt like windsurfing for a couple of years.
It definitely took the better part of 2 months for the effects of the meds to wear off. The riba took it's normal toll, and made me somewhat anemic, but I think the sofosbuvir added an edge to it. When trying to swim while taking it, I experienced some severe chest pains. An exam showed nothing wrong, and within 5 weeks of ending treatment I was able to swim again with no problems.
Good luck to all, and I hope to repeat this good news in 12 weeks.
Very good news, Jim. Congrats!
Looks like 24 weeks with Sovaldi as the core drug did the trick even with a 3 month break in between. That is very interesting. I'm wondering if the next SOC will become 12 weeks for all GT1s (with various DAA combos) and then another 12 asap if no SVR after the first round. That sounds reasonable to me as long as the break in between doesn't compromise the tx. I wonder if it would have worked without the Riba.
Hi Jim,
Congrats buddy. It's interesting that you didn't make it with Sovaldi/Peg/Riba but Sovaldi/Ledipasvir/Riba did the trick. Retreatment works! Cheers.
Congratulations Jim, you've made it. Glad to hear you're doing so well. I'm trying to figure out how get out of the chronic fatigue routine. Had it for so long it's become part of me. Just finished tx so hopefully in time things will improve. Really happy for you. Be well, enjoy your newfound life.
Hey Jim,
Congratulations!!! Thanks for sharing your great news! There have been so many good reports recently, and here again, you offer us more good news and another indication that they have finally found treatments that work. Continued good luck my friend, and keep us advised....
Tig
Awesome!!! Congrats!!!
Congratualtions, that is great news :D
I got the call today from the clinic that I tested negative after 12 weeks. Wahoo. I was more relieved than I thought I would be.
congratulations on the good turn your life has taken! Thanks for the update, pls keep us informed of your future progress.
Best of luck,
Tim
Maybe the first round weakened it, and being able to do the second round 14 months later helped.
Great news Jim. Congratulations! Appears to back up the assurance of many Hepatologists, that re-treatment with Sovaldi in the mix a second time, can be successful.
Continued UND..... and SVR in 8 weeks!!!
Hi Jim,
Welcome back. It appears that you have done it, this time.
It's interesting that you relapsed after 12 weeks of Sovaldi/ Peg/Riba but appear to have done so well after 12 weeks of Sovaldi/Ledipasvir. It's a strange disease.
Glad you're feeling better. Cheers.
Hi Jim,
Thanks for posting back and best of luck on sustaining that UND. Really happy to hear your workout energy returned within a few weeks of stopping treatment. I'm not a swimmer but a runner, and fatigue has been my biggest problem. Pretty much dead in the water since about week 3. I put it on the riba. I'm only mildly anemic, but think I need all the Hb I can get to sustain any serious effort. Anyway, that's been it's effect on me. Good to hear about the light at end of tunnel. Thanks!
wayne
Hi Jim, good to hear from you again, and congrats on your 4 wks post tx Und result!
It certainly sounds like you were suffering badly from the side effects of the ribavirin, and it must have been a scary experience thinking you were having a heart attack! Most probably your Hb count was low and you were overdoing it at that point, and it must feel great to be back in the pool and swimming again, that is excellent.
Best of luck with your next results which I guess will be at 12 weeks, and thanks for sharing your news, it will give hope and inspiration to many!
Hey Jim
Way to go! that is super fantastic news for you and all of us other relapsers and your odds only get better every day that passes UND your percentage of SVR gets greater.
I guess I have some swimming in my future as well.
Hooray for you!
matt
I finished up my clinical trial with sofosbuvir/ledispavir on March 4, got my 4 week results today and was undetected. I won't start celebrating yet, but I didn't make it this far after the first try, so I'm optimistic.
I retired 1 month into the treatment. I had been going to the health club infrequently prior to this, but started going daily hoping to offset some of the side effects. The lack of interferon made this trial easier than the first, but fatigue was still a factor. Swimming used to be a major part of my work out, but in January when I tried swimming, I could barely make a single lap, and had serious thoughts as to whether or not I was having a heart attack, so after a couple of attempts I put swimming off until after treatment. One week after finishing up I tried again, and had similar pains, although to a lesser degree. I sent an email to my doctor asking about "angina like symptoms", and got a call from her to go the emergency room immediately. I told her I was not in any distress at the moment, but I could see her the next day. She had me do a nuclear stress test, x-rays and treadmill, and the results were that I had no problems, so I went back to the pool. Now, 5 weeks after finishing treatment I can knock out 20 laps with no problem, so it was all a side effect from the meds, probably the ribavirin.
Overall,I feel better than I have in years. I would like to attribute it to maybe being hep c free (fingers crossed), but i is probably that I'm not sitting at a desk all day, and working out regularly. Now 69 doesn't feel as old as it used to.
Now I just hope they can make this more affordable.