Hi, you are going to do fine, you are open and up front about your feelings, that alone takes courage. I have had 1b fpr 42 years and at age 62, I can still cycle my race bike 35 miles on the ocean highway in hot sun, now of course I must cycle at night and settle for 20 mile treks but thats ok. Rest lots, eat well, keep busy, time passes quickly. Hope you have some happy days in front of you! Aloha
Turnsit said
Jun 9, 2014
I cried the whole year on interferon and riba, just sat in the tub and cried. Its ok to cry on or off treatment, it helps to heal...
jimbob said
Jun 8, 2014
Hi Sarah, and welcome to the board.
That 'crying' game you speak of has been experienced by all on here who have had the same meds as you. It has a mind of its own and will come at the most unexpected times. The evening news became a daily routine with me. I teared- up when the Iranian kids were arrested for dancing to the catchy Pharell Williams song.
Just know that you are not alone, and others on here most likely have experienced it , and will have either remedies or very good advice to help you.
You are young and that is a big plus.
Good luck with tx, and best wishes.
jimbob
Turnsit said
Jun 8, 2014
What treatment drugs are you on? You are young so be of good heart, you will get well, no douby about it. I am on solvaldi and olysio. I spent 6 months on a sheep farm in southern australia, 6 thou acres in 2007 after my first treatment, one of my best friends is an Aussie...best to you.
TazKat said
Jun 8, 2014
Welcome. This group of friends are the best. Vent when u need to, we are always here to listen & help in any way that we can. Well mainly they all help me. I am doing 4th attempt at treatment which ALL have included the interfereon & riba. You are young & believe me you got that on your side.. Good luck!!
Housewife01 said
Jun 8, 2014
Thank you to everyone, even these small messages are taking so much weight off my shoulders! I find it's so easy to get lost in my own head but this makes me realise there is a finish line and one day we can ALL cross it,
Housewife01 said
Jun 8, 2014
I'm usually such an active person but I'm just so tired all the time and find myself crying over nothing at all which is different for me. My nurse told me these would happen but I think I just assumed it wouldn't happen to me.
Fireman Rob said
Jun 8, 2014
Welcome Sarah, I'm so glad you caught this now and not later. Good luck on treatment- I'm sure you will do great! If you have questions, there are many knowledgable people here to help. Have a great day!
-- Edited by Fireman Rob on Sunday 8th of June 2014 11:14:19 PM
Loopy Lisa said
Jun 8, 2014
Hi Sarah,
I'm a 3 too but quasi species b. It is the standard treatment for now all though all oral therapy will be available in most countries in the next few years.
Sorry you are finding treatment hard, it is not a great combination but you are young and as you have had it a short time maybe you are done in 16 weeks.
We are all here if you need support, there is a great group here that have achieved SVR, non responders and failed therapy.
Good luck :D
Isiscat2011 said
Jun 8, 2014
Welcome Sarah:
You have come to the right place. You are one of our youngest members so you could bring out some maternal/paternal instincts in us, but in a good way, not in the Mommy Dearest, Joan Crawford way!
Your age and the relatively short period of time you have had the virus will work in your favor. Your genotype is also a bit easier to get rid of.
Whatever you are going through, in terms of side effects or feelings, you can talk about and we will try to help.
Huey said
Jun 8, 2014
Housewife01 wrote:
Hello,
my name is Sarah and I'm from Australia and I am 22.
ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through what I am going through.
im sorry if that was such a word vomit!
i don't really know how this works but I like new friends.
Hi, Sarah,
I am a 3a too. I am in the middle of this treatment on week 15, I think I have had mine for 35 years or so but only know about it a little more than a Year ago. I can tell you how my experience was with this Tx but that does not mean your experience will be the same. I know that Geno 3 has a unique Characteristic and this is that it causes insulin resistance and it will show up in the test you will be taking as elevated sugar or glucose. This will make you feel dizzy like your low on sugar but in reality what is going on is your cells are not using the sugar and it builds up. And During the time you are having the RVR (Rapid viral Response ) The bottom drops out of the Viral Load and you drop to UND in 4 weeks or less. you will have the worst side effects, But after you get to that point you start to feel better. The hardiest part is the first 4 weeks.
Cinnamon Girl said
Jun 8, 2014
Well done, Sarah, yes I can see what you wrote.
Ok, so that`s the standard treatment for genotype 3 in Australia, and it`s the same treatment as I did too. I see you`re started tx (treatment) very recently and quite often people find that after the first couple of weeks or so the side effects do settle down when you`re body has got more used to the drugs. It`s quite a shock to the system at first! What are the side effects you`re finding most difficult at the moment?
Housewife01 said
Jun 8, 2014
Thank you.
i think I changed my signature and my viral load was around 2 million.
thank you so much it's such a relief to find this!
Cinnamon Girl said
Jun 8, 2014
Hello Sarah, welcome to the forum!
I`m glad you found us, this is a very friendly and helpful group so you`re amongst friends here! Well done for starting your treatment, and I`m sorry to hear you`re finding it hard going. Could you tell us more about what treatment drugs you`re on and what your genotype is, please Sarah? That will really help us when we reply with advice and information. You could also write that information in your `signature` (look in your user profile details and click on `Signature`) and then it will appear underneath all your posts.
The good news is that you are young and haven`t been infected with Hep C for very long (especially compared with many of us here) so the virus won`t have had time to cause any significant damage to your liver.
Looking forward to hearing from you again, and best of luck!
Housewife01 said
Jun 8, 2014
Hello,
my name is Sarah and I'm from Australia and I am 22.
ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through what I am going through.
im sorry if that was such a word vomit!
i don't really know how this works but I like new friends.
Hi, you are going to do fine, you are open and up front about your feelings, that alone takes courage. I have had 1b fpr 42 years and at age 62, I can still cycle my race bike 35 miles on the ocean highway in hot sun, now of course I must cycle at night and settle for 20 mile treks but thats ok. Rest lots, eat well, keep busy, time passes quickly. Hope you have some happy days in front of you! Aloha
I cried the whole year on interferon and riba, just sat in the tub and cried. Its ok to cry on or off treatment, it helps to heal...
That 'crying' game you speak of has been experienced by all on here who have had the same meds as you. It has a mind of its own and will come at the most unexpected times. The evening news became a daily routine with me. I teared- up when the Iranian kids were arrested for dancing to the catchy Pharell Williams song.
Just know that you are not alone, and others on here most likely have experienced it , and will have either remedies or very good advice to help you.
You are young and that is a big plus.
Good luck with tx, and best wishes.
jimbob
What treatment drugs are you on? You are young so be of good heart, you will get well, no douby about it. I am on solvaldi and olysio. I spent 6 months on a sheep farm in southern australia, 6 thou acres in 2007 after my first treatment, one of my best friends is an Aussie...best to you.
Welcome. This group of friends are the best. Vent when u need to, we are always here to listen & help in any way that we can. Well mainly they all help me. I am doing 4th attempt at treatment which ALL have included the interfereon & riba. You are young & believe me you got that on your side.. Good luck!!
Thank you to everyone, even these small messages are taking so much weight off my shoulders! I find it's so easy to get lost in my own head but this makes me realise there is a finish line and one day we can ALL cross it,
I'm usually such an active person but I'm just so tired all the time and find myself crying over nothing at all which is different for me. My nurse told me these would happen but I think I just assumed it wouldn't happen to me.
Welcome Sarah, I'm so glad you caught this now and not later. Good luck on treatment- I'm sure you will do great! If you have questions, there are many knowledgable people here to help. Have a great day!
-- Edited by Fireman Rob on Sunday 8th of June 2014 11:14:19 PM
Hi Sarah,
I'm a 3 too but quasi species b. It is the standard treatment for now all though all oral therapy will be available in most countries in the next few years.
Sorry you are finding treatment hard, it is not a great combination but you are young and as you have had it a short time maybe you are done in 16 weeks.
We are all here if you need support, there is a great group here that have achieved SVR, non responders and failed therapy.
Good luck :D
Welcome Sarah:
You have come to the right place. You are one of our youngest members so you could bring out some maternal/paternal instincts in us, but in a good way, not in the Mommy Dearest, Joan Crawford way!
Your age and the relatively short period of time you have had the virus will work in your favor. Your genotype is also a bit easier to get rid of.
Whatever you are going through, in terms of side effects or feelings, you can talk about and we will try to help.
Hi, Sarah,
I am a 3a too. I am in the middle of this treatment on week 15, I think I have had mine for 35 years or so but only know about it a little more than a Year ago. I can tell you how my experience was with this Tx but that does not mean your experience will be the same. I know that Geno 3 has a unique Characteristic and this is that it causes insulin resistance and it will show up in the test you will be taking as elevated sugar or glucose. This will make you feel dizzy like your low on sugar but in reality what is going on is your cells are not using the sugar and it builds up. And During the time you are having the RVR (Rapid viral Response ) The bottom drops out of the Viral Load and you drop to UND in 4 weeks or less. you will have the worst side effects, But after you get to that point you start to feel better. The hardiest part is the first 4 weeks.
Well done, Sarah, yes I can see what you wrote.
Ok, so that`s the standard treatment for genotype 3 in Australia, and it`s the same treatment as I did too. I see you`re started tx (treatment) very recently and quite often people find that after the first couple of weeks or so the side effects do settle down when you`re body has got more used to the drugs. It`s quite a shock to the system at first! What are the side effects you`re finding most difficult at the moment?
Thank you.
i think I changed my signature and my viral load was around 2 million.
thank you so much it's such a relief to find this!
Hello Sarah, welcome to the forum!
I`m glad you found us, this is a very friendly and helpful group so you`re amongst friends here! Well done for starting your treatment, and I`m sorry to hear you`re finding it hard going. Could you tell us more about what treatment drugs you`re on and what your genotype is, please Sarah? That will really help us when we reply with advice and information. You could also write that information in your `signature` (look in your user profile details and click on `Signature`) and then it will appear underneath all your posts.
The good news is that you are young and haven`t been infected with Hep C for very long (especially compared with many of us here) so the virus won`t have had time to cause any significant damage to your liver.
Looking forward to hearing from you again, and best of luck!
Hello,
my name is Sarah and I'm from Australia and I am 22.
ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through what I am going through.
im sorry if that was such a word vomit!
i don't really know how this works but I like new friends.