Just wanted to share my happy news. I haven't been active on here, mainly because I didn't feel I had much to add. I basically had no side effects and no symptoms of the disease when I started. I was on the Abbvie Topaz cohort. Anyway, got my results back today from what should have been my 12 week checkup but the holidays turned it into 14 weeks. Clear!!!!!!!!!!!!!!!!!!!!!! I go for an ultrasound next week, a 24 week checkup in March and more follow ups for the next 4.5 years but I so happy.
Congratulations on SVR14, hippiechick!! It`s great to hear how well you`ve done on this Abbvie trial, you must be overjoyed!!
Thanks for sharing your good news, we`re pleased to hear from you any time so do keep in touch.
Enjoy being hep C free...it`s a wonderful feeling!!
(I`ve joined this post to your previous thread, hope that`s ok.)
Matt Chris said
Jan 16, 2015
Congrats on your update and hope all goes well from here.
matt
lilbit said
Jan 16, 2015
Horray for Abbvie and you did a beautiful job hippychick. This old gal is happy dancing for you big time.
Mugsy said
Jan 16, 2015
Great news!
hippiechick said
Jan 16, 2015
Just wanted to share my happy news. I haven't been active on here, mainly because I didn't feel I had much to add. I basically had no side effects and no symptoms of the disease when I started. I was on the Abbvie Topaz cohort. Anyway, got my results back today from what should have been my 12 week checkup but the holidays turned it into 14 weeks. Clear!!!!!!!!!!!!!!!!!!!!!! I go for an ultrasound next week, a 24 week checkup in March and more follow ups for the next 4.5 years but I so happy.
shadow10cats said
Oct 30, 2014
I only have one thing to say
I want that puppy and that mouse and that other puppy and isis kittyand did i say those puppies???? too much cute !
LC said
Oct 13, 2014
You should be getting close to done now. How are you doing? I am following you and lilbit on this same trial.
hippiechick said
Aug 12, 2014
wmlj1960 wrote:
Isiscat2011 wrote:
Hey Mike:
It is a genetic thing. CC is the IL28b allele. CC is the best to have for folks on Interferon tx; they usually attain RVR which means they respond well and fast to Interferon and are more likely to SVR.
There is also the CT and the TT. I have CT which means I am in the middle for Interferon sensitivity.
Thanks Isis. I had also wandered about the 'CT' in your sig as well as Malcolm's. I assumed the 'cc' in hippiechick's post meant compensated cirrhotic until I read the last line of the very first post in this thread (moved by Jill), and also the post I quoted.
Sorry hippiechick for going off topic. I still say your 2 week labs are awesome and I hope I can follow your lead!
Totally not off topic. I feel like such a newbie that I wrongly assume you are all more knowledgeable than I. The cc designation actually kept me out of the last trial, that's the only reason I even have that info. And there's no Interferon in this trial but they tell me it is the best responder to the drug.
hippiechick said
Aug 12, 2014
suziq wrote:
That is wonderful!!!
What is the length of your trial??
So many great new meds.
Sounds as if yours (and you as well) is a winner.
The trial is 12 weeks, went in today for my 4 week blood draw and should get those results Thurs/Fri. At this point I assume they are only monitoring to be sure there is no relapse activity. I'm over 1/3 of the way and time is flying by!
suziq said
Aug 12, 2014
That is wonderful!!!
What is the length of your trial??
So many great new meds.
Sounds as if yours (and you as well) is a winner.
Loopy Lisa said
Aug 11, 2014
I think your fast on your way to SVR, conratulations :D
wmlj1960 said
Aug 11, 2014
Isiscat2011 wrote:
Hey Mike:
It is a genetic thing. CC is the IL28b allele. CC is the best to have for folks on Interferon tx; they usually attain RVR which means they respond well and fast to Interferon and are more likely to SVR.
There is also the CT and the TT. I have CT which means I am in the middle for Interferon sensitivity.
Thanks Isis. I had also wandered about the 'CT' in your sig as well as Malcolm's. I assumed the 'cc' in hippiechick's post meant compensated cirrhotic until I read the last line of the very first post in this thread (moved by Jill), and also the post I quoted.
Sorry hippiechick for going off topic. I still say your 2 week labs are awesome and I hope I can follow your lead!
Isiscat2011 said
Aug 11, 2014
hippiechick wrote:
I started my Abbvie Topaz clinical trial on July 14, had my two weeks checkup on July 29 and on July 31 was told my VL was down from 4 million+ to undetectable (<15) My ALT went from 180 to 20 and my AST from 170 to 30. I was so happy I cried.
Just had to share!
Wow, that's fast. Those are numbers we like to see.
Isiscat2011 said
Aug 11, 2014
Hey Mike:
It is a genetic thing. CC is the IL28b allele. CC is the best to have for folks on Interferon tx; they usually attain RVR which means they respond well and fast to Interferon and are more likely to SVR.
There is also the CT and the TT. I have CT which means I am in the middle for Interferon sensitivity.
wmlj1960 said
Aug 11, 2014
hippiechick wrote:
Jaded wrote:
Congratulations...what genotype are you and are cirrhosis/fibrosis free?
1a-cc and (without having a biopsy) cirrhosis/fibrosis free.
FMI - Just curious, what does the 'cc' after 'geno 1a' mean? I didn't see it in the Forum abbreviationslist.
hippiechick said
Aug 11, 2014
Thank you all for the positive responses. Super excited and sending all my very best wishes to all those still waiting for similar news!!!
hippiechick said
Aug 11, 2014
Jaded wrote:
Congratulations...what genotype are you and are cirrhosis/fibrosis free?
1a-cc and (without having a biopsy) cirrhosis/fibrosis free.
TazKat said
Aug 9, 2014
yay.... wonderful.... I am still feeling a little yuk. I have been off treatment for about 3 weeks. I"ll get there..
Gator Man said
Aug 9, 2014
Great news, hippiechick! It amazes me how quickly liver enzymes can recover after the virus is eradicated, even after years or decades with Hep C.
It looks like another successful DAA combo will be in the tx pool in the near future. Good stuff for all!
Cinnamon Girl said
Aug 9, 2014
Excellent result after only two week, and look at how your liver enzymes have dropped! Congrats to you, hippiechick!
What a boost!
(PS - I`ve joined both of your threads together so that we have all the information about your trial in one thread.)
Scruffy said
Aug 9, 2014
After 2 weeks...NICE!!!!!!!!!!
Jaded said
Aug 8, 2014
Congratulations...what genotype are you and are cirrhosis/fibrosis free?
wmlj1960 said
Aug 8, 2014
Wow, that's awesome! Congrats!!!
Paul B said
Aug 8, 2014
Fab news !!
mallani said
Aug 8, 2014
Very impressive! You're on your way to SVR. Cheers.
hippiechick said
Aug 8, 2014
I started my Abbvie Topaz clinical trial on July 14, had my two weeks checkup on July 29 and on July 31 was told my VL was down from 4 million+ to undetectable (<15) My ALT went from 180 to 20 and my AST from 170 to 30. I was so happy I cried.
Just had to share!
hippiechick said
Jul 21, 2014
I did a search but didn't see anyone discussing the Abbvie Topaz II clinical trials. If anyone else is on this I would be interested to see how you're doing. Took my first dose July 21. The regimen is:
ABT-450/Ritonavir/2 ABT-267 75mg/50mg/12.5mg (2 per day)
ABT-333 250 mg (2 per day)
5 Ribaviran
I was worried about possible side effects (the Dr. said I might be itchy, bitchy and/or yellow, haha!) but so far I feel great. Slight insomnia but I am used to that with menopause I still walk an hour a day and swim 3 times a week. No fatigue, no nausea and (so far) no jaundice. Maybe a little extra itchy but nothing to cry about. The bitchy part, well...
I have never had symptoms for Hep C, it was discovered during a routine physical. I understand that many of you sought treatment because you were showing symptoms such as fatigue but this really came out of left field for me. After my first doctor visit, when the specialist asked me if I intended to seek treatment, I realized I had some research to do. What kind of Dr. tells you that you have a life threatening disease and then asks if you want treatment?? Long story short I found a clinic in San Francisco doing trials and I tested. Didn't qualify the first time but went back last month and qualified for the Abbvie Topaz cohort.
Congratulations on SVR14, hippiechick!! It`s great to hear how well you`ve done on this Abbvie trial, you must be overjoyed!!
Thanks for sharing your good news, we`re pleased to hear from you any time so do keep in touch.
Enjoy being hep C free...it`s a wonderful feeling!!
(I`ve joined this post to your previous thread, hope that`s ok.)
Congrats on your update and hope all goes well from here.
matt
Great news!
Just wanted to share my happy news. I haven't been active on here, mainly because I didn't feel I had much to add. I basically had no side effects and no symptoms of the disease when I started. I was on the Abbvie Topaz cohort. Anyway, got my results back today from what should have been my 12 week checkup but the holidays turned it into 14 weeks. Clear!!!!!!!!!!!!!!!!!!!!!! I go for an ultrasound next week, a 24 week checkup in March and more follow ups for the next 4.5 years but I so happy.
I only have one thing to say
I want that puppy and that mouse and that other puppy and isis kittyand did i say those puppies???? too much cute !
Totally not off topic. I feel like such a newbie that I wrongly assume you are all more knowledgeable than I. The cc designation actually kept me out of the last trial, that's the only reason I even have that info. And there's no Interferon in this trial but they tell me it is the best responder to the drug.
The trial is 12 weeks, went in today for my 4 week blood draw and should get those results Thurs/Fri. At this point I assume they are only monitoring to be sure there is no relapse activity. I'm over 1/3 of the way and time is flying by!
That is wonderful!!!
What is the length of your trial??
So many great new meds.
Sounds as if yours (and you as well) is a winner.
I think your fast on your way to SVR, conratulations :D
Thanks Isis. I had also wandered about the 'CT' in your sig as well as Malcolm's. I assumed the 'cc' in hippiechick's post meant compensated cirrhotic until I read the last line of the very first post in this thread (moved by Jill), and also the post I quoted.
hippiechick wrote:
Sorry hippiechick for going off topic. I still say your 2 week labs are awesome and I hope I can follow your lead!
Wow, that's fast. Those are numbers we like to see.
Hey Mike:
It is a genetic thing. CC is the IL28b allele. CC is the best to have for folks on Interferon tx; they usually attain RVR which means they respond well and fast to Interferon and are more likely to SVR.
There is also the CT and the TT. I have CT which means I am in the middle for Interferon sensitivity.
FMI - Just curious, what does the 'cc' after 'geno 1a' mean? I didn't see it in the Forum abbreviations list.
Thank you all for the positive responses. Super excited and sending all my very best wishes to all those still waiting for similar news!!!
1a-cc and (without having a biopsy) cirrhosis/fibrosis free.
yay.... wonderful.... I am still feeling a little yuk. I have been off treatment for about 3 weeks. I"ll get there..
Great news, hippiechick! It amazes me how quickly liver enzymes can recover after the virus is eradicated, even after years or decades with Hep C.
It looks like another successful DAA combo will be in the tx pool in the near future. Good stuff for all!
Excellent result after only two week, and look at how your liver enzymes have dropped! Congrats to you, hippiechick!
What a boost!
(PS - I`ve joined both of your threads together so that we have all the information about your trial in one thread.)
After 2 weeks...NICE!!!!!!!!!!
Congratulations...what genotype are you and are cirrhosis/fibrosis free?
Wow, that's awesome! Congrats!!!
Fab news !!
Very impressive! You're on your way to SVR. Cheers.
I started my Abbvie Topaz clinical trial on July 14, had my two weeks checkup on July 29 and on July 31 was told my VL was down from 4 million+ to undetectable (<15) My ALT went from 180 to 20 and my AST from 170 to 30. I was so happy I cried.
Just had to share!
I did a search but didn't see anyone discussing the Abbvie Topaz II clinical trials. If anyone else is on this I would be interested to see how you're doing. Took my first dose July 21. The regimen is:
ABT-450/Ritonavir/2 ABT-267 75mg/50mg/12.5mg (2 per day)
ABT-333 250 mg (2 per day)
5 Ribaviran
I was worried about possible side effects (the Dr. said I might be itchy, bitchy and/or yellow, haha!) but so far I feel great. Slight insomnia but I am used to that with menopause
I still walk an hour a day and swim 3 times a week. No fatigue, no nausea and (so far) no jaundice. Maybe a little extra itchy but nothing to cry about. The bitchy part, well...
I have never had symptoms for Hep C, it was discovered during a routine physical. I understand that many of you sought treatment because you were showing symptoms such as fatigue but this really came out of left field for me. After my first doctor visit, when the specialist asked me if I intended to seek treatment, I realized I had some research to do. What kind of Dr. tells you that you have a life threatening disease and then asks if you want treatment?? Long story short I found a clinic in San Francisco doing trials and I tested. Didn't qualify the first time but went back last month and qualified for the Abbvie Topaz cohort.
53 yrs old. genotype 1a (cc) VL 4 mill, possibly cirrhotic
-- Edited by hippiechick on Monday 21st of July 2014 11:40:22 PM