Good for you Vanessa! I'm enrolled in a 12 week treatment, and I will have had 6 visits to them by the end of that time. The odds are good that you will reach SVR, and there is always going through your insurance with other meds if not.
Matt Chris said
Oct 23, 2014
Hey Vanessa
Welcome to the forum family, we have many that have been on HCV trials. I would recommend you go for the Abbvie trial if you have a good medical team backing up the study. it does require a lot of visits to the clinic but you tend the learn a ton about all things HCV,
I think Abbvie mostly has treated its trial patients well and they have good products and high SVR results.
If you fail to reach SVR it should not preclude you from other drugs especially the Gilead "Sovaldi" there will be more GT2 drug combos coming out in the next 2 years so I would not be worried about having options to retreat.
matt
Matt Chris said
Oct 23, 2014
Hello Tess
Welcome to the forum you have found a good place as you are well aware.
At nine weeks you're probably having a bit of Riba Rage and depressed energy levels because of reduced red blood cell count (hemoglobin) its a common effect of Ribavirin, The good thing is it will rebound after treatment is completed which will bring back your energy level.
Keep on eating healthy and try to exercise if possible.
matt
justvlm said
Oct 23, 2014
Hello, Tess.
It's nice to meet you. My clinic director called and I've agreed to the AbbVie screening tomorrow. I have several irons in the fire that would make treating now a very good idea. I'll know more tomorrow and will post in the Clinical section.
Tess1971 said
Oct 23, 2014
I am new here and have been lurking for a while also. Did one post on the post treatment forum. I have had hepc since 1971 when I got sick with hepB and nonAnonB at the time. Seems I completed cleared hepb with only antibodies and no surface antigens. However, no one back then knew what to think of the nonAnonB so it was ignored for years. My LFTS were always in high normal range and occasionally slightly over. In 1997 I had blood work that showed the hepc antibodies and positive of surface antigens. I have avoided treatment for many years as interferon was out of the question for me as a working single mom. Now that sovaldi is here I decided now is the time since I can tell it is catching up with me. Too tired to do much of anything, even think straight as well as other differences.
I am in week 9 of sovaldi and ribavirin. It is literally getting under my skin. The boohoos come on so easily too. I do eat healthy, cheated occasionally. Used to party well up until 97 when I found out about the nonAnonB being hepc.
justvlm said
Oct 21, 2014
mallani wrote:
Hi Vanessa,
Why bother with AbbVie? The SVR rate for Geno 2 is >97% with 12 weeks of Sovaldi/Ribavirin. I doubt whether AbbVie would be as good. Cheers.
Thanks Mallani,
I suppose I am hoping I can get the arm without Ribavirin. I can't find anything that forecasts when GT 2 might see treatment without ribavirin. But I'm concerned about the trial drugs as well, if I don't get SVR will they preclude me from future drugs. I'm still trying to make sense of all this.
mallani said
Oct 19, 2014
Hi Vanessa,
Why bother with AbbVie? The SVR rate for Geno 2 is >97% with 12 weeks of Sovaldi/Ribavirin. I doubt whether AbbVie would be as good. Cheers.
Huey said
Oct 19, 2014
Geno 2 has one of us veteran members on the way to being cured, SVR+4... I am a 3 and I too have had the Sovaldi with the Riba. It is do able but don't under estimate it. I managed to work through treatment but wound up quitting my job soon as it was over, .
We are all in this together, Keep your stick on the ice. 'Red Green Show'
Groupergetter said
Oct 18, 2014
Hi Vanessa, glad you found this forum. It's a great place for all things HCV related (and sometimes not ). Folks here are knowledgeable, caring, compassionate, and very supportive. Seeing others experiences and trials in dealing with this virus, helps to keep things in perspective. Looking forward to reading your posts. Be well
Cinnamon Girl said
Oct 18, 2014
justvlm wrote:
Hello everyone. I've been lurking here off and on for a long time. I opted to not treat after being diagnosed in 2007, biopsy of stage 0/1, grade 0/1. I'm not sure if the GI fired me or the other way around. She just couldn't believe I wouldn't ingest poison for 6 months, question her superior knowledge. She was quite sure I'd manage just fine. Oh well, that is ancient history.
Fast forward. I hope to hear soon if I can qualify for the AbbVie trial for 2 &.3s. It does have a ribaviron arm, but best I can find that's going to be the tx for GT2.
Just wanted to pop in to say hi and look forward to meeting everyone.
Hi Vanessa, welcome from me too! Glad you decided to join us and you`ll find plenty of friendly and helpful people here!
From your history I think you did the right thing by waiting for a chance to do an Interferon-free treatment and all the best of luck with getting onto the Abbvie trial..no-one wants to be force fed poison for 6 months if they don`t have to!
Keep in touch and let us know how you get on. We do have a forum area called `Clinical Trial Participants`, so fingers crossed we see you there before too long! ~ Jill
Milliganus said
Oct 17, 2014
Dzdayscomin wrote:
Marcy we are all hoping and praying for you as well, you are always so supportive to all that swim these waters. ....I personally thank you for that.
What a wonderful human being you are!
God Bless you!
Duane
Aw shucks Duane....your too kind.
Dzdayscomin said
Oct 17, 2014
Marcy we are all hoping and praying for you as well, you are always so supportive to all that swim these waters. ....I personally thank you for that.
What a wonderful human being you are!
God Bless you!
Duane
Milliganus said
Oct 17, 2014
Welcome and congrats on moving from lurking status! I waited for treatment for many years. My biopsies were always fine, so I wasn't willing to put myself thru IF treatment. I just finished up a clinical trial so I'm hoping for SVR. No side effects, virtually painless.
LC said
Oct 17, 2014
justvlm wrote:
Thanks all.
LC... It was the recent exchange between a resourceful mouse and some sassy kitties that made me think 'I like these peeps, I gonna hang out with them'. ps....I love your guard dog !
It is so wonderful that the general conversations about tx isn't how to survive this or that or all these horrid Sx.
That's so cool! There are some great people on here!
justvlm said
Oct 17, 2014
Thanks all.
LC... It was the recent exchange between a resourceful mouse and some sassy kitties that made me think 'I like these peeps, I gonna hang out with them'. ps....I love your guard dog !
It is so wonderful that the general conversations about tx isn't how to survive this or that or all these horrid Sx.
LC said
Oct 17, 2014
Hi Vanessa, good for you! Fingers crossed that you get into that trial.
beingsassy said
Oct 17, 2014
Welcome Vanessa
i am also G2. I waited over 20 years to start tx because I didn't want to do interferon. There are so many new drugs available and the success rates are improving. Please stick around and ask questions. Our gurus have a great store of information snout the disease and different treatment option. You'll also find lots of support and a safe place to just vent or share a joke or two. Look forward to reading more posts from you. Good luck
Gigi
Tig said
Oct 17, 2014
Welcome Vanessa! How dare you question such knowledge!!! Ha, ha! You aren't alone, many people have made the decision to avoid those drugs and we are now witnessing a huge improvement in treatment protocols. You should do very well, especially as a GT 2. The success rates have been steadily improving, with high SVR rates and few side effects compared to our old friend Interferon.
Do stay in touch, we have a great group of friends here! I look forward to hearing more about you and invite you to leave a brief bio/history in your profile signature section. Good luck to you...
Tig
justvlm said
Oct 17, 2014
Hello everyone. I've been lurking here off and on for a long time. I opted to not treat after being diagnosed in 2007, biopsy of stage 0/1, grade 0/1. I'm not sure if the GI fired me or the other way around. She just couldn't believe I wouldn't ingest poison for 6 months, question her superior knowledge. She was quite sure I'd manage just fine. Oh well, that is ancient history.
Fast forward. I hope to hear soon if I can qualify for the AbbVie trial for 2 &.3s. It does have a ribaviron arm, but best I can find that's going to be the tx for GT2.
Just wanted to pop in to say hi and look forward to meeting everyone.
Good for you Vanessa! I'm enrolled in a 12 week treatment, and I will have had 6 visits to them by the end of that time. The odds are good that you will reach SVR, and there is always going through your insurance with other meds if not.
Hey Vanessa
Welcome to the forum family, we have many that have been on HCV trials. I would recommend you go for the Abbvie trial if you have a good medical team backing up the study. it does require a lot of visits to the clinic but you tend the learn a ton about all things HCV,
I think Abbvie mostly has treated its trial patients well and they have good products and high SVR results.
If you fail to reach SVR it should not preclude you from other drugs especially the Gilead "Sovaldi" there will be more GT2 drug combos coming out in the next 2 years so I would not be worried about having options to retreat.
matt
Hello Tess
Welcome to the forum you have found a good place as you are well aware.
At nine weeks you're probably having a bit of Riba Rage and depressed energy levels because of reduced red blood cell count (hemoglobin) its a common effect of Ribavirin, The good thing is it will rebound after treatment is completed which will bring back your energy level.
Keep on eating healthy and try to exercise if possible.
matt
Hello, Tess.
It's nice to meet you. My clinic director called and I've agreed to the AbbVie screening tomorrow. I have several irons in the fire that would make treating now a very good idea. I'll know more tomorrow and will post in the Clinical section.
I am in week 9 of sovaldi and ribavirin. It is literally getting under my skin. The boohoos come on so easily too. I do eat healthy, cheated occasionally. Used to party well up until 97 when I found out about the nonAnonB being hepc.
Thanks Mallani,
I suppose I am hoping I can get the arm without Ribavirin. I can't find anything that forecasts when GT 2 might see treatment without ribavirin. But I'm concerned about the trial drugs as well, if I don't get SVR will they preclude me from future drugs. I'm still trying to make sense of all this.
Hi Vanessa,
Why bother with AbbVie? The SVR rate for Geno 2 is >97% with 12 weeks of Sovaldi/Ribavirin. I doubt whether AbbVie would be as good. Cheers.
Geno 2 has one of us veteran members on the way to being cured, SVR+4... I am a 3 and I too have had the Sovaldi with the Riba. It is do able but don't under estimate it. I managed to work through treatment but wound up quitting my job soon as it was over, .
We are all in this together, Keep your stick on the ice. 'Red Green Show'
Hi Vanessa, glad you found this forum. It's a great place for all things HCV related (and sometimes not
). Folks here are knowledgeable, caring, compassionate, and very supportive. Seeing others experiences and trials in dealing with this virus, helps to keep things in perspective. Looking forward to reading your posts. Be well
Hi Vanessa, welcome from me too! Glad you decided to join us and you`ll find plenty of friendly and helpful people here!
From your history I think you did the right thing by waiting for a chance to do an Interferon-free treatment and all the best of luck with getting onto the Abbvie trial..no-one wants to be force fed poison for 6 months if they don`t have to!
Keep in touch and let us know how you get on. We do have a forum area called `Clinical Trial Participants`, so fingers crossed we see you there before too long!
~ Jill
Aw shucks Duane....your too kind.
Marcy we are all hoping and praying for you as well, you are always so supportive to all that swim these waters. ....I personally thank you for that.
What a wonderful human being you are!
God Bless you!
Duane
Welcome and congrats on moving from lurking status! I waited for treatment for many years. My biopsies were always fine, so I wasn't willing to put myself thru IF treatment. I just finished up a clinical trial so I'm hoping for SVR. No side effects, virtually painless.
That's so cool!
There are some great people on here!
Thanks all.
LC... It was the recent exchange between a resourceful mouse and some sassy kitties that made me think 'I like these peeps, I gonna hang out with them'.
ps....I love your guard dog !
It is so wonderful that the general conversations about tx isn't how to survive this or that or all these horrid Sx.
Welcome Vanessa
i am also G2. I waited over 20 years to start tx because I didn't want to do interferon. There are so many new drugs available and the success rates are improving. Please stick around and ask questions. Our gurus have a great store of information snout the disease and different treatment option. You'll also find lots of support and a safe place to just vent or share a joke or two. Look forward to reading more posts from you. Good luck
Gigi
Welcome Vanessa! How dare you question such knowledge!!! Ha, ha! You aren't alone, many people have made the decision to avoid those drugs and we are now witnessing a huge improvement in treatment protocols. You should do very well, especially as a GT 2. The success rates have been steadily improving, with high SVR rates and few side effects compared to our old friend Interferon.
Do stay in touch, we have a great group of friends here! I look forward to hearing more about you and invite you to leave a brief bio/history in your profile signature section. Good luck to you...
Tig
Hello everyone. I've been lurking here off and on for a long time. I opted to not treat after being diagnosed in 2007, biopsy of stage 0/1, grade 0/1. I'm not sure if the GI fired me or the other way around. She just couldn't believe I wouldn't ingest poison for 6 months, question her superior knowledge. She was quite sure I'd manage just fine. Oh well, that is ancient history.
Fast forward. I hope to hear soon if I can qualify for the AbbVie trial for 2 &.3s. It does have a ribaviron arm, but best I can find that's going to be the tx for GT2.
Just wanted to pop in to say hi and look forward to meeting everyone.