I don't know where you are from and what's available there, but I would like you to see this and the pie charts linked in this. I am on the AbbVie combo, which is the most clinically effective for the treatment-naïve 1a's. My side effects have been very minimal, and I am a whiner so I would be complaining if they weren't. So don't sweat it if you don't get Harvoni.
Isiscat2011 said
Oct 30, 2014
liverking wrote:
Thanks for the responses, like many I will see if I can navigate the Harvoni red-tape dog and pony show, and give it a try! I just recently, in the last couple of months, been feeling terrible and I need to at least say, yes, I tried.
The first thing you need to do is get your liver assessed. Fibroscan can test the level of fibrosis. Biopsy can test the level of fibrosis, inflammation, and a number of other things. Find a good doctor who has HCV tx experience and begin the process. Going directly to tx is probably not possible and not advisable even if you could. You need to understand the state of your health after living with HCV for >25 years first. We are here to help when you have questions and concerns.
liverking said
Oct 30, 2014
Thanks for the responses, like many I will see if I can navigate the Harvoni red-tape dog and pony show, and give it a try! I just recently, in the last couple of months, been feeling terrible and I need to at least say, yes, I tried.
Milliganus said
Oct 21, 2014
Welcome Matthew,
Having HCV long term can have detrimental effects, especially as we age. I had much more fatigue, joint pain, slow to heal the last few years. Just finished a clinical trial with 2 of the newer meds. Virtually no side effects. This is a great time to seek treatment with these new medications.
Good luck And keep us posted.
Tig said
Oct 21, 2014
Hi Matthew,
Welcome to the forum, I'm glad you're here! There are some new and very effective all oral, non interferon protocols available now. There is really no reason for you as a treatment naive GT 1A patient to even consider an IFN backbone now. They are available, but you're a perfect candidate for something highly successful with few side effects. There is a ton of information here on the forum, (search function and home page references) will really enlighten you to what's available. What you can't locate, feel free to ask on the appropriate thread (or anywhere) and we'll do our best to get your question answered!
There are a lot of knowledgeable and caring people here and we all look forward to helping you get your questions answered and prepare you for your first visit to your specialist. It's a really great time to treat. It's not at all like it used to be, so put the fear and horror stories to rest! I look forward to following your progress, good luck!
Tig
TazKat said
Oct 21, 2014
the infectious doc should have the info u need. the new meds that are out that are all oral I am hearing are supposed to be the bomb. I did the sovaldi riba & interferon. it looks like it can be or different treatments for diff. ppl. heck I did the riba & interferon twice, the then incivek. then along came solvadi earlier this yr. kicked butt. yay. I wish you happy trails & health. I love seeing all the new sciences of the ppl in the labs doing great things.. keep on keepin on with whichever one u get..
these ppl here are very very smart & helped me to learn many things..
Taz
wmlj1960 said
Oct 21, 2014
Welcome liverking
There is a list of the abbreviations posted in THIS THREAD.
Stick around and you'll find plenty of help here.
Huey said
Oct 21, 2014
Hi welcome.. you can put your Viral Load count, when and if you get them, also your genotype is vary helpful. You can just put this in your Sig ware your ??? now is.
The Newest treatment for 1a's is the most promising yet! Harvani is suggested, You do NOt won't to keep taking any Milk Thistle, Aloe Vera Juice, St Johns Wart. These things flush out free radicals to an extreme and that it includes some that help keep the replication process asleep , this makes your viral load go up. Taking these things will weaken the drugs wile on treatment as-well
-- Edited by Huey on Wednesday 22nd of October 2014 02:33:03 AM
liverking said
Oct 21, 2014
New member, will have to learn all the terms, abbrev. and other hepc related stuff. Was diagnosed over 25 years ago and have seemed to manage it well enough, take milk thistle religiously, don't smoke or drink anymore and didn't really exhibit any extreme side-affects. Hard to explain, but I "feel" my liver. Whenever I see my kind and well-meaning country-esque doctor, he assures me it's not swollen. Never had a biopsy, because quite frankly I have little to no respect for modern american medicine. I do know I have type1a, which I believe is the hardest to treat, and all the percentages seem to plummet when discussing the recovery rates. Anyone I have ever talked to that has endured any of the "new" medicines has told me they had brutal side-effects and that more than half of those people relapsed. Sooooooooooo, what to do? Problem is I fell something is going on there. I heal, skin-wise, a lot slower that I used to. Wake up at night all the time, and have heavy night sweats sometimes. I did get one of those newer type sonograms (with color!) which didn't show anything of mention, except one of my kidneys has damage (nephros-something) from rampant kidney-stones in my thirties. My nice country doctor sent me to infectious disease spec. He didn't ask me very many questions about my history, but was quick to suggest I take a combo with Pegasys and another 2. I asked him what was his commission. He over assuredly told me that never happens! Puuleeze. Anyway thanks for listening (or reading)!
-- Edited by liverking on Wednesday 22nd of October 2014 02:24:27 AM
-- Edited by liverking on Wednesday 22nd of October 2014 02:25:15 AM
http://hepcfriends.activeboard.com/t58771686/charts-linked-in-article-comparing-the-current-hcv-meds/
I don't know where you are from and what's available there, but I would like you to see this and the pie charts linked in this. I am on the AbbVie combo, which is the most clinically effective for the treatment-naïve 1a's. My side effects have been very minimal, and I am a whiner so I would be complaining if they weren't. So don't sweat it if you don't get Harvoni.
Hi liverking:
The first thing you need to do is get your liver assessed. Fibroscan can test the level of fibrosis. Biopsy can test the level of fibrosis, inflammation, and a number of other things. Find a good doctor who has HCV tx experience and begin the process. Going directly to tx is probably not possible and not advisable even if you could. You need to understand the state of your health after living with HCV for >25 years first. We are here to help when you have questions and concerns.
Welcome Matthew,
Having HCV long term can have detrimental effects, especially as we age. I had much more fatigue, joint pain, slow to heal the last few years. Just finished a clinical trial with 2 of the newer meds. Virtually no side effects. This is a great time to seek treatment with these new medications.
Good luck And keep us posted.
Hi Matthew,
Welcome to the forum, I'm glad you're here! There are some new and very effective all oral, non interferon protocols available now. There is really no reason for you as a treatment naive GT 1A patient to even consider an IFN backbone now. They are available, but you're a perfect candidate for something highly successful with few side effects. There is a ton of information here on the forum, (search function and home page references) will really enlighten you to what's available. What you can't locate, feel free to ask on the appropriate thread (or anywhere) and we'll do our best to get your question answered!
There are a lot of knowledgeable and caring people here and we all look forward to helping you get your questions answered and prepare you for your first visit to your specialist. It's a really great time to treat. It's not at all like it used to be, so put the fear and horror stories to rest! I look forward to following your progress, good luck!
Tig
the infectious doc should have the info u need. the new meds that are out that are all oral I am hearing are supposed to be the bomb. I did the sovaldi riba & interferon. it looks like it can be or different treatments for diff. ppl. heck I did the riba & interferon twice, the then incivek. then along came solvadi earlier this yr. kicked butt. yay. I wish you happy trails & health. I love seeing all the new sciences of the ppl in the labs doing great things.. keep on keepin on with whichever one u get..
these ppl here are very very smart & helped me to learn many things..
Taz
Welcome liverking
There is a list of the abbreviations posted in THIS THREAD.
Stick around and you'll find plenty of help here.
Hi welcome.. you can put your Viral Load count, when and if you get them, also your genotype is vary helpful. You can just put this in your Sig ware your ??? now is.
The Newest treatment for 1a's is the most promising yet! Harvani is suggested, You do NOt won't to keep taking any Milk Thistle, Aloe Vera Juice, St Johns Wart. These things flush out free radicals to an extreme and that it includes some that help keep the replication process asleep , this makes your viral load go up. Taking these things will weaken the drugs wile on treatment as-well
-- Edited by Huey on Wednesday 22nd of October 2014 02:33:03 AM
New member, will have to learn all the terms, abbrev. and other hepc related stuff. Was diagnosed over 25 years ago and have seemed to manage it well enough, take milk thistle religiously, don't smoke or drink anymore and didn't really exhibit any extreme side-affects. Hard to explain, but I "feel" my liver. Whenever I see my kind and well-meaning country-esque doctor, he assures me it's not swollen. Never had a biopsy, because quite frankly I have little to no respect for modern american medicine. I do know I have type1a, which I believe is the hardest to treat, and all the percentages seem to plummet when discussing the recovery rates. Anyone I have ever talked to that has endured any of the "new" medicines has told me they had brutal side-effects and that more than half of those people relapsed. Sooooooooooo, what to do? Problem is I fell something is going on there. I heal, skin-wise, a lot slower that I used to. Wake up at night all the time, and have heavy night sweats sometimes. I did get one of those newer type sonograms (with color!) which didn't show anything of mention, except one of my kidneys has damage (nephros-something) from rampant kidney-stones in my thirties. My nice country doctor sent me to infectious disease spec. He didn't ask me very many questions about my history, but was quick to suggest I take a combo with Pegasys and another 2. I asked him what was his commission. He over assuredly told me that never happens! Puuleeze. Anyway thanks for listening (or reading)!
-- Edited by liverking on Wednesday 22nd of October 2014 02:24:27 AM
-- Edited by liverking on Wednesday 22nd of October 2014 02:25:15 AM