wow.. thats very scary to me that it could come back or the treatment might not work with certain brands.. omg im so discouraged.. congrats on finally being cured
JLynch30 said
Apr 19, 2017
I failed everything under the sun including solvaldi. I begged for 24 weeks and bamo - svr for almost two years now.
Miracles happen!
Canuck said
Apr 19, 2017
Hi malekula,
Congrats on your very sustained cure.
Nearing 2 years (I think)?? Wow.
I remember reading some of your prior posts.
It has been a long hard journey for you and yours.
Really glad to hear you are busy with life and living, as it should be.
You got me all mathematically confused (which in my case is never difficult as my standby is to count on my fingers) - I couldn't add up what SVR 83 was! I was running out of fingers.
Please, if you will, can you let us know a bit more about the varices, it would help others to know how well people can cope with the "extras" HCV can leave us with - how many endo's you have had pre and post treatment, when the varices first arrived, how things are being followed and managed for you (aside from the beta's), what resolutions of your cirrhosis levels have you found since cure. Do you have any current fibroscan Fscores, or labs to share.
We are always interested and can learn so much from the long cured folk around here who have such valuable experience under their belts.
I really like the sounds of what you are up to and doing! Immersions into the positives! C.
-- Edited by Canuck on Wednesday 19th of April 2017 07:55:01 PM
malekula man said
Apr 18, 2017
SVR-83, guys
However, I have varices in my esophagus, so now I'm lifetime on beta-protectors.
Sorry, wasn't visiting the forum since Alex's death... I'm trying to have full-throttle live: travel, sport, friends, pets and more without thinking about HepC and problems it done to me.
Hope, you all are fine
malekula man said
Mar 19, 2016
Hi hangerd! I'm so sorry you did the same tough way. I understand your thoughts and worries.
But now your on Harvoni, man! So you will kill this dragon, no doubts ! Welcome to Harvoni train, my friend, welcome into your new life!
JimmyK said
Mar 16, 2016
Greeting and welcome!
With this group you are not alone. Lot's of folks who failed some numerous times only to come back and win with the newer DAA's.
Hang in there and Harvoni x 24 is a powerful weapon indeed. That is the train I hope to board soon. Doctor approved one week ago so I will give it one more week and then make some noise.
You are here and here is a great place to be.
JimmyK
hangerd said
Mar 16, 2016
Thank you a lot dear Mod! I will start a a new post.
Tig said
Mar 16, 2016
Hi Thom,
Welcome to the forum! I see you figured out the posting procedure about the same time I was sending it to you. There is a lot of information available using the search function located above center of the page. We have a Harvoni Train thread (our group of people on your treatment). I'll provide the link below.
Sorry you had to go through the first round of Peg/Riba/Sov, only to have it fail. Many of us failed a time or two and understand the frustration. You have a very good chance to achieve SVR with the 24 week protocol.
Others will be along to welcome you soon. I recommend starting your own post in the New Members section using that link to info I gave you in the Chatbox. That way you will have your own thread for replies. Let me know if you have any questions. Good luck!
With genotype 1 Hep C, I took the Sovaldi/Ribavirin/Pegylated Interferon for 12 weeks this past summer. There was 0 viral load after 4 weeks. 0 after 12 weeks, after I had finished taking the drugs for all 12 weeks. After 9 months, the viral load returned at 1,496,000. I engaged in absolutely no behavior that causes Hep C - no needles at all, no sex at all, no drugs at all; I did not drink any alcohol. My doctors' only answer is that the cirrhosis of the liver was so bad (compensated cirrhosis) that not all of the virus was cleansed out of the dead parts of the liver with just 12 weeks of Sovaldi.
I am now on the Harvoni for 24 weeks, hoping that the longer regimen of the two drugs - Sovaldi and Ledipasvir - will totally clean out the virus from the liver.
malekula man said
Jan 14, 2016
Thanks Groupergetter!
U must be there! U started earlier than me... Or I understand wrong your timeline...
Groupergetter said
Jan 13, 2016
Congrats on the SVR 24 MM, look forward to joining you. :) Be well.
malekula man said
Jan 13, 2016
Thanks, Linux!
Linuxter said
Jan 12, 2016
Big Congrats MM!
Great news indeed!!
Just think ... you can do that Happy Dance from here on ... nice job MM ...
This is just the kind of news us pre-treatment peeps need to hear.
Be Well,
Linux
-- Edited by Linuxter on Thursday 14th of January 2016 01:22:07 AM
malekula man said
Jan 12, 2016
Hey Tig!
Yes! The happy dance!
Tig said
Jan 12, 2016
Hey Dude!! Congratulations buddy, woohoo!! I'm punching your ticket, from now on the ride is free..... You earned it!
You're all done with everything but the dance! WOOT!
malekula man said
Jan 12, 2016
Thank you Jill! Yes, it is - the new year starts good... like a dream!
Cinnamon Girl said
Jan 12, 2016
Wow, big congratulations to you, MM you`re finally arrived safely at your destination ---- >> SVR24 it is!!!
Just doing some catching up here and saw your post, I`m very happy for you! Iit`s been great to have you with us during your Harvoni trip, and I hope you keep in touch!
A new year and a new healthy start, 2016 is looking very good for you and for many others here!!!
malekula man said
Jan 11, 2016
My Harvoni train finally arrived to the Musem
SVR24!
malekula man said
Dec 29, 2015
Hello everybody!
Just did the PCR and blood test before Christmas, so now I'm waiting the news Nervous....
Would like to wish you all a Happy New Year with no dragon inside, never again!
MM
malekula man said
Oct 9, 2015
Mike, will definitely do it with SVR-24 results !
Grouper, thank you! The relapse pissed me off for some time...
Hi, Matt! Thanks! I will not pay the royalties for your phrase when using it! Hahahaha!!!
-- Edited by malekula man on Friday 9th of October 2015 12:50:36 PM
Matt Chris said
Oct 8, 2015
Hey MM
All Right ! way to go MM SVR-12 is a beautiful thing, peace of mind and joyful thought are yours. Now you can say my favorite phrase "When I used to have Hep-C"
matt
Groupergetter said
Oct 8, 2015
Congrats MM :) A great feeling to find SVR! especially after previous relapse. Enjoy the HepC free life. YEEEEEEEEEEEEEE HAAAAAAAAAAAAAAAW
wmlj1960 said
Oct 8, 2015
MM, you should call and have them mail those blood work results to you, frame them in a 24k gold frame, proudly hang them on your wall and wipe the glass clean every day with a warm, soft towel. That's my plan anyway...
malekula man said
Oct 8, 2015
During appointment this morning we were all excited (me, my nurse and my doctor)... So excited that I forgot to take a picture of my blood work. Next time, in January 2016 after 24wks EOT test.
malekula man said
Oct 7, 2015
Thank you, CG! I hope it will be as you say!
Thanks, Tig!
Merci Greg!
Greg D said
Oct 7, 2015
C'est tres tres bon!!! Congratulations MM!!
Tig said
Oct 7, 2015
OUTSTANDING NEWS!!
Congratulations MM! SVR it is, yowzaa! I know how special a day this is for you and we're all so glad you shared it with us. Let the party begin, woohoo!
One more time:
Cinnamon Girl said
Oct 7, 2015
Wow, fantastic!! This is such great news, big congratulations to you, MM!!!!
You must be so relieved and happy knowing you`ve finally reached SVR12... it`s the magic number, no matter what your doctor says!!
Very happy for you!
malekula man said
Oct 6, 2015
Thanks, Penny!
Penelope PePod said
Oct 6, 2015
MM,
That's great news! I just read this topic from the beginning. What a white knuckle ride. First up to the Happy Undetected Place, then way down to the Scary Ultrasound Stop, then back up to No tumor/No HCC Station. One heck of a trip.
You're made it and I'm so happy for you! Be well, and enjoy your hep-free life!
Penny
malekula man said
Oct 6, 2015
Thanks, Mike!
However my doctor is conservative - the new achievement we need it's SVR24
wmlj1960 said
Oct 6, 2015
That's EXCELLENT NEWS MM!!! You have arrived. A bonified member of the 'cured club'. I'm real happy for you and right behind you. SVR 12... sounds soooooo sweet!
malekula man said
Oct 6, 2015
It's happening!
My nurse just called me with this great news - SVR12 achieved!!!
The dragon can be beaten!!!
This Thursday a have my appointment so will provide my blood work later. But she said my ALT is the better then at EOT!
malekula man said
Aug 11, 2015
Thanks CG! Yes, I was so glad to find this message ))))
malekula man said
Aug 11, 2015
JLynch30 wrote:
I had a lesion a year go 1.8 and still have it 0 it is fatty liver deposits they think. It has stabilized. are you overweight?
I think yes, at least +15kg for my height. Ultrasound report says "doesn't look like liver fat". So it was "GO" for MRI to be sure.
-- Edited by malekula man on Wednesday 12th of August 2015 12:08:55 AM
Cinnamon Girl said
Aug 11, 2015
What great news, MM!! I`m so pleased for you, I`ve been wondering if you`d had your MRI results.
You must have been so relieved to hear that message, wow!!! Thanks for letting us know!
JLynch30 said
Aug 11, 2015
I had a lesion a year go 1.8 and still have it 0 it is fatty liver deposits they think. It has stabilized. are you overweight?
malekula man said
Aug 10, 2015
Thanks guys!
Tig said
Aug 10, 2015
Hey MM,
That is outstanding news! Thank you for letting us know. I was certainly keeping my fingers crossed. I'm sure you're breathing easier tonight!
Gracie said
Aug 10, 2015
Yeaaaaaaaaa.... Now that's some good news to sleep on tonight! Thrilled for you! Sending a virtual HIGH FIVE!!!
coolheat said
Aug 10, 2015
That's GREAT !!!!!!! Sleep WELL !!! Leon Russell is here Fri. night, come and Celebrate.....it'll be a Great Show.
malekula man said
Aug 10, 2015
I'm back from my vacation trip and found a voice message my nurse left this morning. MRI doesn't show any tumor or HCC!!! Great! What a relief!
malekula man said
Jul 20, 2015
Thanks,
Will ask my doctor.
mallani said
Jul 20, 2015
Hi MM,
For cirrhotics, a degree of portal hypertension is assumed. In your case, it's a certainty.
Yearly gastroscopies to check for varices /portal hypertensive gastropathy are standard protocols. I'd be wanting one. Cheers.
malekula man said
Jul 18, 2015
I had an ulcer too. Same image. 6 years ago. The major cause was helicobacter... I lost 50oz of blood and had a transfusion. But my liver was ok, a little bit fatty... Have no idea why they didn't check me for hepatitis. In this case I shouldn't have a cirrhosis and find myself in hcc zone - even old therapies could help me to slow the dragon.
Brian1412 said
Jul 17, 2015
Yes i understand. A year and a half ago this all started. I thought i had the flu or a cold. Very lethargic. Someone walked up to me and asked if i was ready to go.go where i asked. He said the hospital. Why i asked and he said i was pale white. Went to sleep woke up feeling tired. Went to bm and happed to look at stool (as dr oz always preaches religiously) and my stool was jet black. O tried to dissmiss it but was epic in size and color. Was near hospital and my instict was to go to er. I did and it dint taketake 2 minutes for them to call the troops.. the bag of blood was like air. Took me on did endoscopy and had several bleeding ulcers and the first words out after o woke up that you have hep c we can give you a transplant" which was obviously not in the program. They sealed the bleeds: i get endo often take protonics and strictly whatch what i eat. I still left the hospitail after the seal against medical advice and made the plane back on tour. But this is something we watch rekigiously. Was no vein issue involved for me. Was all about the ulcers
Stay on top of this as it is in the danger zone. But everying is good and stable
malekula man said
Jul 16, 2015
Thanks Malcolm!
No, I didn't have gastroscopy, I don't have any internal bleeding, low hemoglobin or any of these problems that can flag some issues with my gullet's veins.
I was asking about.
Even my spleen is so big and platelets are low I don't have any nose or gum bleeding for 2 last months. Even the small cuts after shaving do not bleed much.
mallani said
Jul 16, 2015
Hi MM,
Sorry to read the Ultrasound report, but the contrast MRI will determine whether it's bad news. It shows how important the 6 monthly imaging is for cirrhotics. Ideally these should be done at the same site, so comparisons can be made.
With a spleen that big, I understand why your platelets are so low. SVR will hopefully start to reverse the portal hypertension. I don't see any gastroscopy reports. Have you had one recently?
Best of luck for the MRI. Cheers.
malekula man said
Jul 15, 2015
Hi Brian,
physically I'm OK, but I'm stressed with this news...
Tig,
The last in hospital was 17/11/2013 (the date on scan is wrong - it's November) and another one I did in January 2015 (one year later) in private lab. This one I did 8/7/2015.
The doc in hospital compares two images for Nov 2013 and July 2015. It's enough time to develop something. However they forgot (or didn't check right) for my U/S in January 2015. I don't know why... probably the image from private lab wasn't sent to hospital only the report. The private lab has nothing to compare with...
Just had set up my appointment for MRI in private lab for next Monday, the line-up in hospital (free) is for one year forward. My doc goes for the vacation this Monday so will have my results the week of 10 August.
I need some time for chill out a little bit... Going on vacation in two weeks, I hope this will help me. This situation piss me off.. I was thinking it will be the end after SVR for hard fights but seems it goes in the wrong way
Tig said
Jul 15, 2015
Hey MM,
When was your last U/S? Seems like this presented quickly, which is odd. As Gracie mentioned, it's good they've been on top of your care all along and found this quickly. It's early on, so stay positive and take care of business, you know how to do that. Get the MRI and that will determine your next course of action. Keep your chin up and deal with it as its presented to you. Keep us informed when you get some information from the MRI.
wow.. thats very scary to me that it could come back or the treatment might not work with certain brands.. omg im so discouraged.. congrats on finally being cured
I failed everything under the sun including solvaldi. I begged for 24 weeks and bamo - svr for almost two years now.
Miracles happen!
Hi malekula,
Congrats on your very sustained cure.
Nearing 2 years (I think)?? Wow.
I remember reading some of your prior posts.
It has been a long hard journey for you and yours.
Really glad to hear you are busy with life and living, as it should be.
You got me all mathematically confused (which in my case is never difficult as my standby is to count on my fingers) - I couldn't add up what SVR 83 was! I was running out of fingers.
Please, if you will, can you let us know a bit more about the varices, it would help others to know how well people can cope with the "extras" HCV can leave us with - how many endo's you have had pre and post treatment, when the varices first arrived, how things are being followed and managed for you (aside from the beta's), what resolutions of your cirrhosis levels have you found since cure. Do you have any current fibroscan Fscores, or labs to share.
We are always interested and can learn so much from the long cured folk around here who have such valuable experience under their belts.
I really like the sounds of what you are up to and doing! Immersions into the positives!
C.
-- Edited by Canuck on Wednesday 19th of April 2017 07:55:01 PM
However, I have varices in my esophagus, so now I'm lifetime on beta-protectors.
Sorry, wasn't visiting the forum since Alex's death... I'm trying to have full-throttle live: travel, sport, friends, pets and more without thinking about HepC and problems it done to me.
Hope, you all are fine
But now your on Harvoni, man! So you will kill this dragon, no doubts ! Welcome to Harvoni train, my friend, welcome into your new life!
Greeting and welcome!
With this group you are not alone. Lot's of folks who failed some numerous times only to come back and win with the newer DAA's.
Hang in there and Harvoni x 24 is a powerful weapon indeed. That is the train I hope to board soon. Doctor approved one week ago so I will give it one more week and then make some noise.
You are here and here is a great place to be.
JimmyK
Thank you a lot dear Mod! I will start a a new post.
Hi Thom,
Welcome to the forum! I see you figured out the posting procedure about the same time I was sending it to you. There is a lot of information available using the search function located above center of the page. We have a Harvoni Train thread (our group of people on your treatment). I'll provide the link below.
Sorry you had to go through the first round of Peg/Riba/Sov, only to have it fail. Many of us failed a time or two and understand the frustration. You have a very good chance to achieve SVR with the 24 week protocol.
Others will be along to welcome you soon. I recommend starting your own post in the New Members section using that link to info I gave you in the Chatbox. That way you will have your own thread for replies. Let me know if you have any questions. Good luck!
http://hepcfriends.activeboard.com/t58762824/all-aboard-for-the-harvoni-treatment-train-enjoy-the-ride-fo/
U must be there! U started earlier than me... Or I understand wrong your timeline...
Congrats on the SVR 24 MM, look forward to joining you. :) Be well.
Big Congrats MM!
Great news indeed!!
Just think ... you can do that Happy Dance from here on ... nice job MM ...
This is just the kind of news us pre-treatment peeps need to hear.
Be Well,
Linux
-- Edited by Linuxter on Thursday 14th of January 2016 01:22:07 AM
Hey Tig!
Yes! The happy dance!
Hey Dude!! Congratulations buddy, woohoo!! I'm punching your ticket, from now on the ride is free..... You earned it!
You're all done with everything but the dance! WOOT!
Wow, big congratulations to you, MM you`re finally arrived safely at your destination ---- >> SVR24 it is!!!
Just doing some catching up here and saw your post, I`m very happy for you! Iit`s been great to have you with us during your Harvoni trip, and I hope you keep in touch!
A new year and a new healthy start, 2016 is looking very good for you and for many others here!!!
SVR24!
Just did the PCR and blood test before Christmas, so now I'm waiting the news
Would like to wish you all a Happy New Year with no dragon inside, never again!
MM
Mike, will definitely do it with SVR-24 results !
Grouper, thank you! The relapse pissed me off for some time...
Hi, Matt! Thanks! I will not pay the royalties for your phrase when using it! Hahahaha!!!
-- Edited by malekula man on Friday 9th of October 2015 12:50:36 PM
Hey MM
All Right ! way to go MM SVR-12 is a beautiful thing, peace of mind and joyful thought are yours. Now you can say my favorite phrase "When I used to have Hep-C"
matt
Congrats MM :) A great feeling to find SVR! especially after previous relapse. Enjoy the HepC free life. YEEEEEEEEEEEEEE HAAAAAAAAAAAAAAAW
MM, you should call and have them mail those blood work results to you, frame them in a 24k gold frame, proudly hang them on your wall and wipe the glass clean every day with a warm, soft towel. That's my plan anyway...
Thanks, Tig!
Merci Greg!
C'est tres tres bon!!! Congratulations MM!!
OUTSTANDING NEWS!!
Congratulations MM! SVR it is, yowzaa! I know how special a day this is for you and we're all so glad you shared it with us. Let the party begin, woohoo!
One more time:
Wow, fantastic!! This is such great news, big congratulations to you, MM!!!!
You must be so relieved and happy knowing you`ve finally reached SVR12... it`s the magic number, no matter what your doctor says!!
Very happy for you!
MM,
That's great news! I just read this topic from the beginning. What a white knuckle ride. First up to the Happy Undetected Place, then way down to the Scary Ultrasound Stop, then back up to No tumor/No HCC Station. One heck of a trip.
You're made it and I'm so happy for you! Be well, and enjoy your hep-free life!
Penny
However my doctor is conservative - the new achievement we need it's SVR24
That's EXCELLENT NEWS MM!!! You have arrived. A bonified member of the 'cured club'. I'm real happy for you and right behind you. SVR 12... sounds soooooo sweet!
My nurse just called me with this great news - SVR12 achieved!!!
The dragon can be beaten!!!
This Thursday a have my appointment so will provide my blood work later. But she said my ALT is the better then at EOT!
I think yes, at least +15kg for my height. Ultrasound report says "doesn't look like liver fat". So it was "GO" for MRI to be sure.
-- Edited by malekula man on Wednesday 12th of August 2015 12:08:55 AM
What great news, MM!! I`m so pleased for you, I`ve been wondering if you`d had your MRI results.
You must have been so relieved to hear that message, wow!!! Thanks for letting us know!
I had a lesion a year go 1.8 and still have it 0 it is fatty liver deposits they think. It has stabilized. are you overweight?
Hey MM,
That is outstanding news! Thank you for letting us know. I was certainly keeping my fingers crossed. I'm sure you're breathing easier tonight!
Yeaaaaaaaaa.... Now that's some good news to sleep on tonight! Thrilled for you! Sending a virtual HIGH FIVE!!!
That's GREAT !!!!!!! Sleep WELL !!! Leon Russell is here Fri. night, come and Celebrate.....it'll be a Great Show.
Will ask my doctor.
Hi MM,
For cirrhotics, a degree of portal hypertension is assumed. In your case, it's a certainty.
Yearly gastroscopies to check for varices /portal hypertensive gastropathy are standard protocols. I'd be wanting one. Cheers.
Yes i understand. A year and a half ago this all started. I thought i had the flu or a cold. Very lethargic. Someone walked up to me and asked if i was ready to go.go where i asked. He said the hospital. Why i asked and he said i was pale white. Went to sleep woke up feeling tired. Went to bm and happed to look at stool (as dr oz always preaches religiously) and my stool was jet black. O tried to dissmiss it but was epic in size and color. Was near hospital and my instict was to go to er. I did and it dint taketake 2 minutes for them to call the troops.. the bag of blood was like air. Took me on did endoscopy and had several bleeding ulcers and the first words out after o woke up that you have hep c we can give you a transplant" which was obviously not in the program. They sealed the bleeds: i get endo often take protonics and strictly whatch what i eat. I still left the hospitail after the seal against medical advice and made the plane back on tour. But this is something we watch rekigiously. Was no vein issue involved for me. Was all about the ulcers
Stay on top of this as it is in the danger zone. But everying is good and stable
No, I didn't have gastroscopy, I don't have any internal bleeding, low hemoglobin or any of these problems that can flag some issues with my gullet's veins.
I was asking about.
Even my spleen is so big and platelets are low I don't have any nose or gum bleeding for 2 last months. Even the small cuts after shaving do not bleed much.
Hi MM,
Sorry to read the Ultrasound report, but the contrast MRI will determine whether it's bad news. It shows how important the 6 monthly imaging is for cirrhotics. Ideally these should be done at the same site, so comparisons can be made.
With a spleen that big, I understand why your platelets are so low. SVR will hopefully start to reverse the portal hypertension. I don't see any gastroscopy reports. Have you had one recently?
Best of luck for the MRI. Cheers.
physically I'm OK, but I'm stressed with this news...
Tig,
The last in hospital was 17/11/2013 (the date on scan is wrong - it's November) and another one I did in January 2015 (one year later) in private lab. This one I did 8/7/2015.
The doc in hospital compares two images for Nov 2013 and July 2015. It's enough time to develop something. However they forgot (or didn't check right) for my U/S in January 2015. I don't know why... probably the image from private lab wasn't sent to hospital only the report. The private lab has nothing to compare with...
Just had set up my appointment for MRI in private lab for next Monday, the line-up in hospital (free) is for one year forward. My doc goes for the vacation this Monday so will have my results the week of 10 August.
I need some time for chill out a little bit... Going on vacation in two weeks, I hope this will help me. This situation piss me off.. I was thinking it will be the end after SVR for hard fights but seems it goes in the wrong way
Hey MM,
When was your last U/S? Seems like this presented quickly, which is odd. As Gracie mentioned, it's good they've been on top of your care all along and found this quickly. It's early on, so stay positive and take care of business, you know how to do that. Get the MRI and that will determine your next course of action. Keep your chin up and deal with it as its presented to you. Keep us informed when you get some information from the MRI.