Welcome to the forum. How exciting to be non-detectable at week 5! Good for you! I figure my husband and I got hep c back in the late 70's or early 80's, but not diagnosed until the mid 90's. My niece's brother-in-law was diagnosed then as well. We quit drinking and completely cleaned up our act when we got the diagnosis, where as her brother-in-law didn't. He died within 5 years, and here we are 20 years later, and soon to have it all behind us.
I wish you all the best with treatment - so glad you're getting it so quickly! And keep us posted on your progress. We love seeing the word non-detectable!
Penny
Tig said
Sep 9, 2015
Hey John,
I want to welcome you to the crowd too! I'm glad you found the forum and hope to hear more from you as you progress through treatment. Olysio/Int/Riba is a very effective protocol. We all know what an ordeal it can be, especially with Interferon and Ribavirin as part of the mix. Many of us here have had the pleasure (?) of going through the Interferon treatments and understand them well. We can offer a lot of advice if you need it and the good people here are more than willing to help you through this. Sounds like you're already well on your way to a successful treatment conclusion, congrats on that good news.
I was sorry to hear about your brother in law, that must've been very difficult for all of your families. It's vital that we get the word out about testing and keep advocating for more and better opportunities to defeat this terrible disease. We're making headway, but have much to accomplish.
If I can be of any assistance at all, please feel free to ask me here or send a private message if you'd like. There's a lot of information and support available and I'm more than willing to do what I can to help. It won't be long and this will be a memory, just hang in there and success will be yours!! Good luck John....
wmlj1960 said
Sep 9, 2015
Jonny2bad67 wrote:
I know it's early days but having lost my brother in law to this disease 12 months ago the relief was tremendous!!
P.s. Brother in law passed never knowing that he was HCV..Post Mortem revealed it..
I'm sorry to hear about your brother in law John. I know loosing him was tough on you. During past years I've lost dear friends to Hep C related illness and those were dark days in my life. There are so many people living with Hep C and are un-aware of it, but diagnosis percentage rates have vastly improved during recent years and continue to do so. And considering how much advancement has been made in treatment SVR percentage rates, the time is increasingly not far away when Hep C will be eradicated. At that time this forum will become a place for us all to rejoice in our common victory, while also remembering those that were not as fortunate - like your brother in law. But until that day we have work to do getting ourselves healthy and helping others to do so too. So join in and be a part of this journey to SVR destiny.
Cinnamon Girl said
Sep 8, 2015
Yes I can imagine how relieved you must have been, John! I`m so sorry you lost your brother-in-law, that must have been very tough for you. I`ve lost people to Hep C and so have others here on the forum, it`s tragic when that happens especially as it`s such a treatable disease these days.
Most of our members here are from the U.S. and are doing the newer interferon-free treatments, although we do have a few other UK and European members. It`s a shame you weren`t able to treat with Harvoni (Sovaldi + Ledipasvir) although I know it`s only being prescribed in England for people in the most need with an advanced stage of liver disease.
Sounds like you`re coping well with the side effects so far. Make sure you drink plenty of water to keep yourself well hydrated, that does help a lot. The fact that you were undetectable at your first 4/5 week viral load test is very promising for a good result.
You posted in the right place but I`m moving your thread to the New Members Area where maybe more people will come along to greet you.
Jonny2bad67 said
Sep 8, 2015
Hi Jill,Thanks for you're interest..Side effects have been up and down and I have had a constant headache since the start of treatment..However when I was told on Monday 07/09/15 that I had been un-detected since week 4/5 I could have literally burst into tears! I know it's early days but having lost my brother in law to this disease 12 months ago the relief was tremendous!!
P.s. Brother in law passed never knowing that he was HCV..Post Mortem revealed it..
Cinnamon Girl said
Sep 8, 2015
Hi again, John,
I just read your edit from earlier this morning, and yes.. you were lucky to be treated so soon after diagnosis! There are many of us here who had the virus for a long time before we found out we were infected, that`s not uncommon.
I must have had Hep C since the mid `70`s but was only diagnosed in 1995, and then waited until 2010 to do my treatment because the success rates in 1995 were so low as not to be worth considering for me at the time. I live in the UK as well and did the double combo of Peg/Riba for 24 weeks. It was no walk in the park but luckily it worked and I achieved my SVR.
How are you coping with the side effects so far?
- By the way, you can write your details in your `Signature` line, so that it appears at the bottom of all your posts. You`ll see where to edit that in your User Profile details. Here`s a link to show you how to do that, thanks to our helpful friend Mike..
-- Edited by Cinnamon Girl on Tuesday 8th of September 2015 12:25:27 PM
wmlj1960 said
Sep 7, 2015
Hi John. It's good to hear your lab test show non-detectable. There is plenty of knowledge and support for you here as you continue your treatment. If you have any questions, the 'search' function is useful or if you can't find an answer that way then just start a thread on the subject. You may not be familiar with some of the abbreviations you see in other members post and signatures so for a list of definitions see this thread. We have a great group of members who will be along to say 'Hi' to you as well so make yourself at home and welcome to the forum.
Cinnamon Girl said
Sep 7, 2015
Hi John, welcome!
I see you live in the UK which explains why you`re doing this particular treatment combo. Great to hear about your undetected result, what a boost it must be for you!
So, I take it you mean you`ll be doing a further 12 weeks of Peg + Riba after your initial 12 weeks with all 3 drugs? And I`m assuming you`re Gen 1?
http://www.hepctrust.org.uk/genotype-1
Best of luck with the rest of your treatment, I`m glad you found us!
Jonny2bad67 said
Sep 7, 2015
Well, I've just returned home from seeing my Consultan, I am at week 8 of treatment and just been told that the virus has been non-detectable since week 5! I can't begin to explain the relief felt, I truly hope all you guys can get the same treatment and results....I have 4 more weeks of treatment and then another 12 weeks of interferon only....Thanks for reading!
John age 48,genotype 1,diagnosed October 2014 so very lucky to get treatment so soon,I suspect I was HCV since mid/late 80,s.thanks to Jill and Mike,it,s good to know there is support out here!
-- Edited by Jonny2bad67 on Tuesday 8th of September 2015 10:52:43 AM
Hi John,
Welcome to the forum. How exciting to be non-detectable at week 5! Good for you! I figure my husband and I got hep c back in the late 70's or early 80's, but not diagnosed until the mid 90's. My niece's brother-in-law was diagnosed then as well. We quit drinking and completely cleaned up our act when we got the diagnosis, where as her brother-in-law didn't. He died within 5 years, and here we are 20 years later, and soon to have it all behind us.
I wish you all the best with treatment - so glad you're getting it so quickly! And keep us posted on your progress. We love seeing the word non-detectable!
Penny
Hey John,
I want to welcome you to the crowd too! I'm glad you found the forum and hope to hear more from you as you progress through treatment. Olysio/Int/Riba is a very effective protocol. We all know what an ordeal it can be, especially with Interferon and Ribavirin as part of the mix. Many of us here have had the pleasure (?) of going through the Interferon treatments and understand them well. We can offer a lot of advice if you need it and the good people here are more than willing to help you through this. Sounds like you're already well on your way to a successful treatment conclusion, congrats on that good news.
I was sorry to hear about your brother in law, that must've been very difficult for all of your families. It's vital that we get the word out about testing and keep advocating for more and better opportunities to defeat this terrible disease. We're making headway, but have much to accomplish.
If I can be of any assistance at all, please feel free to ask me here or send a private message if you'd like. There's a lot of information and support available and I'm more than willing to do what I can to help. It won't be long and this will be a memory, just hang in there and success will be yours!! Good luck John....
I'm sorry to hear about your brother in law John. I know loosing him was tough on you. During past years I've lost dear friends to Hep C related illness and those were dark days in my life. There are so many people living with Hep C and are un-aware of it, but diagnosis percentage rates have vastly improved during recent years and continue to do so. And considering how much advancement has been made in treatment SVR percentage rates, the time is increasingly not far away when Hep C will be eradicated. At that time this forum will become a place for us all to rejoice in our common victory, while also remembering those that were not as fortunate - like your brother in law. But until that day we have work to do getting ourselves healthy and helping others to do so too. So join in and be a part of this journey to SVR destiny.
Yes I can imagine how relieved you must have been, John! I`m so sorry you lost your brother-in-law, that must have been very tough for you. I`ve lost people to Hep C and so have others here on the forum, it`s tragic when that happens especially as it`s such a treatable disease these days.
Most of our members here are from the U.S. and are doing the newer interferon-free treatments, although we do have a few other UK and European members. It`s a shame you weren`t able to treat with Harvoni (Sovaldi + Ledipasvir) although I know it`s only being prescribed in England for people in the most need with an advanced stage of liver disease.
Sounds like you`re coping well with the side effects so far. Make sure you drink plenty of water to keep yourself well hydrated, that does help a lot. The fact that you were undetectable at your first 4/5 week viral load test is very promising for a good result.
You posted in the right place but I`m moving your thread to the New Members Area where maybe more people will come along to greet you.
P.s. Brother in law passed never knowing that he was HCV..Post Mortem revealed it..
Hi again, John,
I just read your edit from earlier this morning, and yes.. you were lucky to be treated so soon after diagnosis! There are many of us here who had the virus for a long time before we found out we were infected, that`s not uncommon.
I must have had Hep C since the mid `70`s but was only diagnosed in 1995, and then waited until 2010 to do my treatment because the success rates in 1995 were so low as not to be worth considering for me at the time. I live in the UK as well and did the double combo of Peg/Riba for 24 weeks. It was no walk in the park but luckily it worked and I achieved my SVR.
How are you coping with the side effects so far?
- By the way, you can write your details in your `Signature` line, so that it appears at the bottom of all your posts. You`ll see where to edit that in your User Profile details. Here`s a link to show you how to do that, thanks to our helpful friend Mike..
http://hepcfriends.activeboard.com/t58862021/forum-abbreviations-link-and-help-with-creating-your-signatu/
-- Edited by Cinnamon Girl on Tuesday 8th of September 2015 12:25:27 PM
Hi John. It's good to hear your lab test show non-detectable. There is plenty of knowledge and support for you here as you continue your treatment. If you have any questions, the 'search' function is useful or if you can't find an answer that way then just start a thread on the subject. You may not be familiar with some of the abbreviations you see in other members post and signatures so for a list of definitions see this thread. We have a great group of members who will be along to say 'Hi' to you as well so make yourself at home and welcome to the forum.
Hi John, welcome!
I see you live in the UK which explains why you`re doing this particular treatment combo. Great to hear about your undetected result, what a boost it must be for you!
So, I take it you mean you`ll be doing a further 12 weeks of Peg + Riba after your initial 12 weeks with all 3 drugs? And I`m assuming you`re Gen 1?
http://www.hepctrust.org.uk/genotype-1
Best of luck with the rest of your treatment, I`m glad you found us!
Well, I've just returned home from seeing my Consultan, I am at week 8 of treatment and just been told that the virus has been non-detectable since week 5! I can't begin to explain the relief felt, I truly hope all you guys can get the same treatment and results....I have 4 more weeks of treatment and then another 12 weeks of interferon only....Thanks for reading!
John age 48,genotype 1,diagnosed October 2014 so very lucky to get treatment so soon,I suspect I was HCV since mid/late 80,s.thanks to Jill and Mike,it,s good to know there is support out here!
-- Edited by Jonny2bad67 on Tuesday 8th of September 2015 10:52:43 AM