Hi all the Peg/Riba was provided from Pharmac NZ through my Gastro, I purchased the Sofobuvir through a man from Tasmania Australia. The Gastro encouraged me to use the triple treatment which has been responsible for higher % of successful outcomes. My Hep nurse tried to get a Fibro reading twice but it did not show if cirrhosis had effected the liver The only negative after getting liver scans was a slightly enlarged fatty liver, I was born in 1957 I have not drank or smoked for 30 years, exercise and eating good food are the norm for me (most of the time ) I only found out about the Hep c August 2014. I walked a marathon with a work mate in 2011 and it took 4-6 weeks to recover from the walk. up until training and walking the marathon my health had been OK I went to my GP and explained the recovery and lack of energy. It took 3 years before we found out what was causing the symptoms that were impacting on my health so here I am today. The first injection Tues Nov 3rd 2pm on that night I had head aches and did not sleep more than 5 hours but today is Thursday and feeling good only used paracetamol on the Tuesday night. thanks everybody for questions and concern. Malcolm I'm sure the Aussie cricket team will remind us Kiwis that they are the world champs too.
Mikaere
robertsamx said
Nov 4, 2015
Hi Mikaere, Welcome to the dart club. I"m Robertsamx, And I started Sof-Riba-Peg on 10-15-15. Had my first shot on 10-15-15 and it went pretty uneventful. I have done (3) darts so far and tomorrow is my fourth shot. I did 16 months sof-riba about 18 months ago and failed treatment, so now I"m on a re-treatment. My V/L went from 4.2mil to just 147 on just 7.5 days of this triple treatment i"m on now. It took me 4.5 weeks or so on the last treatment to get to 135, so I think this treatment We are on is going to do it for us this time around.I am three weeks ahead of you, and so far its manageable. I itch some what, always have a tension headache,get a little short of breath if I walk too far,and have a slight inner shaking feeling. Dont sleep well without ambien. Thats about it! I"m interested in how your feeling, because I think its just you and me now on this treatment (sof-riba-peg) What day and time do you do your shot? How did you do after your first shot? Any aches or pains? Good luck! RC
wmlj1960 said
Nov 4, 2015
Hi Mikaere.
I'm glad you have began treatment and I wish you well with achieving SVR. Have a look around the site and notice the search function useful for finding past discussions on any subject you have a question about. If you don't see an answer then feel free to start a new thread on the subject. We have several knowledgeable members who are always glad to help. Notice the signatures at the bottom of members post with information specific to that member. For more information on signatures and definitions for the abbreviations you will be seeing, such as in the signatures, click the link below. Welcome to the group.
Congrats on starting your treatment! After living with the virus for so long this is indeed a very exciting step forward. How did your first Peginterferon shot go?
A 12 week course should go by quite quickly, and although you may find you have some side effects they should be easily manageable. Do make sure to drink enough water every day to keep yourself well hydrated, most people find that is a huge help.
Please feel free to ask questions and join in the discussion threads whenever you like, this is an easy going, friendly group, so make yourself at home.
We`ll be looking forward to hearing more from you, best of luck!
mallani said
Nov 4, 2015
Hi Mikaere,
Congrats on getting Sovaldi and good luck. Have you had a biopsy or Fibroscan to determine your fibrosis stage?
Also congrats for winning the Rugby World Cup from us !!
Matt Chris said
Nov 4, 2015
Hello Mikaere
Welcome to the forum, you have found a good place with members that give valuable insight into all things HCV. Its great to have a member from New Zealand. One of our moderators is from Brisbane Australia and knows your medical applications area well. Is this your first treatment attempt? Hope all goes well, Sofosbuvir is a very powerful drug. Are you enrolled in a trial? or just accepting standard treatment?
matt
Mikaere said
Nov 3, 2015
Hi all started treatment yesterday sofobuvir, Ribavirin,Peginterferon 12 weeks first treatment I could have had Hep c 35-40 years very excited
-- Edited by Mikaere on Wednesday 4th of November 2015 04:48:18 AM
Hi all the Peg/Riba was provided from Pharmac NZ through my Gastro, I purchased the Sofobuvir through a man from Tasmania Australia. The Gastro encouraged me to use the triple treatment which has been responsible for higher % of successful outcomes. My Hep nurse tried to get a Fibro reading twice but it did not show if cirrhosis had effected the liver The only negative after getting liver scans was a slightly enlarged fatty liver, I was born in 1957 I have not drank or smoked for 30 years, exercise and eating good food are the norm for me (most of the time ) I only found out about the Hep c August 2014. I walked a marathon with a work mate in 2011 and it took 4-6 weeks to recover from the walk. up until training and walking the marathon my health had been OK I went to my GP and explained the recovery and lack of energy. It took 3 years before we found out what was causing the symptoms that were impacting on my health so here I am today. The first injection Tues Nov 3rd 2pm on that night I had head aches and did not sleep more than 5 hours but today is Thursday and feeling good only used paracetamol on the Tuesday night. thanks everybody for questions and concern. Malcolm I'm sure the Aussie cricket team will remind us Kiwis that they are the world champs too.
Mikaere
Hi Mikaere, Welcome to the dart club. I"m Robertsamx, And I started Sof-Riba-Peg on 10-15-15. Had my first shot on 10-15-15 and it went pretty uneventful. I have done (3) darts so far and tomorrow is my fourth shot. I did 16 months sof-riba about 18 months ago and failed treatment, so now I"m on a re-treatment. My V/L went from 4.2mil to just 147 on just 7.5 days of this triple treatment i"m on now. It took me 4.5 weeks or so on the last treatment to get to 135, so I think this treatment We are on is going to do it for us this time around.I am three weeks ahead of you, and so far its manageable. I itch some what, always have a tension headache,get a little short of breath if I walk too far,and have a slight inner shaking feeling. Dont sleep well without ambien. Thats about it! I"m interested in how your feeling, because I think its just you and me now on this treatment (sof-riba-peg) What day and time do you do your shot? How did you do after your first shot? Any aches or pains? Good luck! RC
Hi Mikaere.
I'm glad you have began treatment and I wish you well with achieving SVR. Have a look around the site and notice the search function useful for finding past discussions on any subject you have a question about. If you don't see an answer then feel free to start a new thread on the subject. We have several knowledgeable members who are always glad to help. Notice the signatures at the bottom of members post with information specific to that member. For more information on signatures and definitions for the abbreviations you will be seeing, such as in the signatures, click the link below. Welcome to the group.
Forum Abbreviations Link and Help with Creating your Signature
Welcome to the forum, Mikaere!
Congrats on starting your treatment! After living with the virus for so long this is indeed a very exciting step forward. How did your first Peginterferon shot go?
A 12 week course should go by quite quickly, and although you may find you have some side effects they should be easily manageable. Do make sure to drink enough water every day to keep yourself well hydrated, most people find that is a huge help.
Please feel free to ask questions and join in the discussion threads whenever you like, this is an easy going, friendly group, so make yourself at home.
We`ll be looking forward to hearing more from you, best of luck!
Hi Mikaere,
Congrats on getting Sovaldi and good luck. Have you had a biopsy or Fibroscan to determine your fibrosis stage?
Also congrats for winning the Rugby World Cup from us !!
Hello Mikaere
Welcome to the forum, you have found a good place with members that give valuable insight into all things HCV. Its great to have a member from New Zealand. One of our moderators is from Brisbane Australia and knows your medical applications area well. Is this your first treatment attempt? Hope all goes well, Sofosbuvir is a very powerful drug. Are you enrolled in a trial? or just accepting standard treatment?
matt
Hi all started treatment yesterday sofobuvir, Ribavirin,Peginterferon 12 weeks first treatment I could have had Hep c 35-40 years very excited
-- Edited by Mikaere on Wednesday 4th of November 2015 04:48:18 AM