I can well understand your frustration still feeling as you do at 12 months post end of tx. I think we all expect to be so much better once the virus has gone, whichever drug treatment we`ve done, but unfortunately a lot of people find that they have lingering side effects or health issues for quite a while afterwards. Ribavirin takes about 6 months to fully clear from your body, and sometimes the insomnia and fatigue can take even longer to resolve.
You were on some very powerful medicines and so I would give yourself more time to fully recover. In the meantime take good care of yourself by eating a good diet, drink plenty of fresh water, and as Bubble suggested... take frequent moderate aerobic exercise. There are also various things you can do to help get a better night`s sleep, for example having a cut off time for drinking coffee, not eating a big meal too late in the evening, and practising some form of relaxation before bedtime. If you can get your sleep pattern back under control then it`s quite likely your fatigue will improve too.
Best of luck to you, and well done for taking part in the Abbvie trials. You didn`t say, but I`m assuming it was successful in your case, and that`s something to be very happy about.
bubble said
Dec 3, 2015
Everyone is different. I look at my moodyness as an sx. Although it has tapered off a bit at 5 month's off. My sleep habits have greatly improved. No real complaint of insomnia. I suggest highly a change in your routine - like exercise. Even walking for the fresh air. Remember you have a whole new life ahead so open a new door.
robertsamx said
Dec 3, 2015
you as a 1a geno type , i would think your treatment was 12 weeks viekira pac with riba.
The S/X your talking about are the result of long term riba exposier. Insomnia and fatigue are both bad sx fron riba. the fatigue should get better soon after your HG goes up. the insomnia takes a little longer to release its grip, could take 6 months or more, because the riba hangs on a long time in your system. RC
alias said
Dec 3, 2015
I am nearly 12 months post treatment and am still working through the residual effects of this medication. I'm 25 and was infected with genotype 1a for about 5 years prior to reaching SVR. I always thought that reaching the end of this disease would be one of my greatest gifts in life, but for months I've had really bad insomnia and fatigue. Since ending the medication, I can likely count the full nights of sleep I've had without using all of my limbs. I was never made aware of side effects lasting after the dosing period and the doctors/coordinators take little interest in my side effects. (I was actually in Phase 3 of the Abbvie study for the Viekira Pak.)
Anyone else experiencing lasting unwanted side effects?
Hi Whitney, welcome to the forum!
I can well understand your frustration still feeling as you do at 12 months post end of tx. I think we all expect to be so much better once the virus has gone, whichever drug treatment we`ve done, but unfortunately a lot of people find that they have lingering side effects or health issues for quite a while afterwards. Ribavirin takes about 6 months to fully clear from your body, and sometimes the insomnia and fatigue can take even longer to resolve.
You were on some very powerful medicines and so I would give yourself more time to fully recover. In the meantime take good care of yourself by eating a good diet, drink plenty of fresh water, and as Bubble suggested... take frequent moderate aerobic exercise. There are also various things you can do to help get a better night`s sleep, for example having a cut off time for drinking coffee, not eating a big meal too late in the evening, and practising some form of relaxation before bedtime. If you can get your sleep pattern back under control then it`s quite likely your fatigue will improve too.
Best of luck to you, and well done for taking part in the Abbvie trials. You didn`t say, but I`m assuming it was successful in your case, and that`s something to be very happy about.
Everyone is different. I look at my moodyness as an sx. Although it has tapered off a bit at 5 month's off. My sleep habits have greatly improved. No real complaint of insomnia. I suggest highly a change in your routine - like exercise. Even walking for the fresh air. Remember you have a whole new life ahead so open a new door.
you as a 1a geno type , i would think your treatment was 12 weeks viekira pac with riba.
The S/X your talking about are the result of long term riba exposier. Insomnia and fatigue are both bad sx fron riba. the fatigue should get better soon after your HG goes up. the insomnia takes a little longer to release its grip, could take 6 months or more, because the riba hangs on a long time in your system. RC
I am nearly 12 months post treatment and am still working through the residual effects of this medication. I'm 25 and was infected with genotype 1a for about 5 years prior to reaching SVR. I always thought that reaching the end of this disease would be one of my greatest gifts in life, but for months I've had really bad insomnia and fatigue. Since ending the medication, I can likely count the full nights of sleep I've had without using all of my limbs. I was never made aware of side effects lasting after the dosing period and the doctors/coordinators take little interest in my side effects. (I was actually in Phase 3 of the Abbvie study for the Viekira Pak.)
Anyone else experiencing lasting unwanted side effects?
~W
-Seattle, WA