Hey Iris,

Keeping drinking more water, the heat gets to me,,,the water helps!

-- Edited by polosilver on Saturday 11th of August 2018 09:03:45 PM

so, i really thot this was going to be about finding an actual slug in some peanut butter and was afraid to read it hahahaha, so glad i did read it. 

Iris,

I can't find it right now, but it was something to the effect of my brain synapsis being mired in, trying to fire, while swimming slo-mo up-current through a tar-sands muck puddle. heehee

Wasn't funny during though.

Suffering is all relative, to each his own, and it IS real (the suffering). No one should feel they have to compare themselves against another nor should we have to justify how much we are suffering as compared to another, like we are being judged, this is where we get those comments about how "maybe i shouldn' be complaining" about stuff. Our suffering should and needs to be explored, and that can be facilitated by sharing and comparing notes, but comparisons are only for yourself just to help figure out where you are, and to keep things in perspective and to learn from.

RC and I (and some others I am sure) said, gee don't we wish we had a nickle for everytime I wanted to know what normal was, to know what and how other people felt, so I have something to compare against - how i wished i could jump inside someone else body just for a little while and wear it around so as to know what they felt like, so I could know what i was feeling (comparatively). 

I cannot entirely blame the Vosevi for yuck feelings while on tretament (I was a sick person who started to take a powerful curative drug, period) - I took one of the newest super modern DAA's (and most of the modern DAA's boast much lower side profiles than the old time regimes). Vosevi's sides are near identical/similar (in part) to the Epclusa profile, except for the added third drug, a 3/4A (vox). Maybe the added 3/4A could have made a bit of a dif. Some of us do, and some of us don't suffer with fatigue, fog, or unwanted feelings that we chalk up to calling them sides from the drugs. I also had profound fatigue prior to treatment. Everyone is dif - sometimes just waaay to many variables to account for what causes what bad feelings while on tretament. Lamassu said his doc said he see this profound fatigue complaint in some of his "older" pts., so, who knows, is it strictly the drugs we are feeling, the drugs "sides" we are feeling, is it because of our age, how long we have been chronically ill, what parts of us are not operating up to snuff?

You WILL get to feeling better, for some people it happens blessedly fast, for others is it slow in fit and starts, but it will improve.  C.

PS - I'm still thinkin bout gettin me one of them showers you got! Keep us posted how long those refills last, is yours the kind where the filter goes inside the handle of hand-held shower, or, is yours one of those where you put the filter inside the shower head itself - was your model called "Prestige"? 

-- Edited by Canuck on Saturday 11th of August 2018 06:37:00 PM

Cheddy wrote:

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Hang in there, Iris.  It's not permanent. Yes, even more water in the heat.  You are not a woos.  Your a dragon slayer.  Look at you picture!  That's you.  Look at it again. Who wouldn't be hot and tired. Go easy on yourself, but move around when you can.  There's a peanut butter party in your future.

 

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This made me smiiiiile and smile

Its not just a sweet thing to say, its accurate and wise!! Listen to cheddy Iris.

And way to go with the self care, too btw. I really hope that doesnt get lost in the peanut butter as it were . the swim and the retreat to your friends place with the pool (lucky!!) are AWESOME ways to do what everyone has been telling you to do so GREAT JOB KEEP TREATING YOURSELF GOOD!!

ps: I just noticed the plethora of emojis available here so be warned. I WILL use them

Hang in there, Iris.  It's not permanent. Yes, even more water in the heat.  You are not a woos.  Your a dragon slayer.  Look at you picture!  That's you.  Look at it again. Who wouldn't be hot and tired. Go easy on yourself, but move around when you can.  There's a peanut butter party in your future.

Iris, 

I’ll trade you one slug in peanut butter for my 20 mo grandson. I could catch your slug, I’m not having much luck catching this little lightning bolt on steroids! Good grief, my legs might be lost forever, lol!

Me =          Him =   

iris, my days on treatment were tough too. i had some good days and some bad days; and i really couldn't over do it without having to rest for a few days after.

the magic beans are working hard and so is your body. yes, it is so much easier than the old days , but it is still a hard drug and deserves respect

so just remember that if you have a day of fun in the sun you may have a cpl days of fun in the air conditioned room making dolls. and that is ok

this is a strong treatment even if it seems easy enough ... so be a slug when you need to be.  no one is going to judge how it's going for you so please don't be hard on yourself.

i really took it easy and def was a slug

5

Yea but Canuk you had a much harsher treatment, right? I feel like a woose even complaining about it. Thought this was going to be a cake walk, others sdem to power through.  I have always had a bit of unatural fatigue after exertion and this was par, yet I was trying to be easy on myself. I wonder why my brain fog get worse when the body is worn out??

My problem may be the water? I'm trying really hard but fall short by a couple few chalices a day. Rarely am I reaching the 8 or 9 full goblets down the gullet daily

I'm up late(ish), was going to crash early but it is the quiet time around the house. Shower spa has been great, hope I feel more awake tomorrow, righf now I'm a bit dizzy, so I am going to bed.

Bb, Iris

.. Iris, you said ... " in a fogbank I couldn't shake and felt like a slug navigating peanut butter..." - oh don't I know THAT feeling well!

Well, i think it is STILL early days yet (early into the treatment course) and it should even out/improve for you, these weirdness(es) should/could decrease for you as you go along, that's what i am expecting for you and hoping for you  - BUT, still!, be real cautious with your energy (head and body energy levels) anyway. Conserve and pace (just on principal). Guided by just being plain overruled and dictated to by the mind and body (that is being run under the rules of Harvoni for the next while) over any ideas you may have to the contrary. Give in to the needs your mind and body are telling you are required to attend to at the moment. Other obvious factors that probably are not helping (that may be contributing to the foggy fatigue) is the ongoing stress and the HEAT)! Social, home, work and environmental pressures can add up, all combined, can makes things subtlely or dramatically worse.

So important, ALL these items (if you can make them keep happening for you) - lots of water running through you, keeping cool enough, enough rest/sleep, good diet and as stress free as possible. 

I did all of these things to the best of my ability, and all of it must have helped (some) with my fog/fatigue, but i think (if I had to narrow it down to just a couple important items, and I don't like to narrow them down, becasue i think they are ALL really important things to strive for!) is the water intake and the stress we put ourselves under. 

I am glad you had your good news labs at this juncture, and that you did go out to try and enjoy your friends pool invitation. You are progressing and doing well (and doing it well). It will get better.

You will relate to how I had described my fog during treatment, I will go and try and find those bits and post them back here for you when I do.

Hang in there Iris - keep things as simple as you can - are you still enjoying that new shower thingy, is the new drinking water filter making it easier to drink lots of water? Later, C.

Sorry Iris....... I know your are struggling a little at the moment. Hopefully it will be over soon and you will be feel better.

I was in the middle of breakfast and peanut butter was on the menu so it really cracked me up.

ROFL Never heard anything like that before Iris.......Slug in peanut butter........ Trying to picture it or even hear you say it

but ehh just be a slug if that's what you feel like doing....You're Allowed!!!! Who wants to do laps anyway when its 105.....Floating and lounging sounds much more like the go to  me

Iris do I understand correctly from reading your sig that you are six weeks into a 12 week treatment? I think probably that is quite normal, but Im really sorry that youre struggling. I wonder if all the emotional stress takes a physical toll? Hang in there please check back soon with an update. Hope this resolved quickly!

Holy cow, is this normal? Oh dang let me backmup, the brain fog is really hindersome.

Two days ago I went to my friends house for a swim, its been hot around 105, figured I really have to get off my butt and get a Little movement in my body.  Seemed swimming would be low impact. Aaaand I didn't really do laps, maybe a couple, mostly just treaded water and floated on my back. Went in the hot tub which was about 100 degrees not hot by hot tub standards.  Back in the pool, floated some more. 

That night I felt like rubber and was exhausted, went to bed early and slept late (it's usually too noisy to sleep beyond 6am around here) That morning I woke up in a fogbank I couldn't skake and felt like a slug navigating peanut butter. All day. Sat on the couch and made corn dollies and not much else. Went to bed early and got up late...again. 

Today I felt slightly better, I can think a little better, but dang. I can't just sit here on my butt for 3 months I'll be a giant blob of weak nothing.  

Bb, I. D.