Is it possible for Hep c geno 3 to relapse after Epclusa.? I am having tests done again and 3 years post treatment . Ver
5-1-18 said
Oct 24, 2020
Jaggles , I was told I no longer have to even test for HCV after 2 yrs.
Only ppl who are still not careful after tx will have to test. Otherwise the liver panel and ultrasounds are the only thing we need.
We take the fibrosure blood test every year too, hubby's has gone from almost f4 to f2. I have stayed at f3 but with good liver panel. I blame my gallbladder going bad on me for no improvement...maybe if my body gets used to no gb it will improve. The dr also seemed to think it was becos his cholesterol is much better than mine, I'm always borderline but could also be the gb cos it's not my diet.
Hubby has the nerve pain too and needs vicoprophen some nights but that's better than not sleeping or being in pain.
I'm still tired alot even with retirement, could be due to my f3.
I'm thankful we are cured becos it is a better life
-- Edited by 5-1-18 on Saturday 24th of October 2020 06:01:24 PM
Jaggles said
Oct 24, 2020
Hey Tig...thanks for your reply it is so very reassuring. I think I will always be scared Now when ever I get poorly. The joint pain does seem a common thing. Called my HEP nurse yesterday and she also reassured my bloods are great and said if I had relapsed she would eat her hat lol...you always know what to say ...thank you so much. Hep nurse said that new DAA had been so successful they now discharge patients at 3 months SVR so thats also fantastic news. i hope you are good Tig ...kindest regards xx
Tig said
Oct 21, 2020
The chance that you will ever relapse is less than .5% (<1/2%). The more time that passes, the more that rate decreases. I don’t know anyone that has relapsed after SVR. Someone that does test positive by PCR (Viral Load Test) after having achieved SVR, has more likely re-exposed themself.
I’m sorry you’re feeling poorly. There are complaints of increased joint and muscle pain following treatment, but no specific explanation why. HCV can be responsible for this and upon successful treatment, that damage still exists. It can take years to repair that and depending on age, related comorbidities and the extent of damage, it may never go away completely.
You mentioned that all of your blood work came back normal. That’s excellent news. If you had relapsed, your Liver Function Tests (ALT/AST) would have been elevated. Remember this, you will always have a positive HCV Antibody test. That never changes. I just had my 7 year PCR done, as well as the rest. I’m still undetected, LFT’s were both under 15. Life is good, but I have the same joint and muscle discomfort, especially my hips and legs. You’re not alone in that regard.
I hope I answered your question. If you have any more, don’t hesitate to ask. The chance of relapse is essentially nil. Don’t worry!
Jaggles said
Oct 21, 2020
Hi all, I have recently had lots of joint pain and chronic fatigue, various other symptoms and dark circles under my eyes. all bloods came back normal and lupus test was negative. I spoke to a doctor today who wants to rule out Hep c relapse and this has worried me as 3 years post treatment now. I cant See how this is possible so just putting it out there as having tests done Monday next week. Has anyone else with geno 3 treated with Epclusa had relapse?
Jaggles , I was told I no longer have to even test for HCV after 2 yrs.
Only ppl who are still not careful after tx will have to test. Otherwise the liver panel and ultrasounds are the only thing we need.
We take the fibrosure blood test every year too, hubby's has gone from almost f4 to f2. I have stayed at f3 but with good liver panel. I blame my gallbladder going bad on me for no improvement...maybe if my body gets used to no gb it will improve. The dr also seemed to think it was becos his cholesterol is much better than mine, I'm always borderline but could also be the gb cos it's not my diet.
Hubby has the nerve pain too and needs vicoprophen some nights but that's better than not sleeping or being in pain.
I'm still tired alot even with retirement, could be due to my f3.
I'm thankful we are cured becos it is a better life
-- Edited by 5-1-18 on Saturday 24th of October 2020 06:01:24 PM
Hey Tig...thanks for your reply it is so very reassuring. I think I will always be scared Now when ever I get poorly. The joint pain does seem a common thing. Called my HEP nurse yesterday and she also reassured my bloods are great and said if I had relapsed she would eat her hat lol...you always know what to say ...thank you so much. Hep nurse said that new DAA had been so successful they now discharge patients at 3 months SVR so thats also fantastic news. i hope you are good Tig ...kindest regards xx
The chance that you will ever relapse is less than .5% (<1/2%). The more time that passes, the more that rate decreases. I don’t know anyone that has relapsed after SVR. Someone that does test positive by PCR (Viral Load Test) after having achieved SVR, has more likely re-exposed themself.
I’m sorry you’re feeling poorly. There are complaints of increased joint and muscle pain following treatment, but no specific explanation why. HCV can be responsible for this and upon successful treatment, that damage still exists. It can take years to repair that and depending on age, related comorbidities and the extent of damage, it may never go away completely.
You mentioned that all of your blood work came back normal. That’s excellent news. If you had relapsed, your Liver Function Tests (ALT/AST) would have been elevated. Remember this, you will always have a positive HCV Antibody test. That never changes. I just had my 7 year PCR done, as well as the rest. I’m still undetected, LFT’s were both under 15. Life is good, but I have the same joint and muscle discomfort, especially my hips and legs. You’re not alone in that regard.
I hope I answered your question. If you have any more, don’t hesitate to ask. The chance of relapse is essentially nil. Don’t worry!
Hi all, I have recently had lots of joint pain and chronic fatigue, various other symptoms and dark circles under my eyes. all bloods came back normal and lupus test was negative. I spoke to a doctor today who wants to rule out Hep c relapse and this has worried me as 3 years post treatment now. I cant See how this is possible so just putting it out there as having tests done Monday next week. Has anyone else with geno 3 treated with Epclusa had relapse?
Kindest regards to all xx