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Hep C Discussion Forum -> Post Treatment -> Post treatment Issues..
Post Info TOPIC: Post treatment Issues..
James10500


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RE: Post treatment Issues..
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Typical response from the medical community. Your pain sounds like the pain I had while on tx, from the inside out. It takes 6 months for all the Riba to get out of your body minimum, your red blood cells are saturated with it, they all need to die and that entire process takes about 6 months. Not sure about the Interferon. How do you feel mentally, feeling any better on that front ?

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Deidre


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http://youtu.be/LqiTx5xaObs



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 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks
Jbeenie


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Hi there.. its good to know that IM not going crazy.  I got this crazy disease from My internship Dental assisting.    Ive had a positive attitude about all of this and I find that a sense of humor helps me a lot.  Its been a very difficult time for me this time but I made it through.  My doctor went on emergency leave a month before I was finished with treatment, the doc I saw on my final visit asked me about the fatigue I had prior to treatment.  He told me that the reason Im tired could be something other than my Hep C.  That doesnt make sense to me at all considering THAT is the reason that I realized my Hep was flared back up again.  Does that make sense?  When I told them I was going bald the nurses told me that I shouldnt use hair color or put my hair in pony tails.  I said well.. I dont HAVE any hair.. LOL. 

Thank you for responding and welcoming me ..



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J Shields
Jbeenie


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Hello,

Finally! I have searched other msg boards and there was never anyone there.. lol ..

I think I am Genome 2? The one that is supposed to be easier to clear.  I was undetectable after 3rd month but had low white cell count so I had to be on Nupagen? (sp) As far as my hair being thin.. its not thin .. Im actually bald.  It began falling out the last month of treatment and it keeps trying to grow back but actually rubs off.   My bones ache all the time if that makes sense.. it feels like they hurt from the inside out.  Other than that nothing else has really changed and I look forward to getting the final test that will say Im clean.  Im really nervous about it considering this is my second time..  Is it normal to have that sort of pain in your bones and am I the only one with that symptom and the baldness??   Thanks so much for responding..



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J Shields
DGiga


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Hi Jbeenie, I would like to welcome you to the forum. Congratulations to you for finishing your tx. Don't expect to feel normal so soon. It took me a little more then 6 months to finally feel tx free. Been off for almost 10 months now. We all loose hair from the tx. Are you acturally bald or is your hair just very thin? You'll see, your hair will grow back. It takes time. You have only been off tx for a month or so. I agree with James about waking in the morning. It takes awhile but it sounds like he is doing great, riding 50 miles a day, five days a week. That in incrediable for anyone! GO James!!winner.gif

Hang in there as your body heals.  Ditto, "good luck with your recovery and SVR."

Hugs, Dee



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Type 1b with cirrhosis. Started treatment April 9, 2010 for 48 wks. Maintained negative PCR from week 11 during tx but now I am detectable again.
                                                                                                           
James10500


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Sorry about your post tx troubles. I have some weird stuff going on too. I used to be a real morning person, now I can't get out of bed for about a half hour after waking. Sometimes when I sleep on my stomach and turn over I have a crazy pain in my lower back. My neck is pretty stiff on the right side as well as my right acillies is sore. My energy is pretty good, I'm able to ride my bike 50 miles a day 5 days a week easily. I plan on giving it two years to recover, who knows what Interferon does to your body, that stuff in intense. But all in all my liver was stage 3, and it beats dying. The dragon is a sob of a disease, oh and there are no cute dragons for the folks who really have HCV.

Good luck with your recovery and SVR.

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Cinnamon Girl


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Hi Jbeenie, welcome to the forum.  You have clearly been through some very bad experinces over the years and so well done to you for having another go at it!  smile

To be honest, yes, it takes 6 months or more for your body (and mind) to recover from tx, so best try to be patient.  Deirdre is right - I found my hair was still falling out for several weeks after tx and it took 2 or 3 months to even start getting my energy back.  Of course, this varies a lot from person to person, and yes some people do find they have continuing problems post tx, but try to remember it`s early days yet for you.

You`re definitely not going crazy!

Love from Jill xx

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Deidre


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aas you said you just finished treatment. It takes 6 month for the Riba to leave your system. That's why it says no getting pregnant for "at least" 6 months after treatment. You didn't tell us if you cleared, or what geno type you are. I'm guessing you did treatment for a year , by the fact you finished in Aug.

The newer drugs with the shorter treatment time, came out in May.

I id the old treatment, and am currently on my 8th week of new 3 drug treatment.

I've heard good things about Biotin for hair. Many people continue to loose hair for a few months after treatment. You didn't get sick in a day. You took strong drugs for many months. It can take months to start feeling better. Don't panic. Give your body some time.

God Bless



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 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks
Jbeenie


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Hello... I have just finished treatment.  For chronic hep c ... I was first diagnosed in 1994 /95.   I was treated with Interferon at the time..  Although it did reduce the virus it didnt clear it and I was considered a non responder.   In 2001 I had a liver biopsy to check things out and things were ok so I was under the impression that I didnt need to try the new treatment which was the peg/rib combo.  For most of 2010 I was tired and sick all of the time and finally went and said WHAT is wrong with me.  The Dr's decided I needed a current biopsy and found that I was in the beginning stages of scirrosis. 

I just finished treatment August 8th.  I had just about every side effect there is possible.  If I wasnt tired.. I was vomiting and irritable.  I have also experienced really bad joint/bone pain.. 

I have also lost all of my hair.  I began losing it the last month of my treatment. 

I really need some feedback from people about side effects after Treatment.  I still have bone and joint pain and it seems to be worse now.  My hair keeps trying to grow back but its not successful.  Im bald... Would anyone else out there please tell me that Im not going crazy.  I do have some increased energy but why isnt the pain going away.  I have been on pain meds and I need to ask for an increase but I feel like a junkie for asking...  uggh   just need some input please..



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