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Hep C Discussion Forum -> Post Treatment -> it's always on my mind
Post Info TOPIC: it's always on my mind
Captain Over


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it's always on my mind
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I agree with James . . . . if you read up on what treatments are in testing right now, you might feel much better about waiting; you could be looking at much shorter tx, less side effects, etc.

If cost is an issue, please look into Clinical Trials, I did one for Telaprevir, even though I have insurance. I got excellent treatment/care, and it was totally free (they actually paid me a little cash at each appointment, to cover expenses.).

Check it out:

a little info for some clinical trials going on in Washington DC:

http://www.niaid.nih.gov/Volunteer/ClinicalStudies/Pages/hepatitisC.aspx

 

Here is a map showing other Hep C Clinical trials in the USA. Other studies are ongoing in other countries, as well.

Regards,

David



-- Edited by Captain Over on Sunday 6th of November 2011 09:13:19 PM



-- Edited by Captain Over on Sunday 6th of November 2011 09:16:54 PM

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Genome 1A, diagnosed in 2010, probably from blood transfusion in 1985. VL 1.5-7.0  Biopsy 2/2    Began clinical trial for Telaprevir 5/2011. Week 4 - UND and liver enzymes in  normal range. Week 12 UND.  Hope to finish tx 10-26-11
James10500


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Pharmasett has some drugs in phase 3 trials. They are interferon free,and very effective from whay I've read. They could be a total game changer, If my liver wasn't stage 3 and had I known about them I would have waited. If your liver is in decent shape, you're better off waiting ...imho.

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
dity3


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 Since end of June I have been off tx. It lasted a whole month...Thanks to the Mayo telling me I'm better off waiting till I start staging.Oh the best part is the doc told me I may never have any staging and live life with this demon,seeing I am in the 30% chance range of staging, I guess that's going to make me feel better??

I have had so many life changes this fall, seperated from my husband,moved to a small 2brm apt,started a new relationship and now I wish I could do tx again. Of course I am mainly living alone and have to support the kids and can't risk losing my job.

I am getting help (counsling) but I have been doing a lot at the expense of my liver. I guess I will see if the doc is right. It's sad that I can't get help so I am just speeding up the process...JUST KIDDING! all my meds are doing a great job on my fatty "healthy" liver.

We should just start a hepc lottery pool so we all can just get tx and live life to the fullest:)



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GENO type 1a HCV feb 2011 VL-24,000,000 tx June 2011

"I always knew I had demons. I didn't know I had 24,000,000 of them!!

 

The only thing fair in life is a ball...hit it between 1st and 3rd.~unknown
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