Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> Post Treatment -> Exciting New Phase?
Post Info TOPIC: Exciting New Phase?
Steve-o


Senior Member

Status: Offline
Posts: 268
Date:
RE: Exciting New Phase?
Permalink  
 

Perhaps it is because I have done a 12 stretch, or Bristol Health Authority Policy, don't know for sure, but the Specialist Nurse seemed rather emphatic, I will check with my consultant on next visit, I like to prepare.

On the Plus side my bloods from Monday are back and my levels have recovered enough for the Dental work to be done, working on that now.

The only other result of any significance is my ALT result, that was 163 in July 2011, that was 85, a significant reduction.

My appointment for endoscopy has been arranged for 20th March, all going forward, albeit very slowly.

Don't know if I would consider further TX if required, might analyse the prognosis and take it from there, my employers have been very supportive, not sure if that would continue.

Couldn't go through this unemployed and poorly off, the management of the Cirrohsis will already consume a large % of this years holiday allowance, we shall see.

It's all very exciting still, everyday's a school day.

Cheers Steff XX



__________________
Steve
greenqueen


Guru

Status: Offline
Posts: 2282
Date:
Permalink  
 

Hi Steve,

I know it's nerve wracking waiting for these results, but don't think the worst at this point.

As far as your doc saying that as a Geno 3m there aren't anymore options, well they are working on new drugs for the 3's.

http://www.hepmag.com/articles/psi7977_svr_hcv_2501_21405.shtml

I do know of Geno 3's who have been treated more than once with the standard Peg/Riba combo, so not sure why you've been informed otherwise. When this is the case, the best option is to switch to a different type of Interferon than the one previously used

Love Steff xx

 



__________________
Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
JIme


Guru

Status: Offline
Posts: 733
Date:
Permalink  
 

Steve,

Glad to hear your still moving forward, it beats the crap out of the alternative.

You are an expert at making lemonade out of lemons, don't lose that quaity my friend.  It keeps us all going. 

Who knows what life has in store for us all?  I figure guys like me and you are pretty lucky to be upright and in our right minds. ( sometimes...lol )

Please stay in touch with any updates or good jokes you might have.

Jim



__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

But as far as we`re concerned you`re a post tx`er, so I`m moving you to `post treatment`. aww

Jill, xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Steve, yes, you have to be UND for a full 6 months after finishing tx in order to have attained SVR and be considered clear of the virus.  More waiting I`m afraid, but you`ve probably got used to that already!  confuse

Keep that positive attitude - it`s got you through some tough times, and you`ll get through all this I`m sure.  Take it one step at a time, and don`t jump to conclusions yet - if anyone deserves success it`s you after what you`ve been through Steve!  smile

Good luck with those blood results, let us know how you get on.

Cheers, Jill xxx

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
TazKat


Senior Member

Status: Offline
Posts: 479
Date:
Permalink  
 

Keep the positive outlook or the humor.. i was like that b4 new meds came along. I got the faith for u!!!   No relapses allowed!!!! no



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Steve-o


Senior Member

Status: Offline
Posts: 268
Date:
Permalink  
 

Well fine People Back from the Hospital after my "Routine" check up found me in a different Department today, they have not officially put me off treatment as I still technically have HEP C until SVR? Bloods in May but Have absolutely assured me that if I relapse after undergoing my 12 months of TX that because I am Type 3A that is it, no more TX, no point-Charmed I'm sure.

I now have a lovely new Handler who has told me that because I am youngish and no longer drink that I fall into the Transplant Catergory if things go awry-Wonderful.

I have some sachets of "Colestyramine" to assist purging Toxins from my system that my Naughty Liver can't cope with, naughty, wicked, Bad Liver. Needs a slap.

Endoscopy and Bone scans planned for March, they will ring me tomorrow with Blood results to enable me to Persuade My Dentist to attend to my teeth that started to disintergrate during TX, I need one Extraction, one rebuild and one filled, Oh well that's my Fledgling career as an Osmonds Lookalike on Hold.

Because of low blood count they won't do extractions until The levels increase, bleeding to death in a dentists chair would be very demeaning. And Bad Karma, at least when I told them I had HCV they were very professional.

Apart from this all is fine, you need a sense of humour, my Kids don't see it this way and appear horrified at my flippancy, but I know no other way.

Even if I beat the Dragon, it laid an egg.

Have Fun Chums.

 



__________________
Steve
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> Post Treatment -> Exciting New Phase?
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.