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Hep C Discussion Forum -> Post Treatment -> 3 weeks post tx update
Post Info TOPIC: 3 weeks post tx update
Iris Dragonfly


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RE: 3 weeks post tx update
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Hi Becca, don't know how iI missed this, what great news! I miss you, but am sooooooooo glad you are feeling better. Do let us know that great news at 6 months K?

Huzzah girl! slay master! Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Minerva


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Great to hear Becca and congrats on that UND result!! smile  Wishing you all the very best for the future. aww

Hugs

Heather xxx



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Finished TX 2005. Geno 3. Achieved SVR - Heather.

When You Are Up To Your Neck In It - Keep Your Chin Up!!

'Knowledge. Is knowing that a tomato is a fruit. Wisdom is not using it in a fruit salad'. My dad. X.
pamigo


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Becca,

So well said!


God Speed!

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Geno 1a, 30+ yrs, Non-Responder 3 times intron/ribo TX in 90s and 00s. Triple Incevik on 2/9/12. ~stopped treatment due to side effects. Started Harvoni 11-18-14 VL @ 6.8m reduced to 70 @ wk 2..so far so good. 4 wk Undected! whew! SVR 4, 3/23/15
Cinnamon Girl


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Wow, it`s great to hear you`re doing so well now Becca, and congrats on still being UND at 10 weeks, excellent news!   Must be amazing to have your energy back at last, and to see your hair growing too!  smile

Thanks so much for giving us all an update, really  pleased for you, onwards and upwards!

Love, Jill xx

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
BeccaJune


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Well, it's been almost 3 months post TX now and it's all just a bad memory.  My blood work at 10 weeks post TX was still UND, and all counts were back to normal except still a little low on the Platelets at 121 and WBC at 2.6. The Absolute Lymphocytes are 600, which is almost as low as they ever were, but I can't tell it by the way I feel, WHICH IS GREAT!  My hair is growing back, and the new growth is over an inch long now.  I am lugging my heavy photography equipment around again and I have lots of energy.

I am so glad to see some of you finishing treatment and remaining UND.  And you Barbara after only 8 or 9 weeks of treatment!  I guess it really is true that what doesn't kill us makes us stronger.  I am praying that we all achive SVR. 

There IS life after treatment.  Not only do I feel good, but I have an appreciation for good health and life that I never had before.  It's almost euphoric at times, and I am so thankful. 

All of you still on treatment, hang in there because it is definitly worth it!

Love Becca



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Diagnosed Dec. 2008. Genotype 1b, enlarged liver.  Started triple tx with Incivek on August 12, 2011.
jrc


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Barbara Lee wrote:

Dear Becca..

  I'm so happy to see you!! So happy that you are doing well!!!  Your beautiful!!!

I had lab work done and saw the Dr. yesterday ( 4/19/12) and I'm still UND!!!! So very happy!!!  It's been 4 months since I've been off tx. 

It's so good to start feeling good again!!!!

Talk with you soon Becca!!!!

Love, BL

 What a miracle you must be so happy



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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
Barbara Lee


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Dear Becca..

  I'm so happy to see you!! So happy that you are doing well!!!  Your beautiful!!!

I had lab work done and saw the Dr. yesterday ( 4/19/12) and I'm still UND!!!! So very happy!!!  It's been 4 months since I've been off tx. 

It's so good to start feeling good again!!!!

Talk with you soon Becca!!!!

Love, BL



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I can do everything through HIM who gives me strength Phil 4:13

 Genotype 1a,(983,330- 7/26/11) (HCV not dectected on 4 week labs 10/24) started tx 9/23/11 Incivek, Riba & Pegasys.12/01/11 off all Hep C tx. VL as of 12/5 UND    UND on 4/5/12 labs!!!!!
Steve-o


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Well Done Becca, great picture, you look great, lovely even.

Not as lovely as me, but you can't have everything!

biggrin



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Steve
wnose


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Becca, thanks for the update...am currently on week one and am already noticing a difference. Hoping my week 3 post tx experience to be the same as yours. I did experience some hair loss on incivek, but it was mostly limited to my legs. The itch drove me nuts though - it would only start to itch just before bedtime and never during the day.



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Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
greenqueen


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Hi Becca,

You look lovely! smile

Great to hear news like this and you've had a really rough time on tx aww

Love Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
Shaun


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Thank you for this update Becca.   You look great!

I can only imagine how refreshing it feels to have mental and physical energy after such an arduous ordeal.

Can't wait to be there myself soon!

Shaun



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Isiscat2011


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Becca:  You sound great and look maaaaaaavalous!  The haircut is perfect.  confuse



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
JIme


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You sound great Becca, so happy for you today.  Keep improving!  Your giving me hope!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
ordinary


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Hi Becca,

So glad you are feeling better. Your new short haircut is very flattering. I have been toying with getting mine cut. My husband did a valiant job for a non professional, cutting the long thin tendrils but leaving bare areas. Now that the hair loss has slowed, I am planning to get it cut on March 1.

ordinary



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ordinary

Third round of treatment. Started with telprevir and peg/riba in August 2011. UND after 2 weeks. Stopped telaprevir in Sept. due to rash. Continued peg & riba with addition of boceprevir. Did 48 weeks. TX ended July11th. Labs UND as of August.
Cinnamon Girl


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Hi Becca, great to hear you`re doing so well, and I love your new haircut, it really suits you! smile 

I`m so pleased you`re getting your energy back now, you had a very rough time of it on tx and stuck it out all the way, as well as giving a lot of support to everyone else.  You`re a true inspiration!

Take care, and keep us posted!

Hugs, Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Iris Dragonfly


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WOW! Becca you look gorgeous, winner.gif I'm so glad you are moving on and away from this nasty virus, I wish you all the best life has to offer, I'm going to miss you terribly, please check in on occasion if you can, and let us know how great you are feeling :)  Love and Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
wilsondog


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Beautiful!!!!



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wilsondog
BeccaJune


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OK, here I am!   My scalp show through in some places, but not in the photo...



-- Edited by BeccaJune on Sunday 19th of February 2012 07:36:21 PM

Attachments
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Diagnosed Dec. 2008. Genotype 1b, enlarged liver.  Started triple tx with Incivek on August 12, 2011.
Anna Christie


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Thank you Becca. You go out and enjoy your life and forget about all the bad stuff. Go happy you are feeling better. Hugs



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jrc209


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Wow becca youve been through allot. Im so glad to hear week 3 post tx



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Geno 1 A Started Tx 8-3-11, Viral Load  21.2 Million,  4 Week Lead of Soc ,9-1-11 <43 On Soc alone started victrelis 9-3 ,8 week pcr vL und.Week 12 Vl Und, Did Week 24 PCR Results UND @ Week 24!!! 1-11-12,End Of Tx 2-15-2012 !!
wilsondog


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Thank you for posting!  I'm so happy to hear things are getting better for you and there will be light at the end of this tunnel.  i have certainly not had as difficult a time on treatment thus far (four weeks), but do fear the possibilities!  It's worked best for me to stay in the moment as much as possible and knowing someone who struggled as hard as you have is feeling healthier again provides great inspiration!  

My favorite part is that you are embracing the depth of your wrinkles as beauty within the status of your health!  I hate how much this is messing with my skin and muscle mass!  Not that I was a body builder or anything, but I started Ashtanga yoga pre-treatment and feel like I'm fighting a losing battle to retain the  strength I've gained.  Perhaps the end of Incivek will change the fat intake counter-balance, but I suppose it will all be revealed...

Congratulations on the hair-- how about a picture?

<3 Kate



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wilsondog
andrzej


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Becca,

             Glad you're coming out of it and thank you! I'm just a couple weeks behind you, just finished my treatment Thursday and your insight has been very helpful. Once again, thanks and all the best!



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Islandgrl


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Becca,  I am so happy you are feeling better and gettiing on with life.  I've been reading all of your post since I found this forum.  My hair started falling out about 3 months into tx. and I was so deppressed.  I saw that you had the same problem and you dealt with it so gracefully.  You really helped me to continue on.  You even had to work during tx. and be in the public.  I live on an island in the Gulf of Mexico and only have to work in the summer so I've been lucky.  I am on week 31 of 36.  I just wanted to let you know how helpful you have been and thank you for all you have done. 



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Genotype 3; 4th weekHCV-RNA< 43POS. ; 12th week<43NEG=non detected; 24th week<43NEG=non detected. Was on 24 week tx rib/interferon. Dr. extended tx 12 x-tra weeks(due to NOT being clear of virus at week 4).
BeccaJune


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  As most of you know I had a rough time on tx, and could barely get out of bed for several weeks.

It's been 3 weeks since my last riba and 4 weeks since my last shot.  At the end of tx I had a problem with shortness of breath, and a cough.  Fatigue was my constant friend. Most of my hair had fallen out and I had been wearing a wig to work for the past couple of months.

2 weeks post tx:  I didn't notice any big difference but my cough gradually got better and a little less fatigued.  By the end of the 2 weeks, I noticed my hair stopped falling out.  At first I wasn't sure if there just wasn't much left to fall out, or if it had really stopped.  I had a Dr. appointment, and he said he will do blood test to check VL at 6 weeks post tx and then 6 months after that.  He felt my liver and said he could tell it had gone down in size.  My skin has dark blotchy areas from the old rash and shot reaction on my stomach, he said the back and chest blotches should go away fairly soon, but by stomach is so bad that it may take several years (if ever) to change back to normal.  I started getting headaches 3-4 times a week that seem to come on in the early morning keeping me from sleeping, and usually go away when I get up and have coffee. 

3 weeks post tx: Physically, this last week has been amazing!  I have so much more energy.  Still getting the headaches, some trouble sleeping but I am trying not to take anything to help.  I took Lorazapam at night when needed throughout tx and Tylenol PM sometimes.  On the weekends, I don't take anything now and if I have trouble sleeping during the week I will take 1/2 of a Lorazapam. 

I got my hair professionally cut really short, and yesterday when I got out of the shower it looked like short hair instead of chemo hair, so I worked up the confidence (courage) to go into work without the wig! I look older because my hair is partially gray and I haven't colored it since beginning tx.  I have deeper wrinkles since starting tx so it seems to have transformed me into a healthy, older woman at 56.  I'll take it! 

Some of my pre-tx arthritis aches and pains have come back, but the side effects are mostly gone except for my dry flaky scalp and thin hair.  I am getting stronger every day.  My interest in life has returned. I am interested in my photography again.  My mental state is so much better, and I look forward to being with friends and getting out of the house. 

I don't come to the forum as much now.  One reason is that my sx were so bad that I want to forget. I have been down so long, and to finally feel better is such a blessing.  I am so thankful for the chance at a life without hep c. 

Choosing to go trough tx was a big decision and the timing seemed to be right for me. It is a very personal choice, and depending on your situation it may not be right for you.  

I don't think I would have made it through tx without the help of my friends here on the forum.  If I keep writing, I'm gonna cry, but you all know what I mean.  Thank you for being there.

 

 

 



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Diagnosed Dec. 2008. Genotype 1b, enlarged liver.  Started triple tx with Incivek on August 12, 2011.
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