Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> two questions... flu shot.... and chemical smelling pee
Post Info TOPIC: two questions... flu shot.... and chemical smelling pee
LadyAlaise


Senior Member

Status: Offline
Posts: 251
Date:
RE: two questions... flu shot.... and chemical smelling pee
Permalink  
 

Hey Kiwi; yeah my pee smells different (chemical), and immediately after each shot I get a metalic taste in my mouth for about 2 days. I also smell it. Hang in there!! Drink lot o water!

__________________

Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
kiwi


Senior Member

Status: Offline
Posts: 498
Date:
Permalink  
 

hey alan.. guess it cant be me not doin the 20g fat. coz im on pega and riba... i still have issues...

yeh shep. haha, different colours, different texture, and oh yeh the burnin ass is terrible. its not all the time, but we sure know it when it is... ouch....

but mainly, only a couple of weeks after starting tx, i noticed my pee smelt different, someone said, 'strong, you arent drinkin enough' and i said, no not strong... it smells like...... chemicals... then i thought, damn that stuff is strong, it smells on the way out bloody hell... i swear its the ribaviran....

and kelly. yeh i didnt get a shot.. but i started in nov. which was spring for us... so i guess now its autumn they want me to get one before winter... guess i better... good luck



__________________

kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
news


Guru

Status: Offline
Posts: 850
Date:
Permalink  
 

I read one article that said some experts were blaming the unpleasant bowel movement issues on the patient not eating the full 20g of fat, causing the medicine not to be absorbed, remaining in the intestine and causing irritation. Supposedly, the worse the side effects the greater the patient's error, and the less drug he is actually getting. I say "Horse feathers!!" . I did everything but measure actual fat and eat it. If the labels on food can be trusted, I got my required fat, within the time requirements at each dose. The experts are going to have to get it through their thick skulls that Incivek wrecks the digestive system of the patient beginning with the second dose and continuing for twelve weeks. Enough of this nonsense.

Sorry about the rant.

Alan



-- Edited by news on Saturday 17th of March 2012 03:36:51 PM

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Kellyw


Senior Member

Status: Offline
Posts: 188
Date:
Permalink  
 

I've been dying for a good poop talk. but first... I never never get flu shots but absolutely did before this. Not even sure they would have started treatment without it. It was on my "must complete" list before I started. Also had to get the hep a shots. POOP sheesh. Normal - gross- normal - absent color- normal - burnny butt - normal. Not sure what normal is. I was worried a bit about the lack of bile color, knowing it suggests a liver ... Something but nurse just did bilirubin and then it all went back to normal. So chalked it up to the wondrous bodily changes the drugs are causing. Nothing really surprises me and strangely I have let go of trying to put out fires, I just step back and think... Interesting.

__________________
Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
peanutbutter


Senior Member

Status: Offline
Posts: 133
Date:
Permalink  
 

I meant to ask my doctor about the flu shot but never did. The chemical Pee I never noticed but my stool was atrocious in every way. The butt burn was helped in my case was desitin diaper rash ointment mixed with vasoline. I got Hemmeroids compounded from the other issues but that stuff still helped. Also hypoallergenic bathroom wipes. This sounds nasty but keep it somewhat moist with meds. Good luck.

__________________

Diagnosed in 2008. Geno 1a. 6 month treatment of Incivek. UND at 4 weeks, and have remained that way as of 2 months POST treatment.
Isiscat2011


Guru

Status: Offline
Posts: 1724
Date:
Permalink  
 

I don't know about the flu sho-- but the pee--oh yeah.  I could even smell the Incivek on my skin.  Yuck.  I'm pretty sure I smelled like a walking purple pill. 

All of the advice about water is true.  This stuff accumulates in your system and needs to get flushed out.  Unfortunately, I didn't do as well as I wanted to with the water intake b/c my throat kept swelling up making it very hard to swallow.  But, I know the advice is right on.

I took a look at my doc's chart notes and it struck me as funny when I read: "Patient reports foul smelling urine."  Too gross.



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Shep


Guru

Status: Offline
Posts: 592
Date:
Permalink  
 

I get flu shots most years--when the school district I work for gives them to employees either for free or at a really low cost. I have not had the flu in many, many years--just not one of the the things I get. Think I have been around kids to long. The shot was fine
Haven't really noticed the pee odor---just that I go frequently.
Gotta go

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
kiwi


Senior Member

Status: Offline
Posts: 498
Date:
Permalink  
 

hey alan. nothin wierd here lol... we all normal over here in nz..

cheers for the response... yeh from early on i noticed my pee smelt like chemicals, no matter how much water i drink.. im just used to it now..



__________________

kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
news


Guru

Status: Offline
Posts: 850
Date:
Permalink  
 

I had a flu shot just before starting treatment, and it all went OK. Made it through the flu season without catching it, and it didn't seem to get in the way of treatment. Since your nurse is aware of your big picture I'd say go for it. If it were dangerous she'd advise against it.

About the strange chemical smelling pee. When I was on Incivek for the first twelve weeks the pee smelled funny (not as strong as a big serving of asparagus, but very noticeable), and the poo was very different, too. Now that Incivek is over, the poo has returned to normal, but the pee still smells like chemicals. I drink so much water that it's nearly clear, but the smell is there. 

Man it's gonna' be good to get totally back to normal. My body feels like a laboratory. And the fact that I am talking about all this with a lady in NZ is just too wierd. Going through an ordeal like Hep C treatment knocks down some barriers, I guess.

Alan



__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
kiwi


Senior Member

Status: Offline
Posts: 498
Date:
Permalink  
 

hmm its coming into winter over here in nz... my nurse said i should get a flu shot coz my neutrophyls are low... i never usually get one.. even tho im asthmatic... i guess i should do as they say...?? anyone got any input on that...

and secondly, um brain fog what was i gonna say, ummmm.... oh yeh i know they say drink a ton of water, has anyone else noticed, my pee smells different, i swear i can smell the damn chemicals in it. doesnt smell normal any more, its a chemical smell...

just running this stuff by some of you.... i trust some of your input more than my casual nurse. its like coz they deal with it all the time, they seem a bit,,, 'casual' bout the whole thing...

and it seems like after my shot on thursday nights, by saturday my ass is on fire man... owwwww.  terrible...

 



__________________

kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> two questions... flu shot.... and chemical smelling pee
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.