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Hep C Discussion Forum -> On Treatment -> Shocked confused need answers !
Post Info TOPIC: Shocked confused need answers !
ss


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RE: Shocked confused need answers !
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Thanks Joann.

Steven



__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
JoAnneh


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Steven, I started reading the bottom of the posts and then saw where you are undetected.
I was so sad for you and all of us enduring Invicek!
It scared me. Thank heavens you came back undetected.
One can affect the whole. Happy for you!!!!
Great News!!!!!!!
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
ss


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It is a bit of a mental roller coaster! You will obviously look foward to the end and later towards the first six monthes after treatment. Gotta go step by step.



__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
Iris Dragonfly


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F-ing roller coaster.... So happy for you Steven, how 'bout a big................. Hip Hip Huzzah!!!  Congratulations! Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Phil G


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Its only been 6 days since the draw. Don't really expect results for a couple of days. Patience is not one of my virtues, and tx has definetely not improved upon that. But I am now getting them mailed directly to me.



__________________

Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
news


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Surely you will hear something today, Phil. This is cruel and unusual punishment. I know you are UND, but there is no substitute for hearing the nurse practitioner say so, and handing you a copy of the results.

Alan



__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Phil G


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Totally awesome. Great news. Inspiring ... as I unpatiently wait for my 24 week results.



__________________

Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Judy S


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Steven, I've got some answers for you.  The same thing happened with me.....I started a thread about it:  UND to DETECTED to UND.  We still have some virus in us; I think this is likely the case with most of us even though we get the UND results.  UND is a maybe.  Maybe you have Zero virus, maybe you have less particles than our test can pick up.  That's why they test us 6 months after end of tx.......it should replicate by then if there's any left. 

Here's a link to my thread about this:

http://hepcfriends.activeboard.com/forum.spark?aBID=114015&p=3&topicID=49273219



__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
K2


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SUPER!! *exhale* Keep smiling

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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
innerview


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 Freakin Awwwwesome!!! That is some uplifting, inspiring, heartpounding, eyeleaking, encouragingly wonderful news!

 



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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
JIme


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Son of a bitch and bastard.....lol.....  They give you a freakin nervous breakdown then they say UND.  Fargin Bastages!!!!!!!!

Thank God.

Keep on keepin on brother!  YESSSSSSSSSSS!!!!!!!!!!!!!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Steve-o


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Phew!!

Better than Agatha Christie.



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Steve
pamigo


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"I'm King of the World"!!!!!!!!!! FAR Out$!!!!!!! Pamigo

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Geno 1a, 30+ yrs, Non-Responder 3 times intron/ribo TX in 90s and 00s. Triple Incevik on 2/9/12. ~stopped treatment due to side effects. Started Harvoni 11-18-14 VL @ 6.8m reduced to 70 @ wk 2..so far so good. 4 wk Undected! whew! SVR 4, 3/23/15
Margo


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Great news!!!!congratulations!!!

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Judy S


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Oh thank goodness!!!!  Whew!!!  Was it a lab error?  I am SO relieved and happy for you.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
davesf


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YEAH YEAH YEAH! You just made my Friday!  I've been worried that we hadn't heard from you and that no news might be bad news.

Way to beat those last 12 puny viral particles into submission!



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
news


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Best news I've heard in a while. The grin on your face will get sore before it goes away. Best pain on earth. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Kellyw


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Best news ever

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
kiwi


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bloody awesome news mate



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Cinnamon Girl


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Excellent news Steven, phew!!!  Really pleased for you!   w00t.gifw00t.gif

 ~  Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Shep


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Yea!!! I am so happy for you! What a relief--we were all sweating that one with you! Now you can start breathing again

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
ss


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It's a roller coaster ride!

 



__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
strongerthanthis


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Great news!!!! 



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ss


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Surpise, Suprise, Suprise!!!! I thought it was all over when then they came in and said UNDETECTABLE!!!!blankstare.gif



__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
hrsetrdr


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ss wrote:


Surpise, Suprise, Suprise!!!! I thought it was all over when then they came in and said UNDETECTABLE!!!

 

 Steven,

Super!   biggrin



-- Edited by hrsetrdr on Saturday 19th of May 2012 12:37:24 AM

__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
ss


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thanks everybody i am keeping postive and what ever happens happens thank you for all of your concerns.

 

will post after drs appt today



__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
reglenn58


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Date:
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Steven, that sucks your in my thoughts and prayers!



__________________

Geno type 1b VL=4m started triple treatment April 6 2012. Tryed treatment back in 2007 VL never dropped below 10 HOPE this works
JIme


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Thinking of you today brother. Let me know what they say. 



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Judy S


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I'm very upset by this news.  I have to think in my heart of hearts that it was an error.  Don't get too down about it because Positive thinking keeps us going strong.  Please let us know as soon as you get the results of the redo.  You are in my thoughts and prayers. 

It wouldn't be the first time testing was erroneous.  This triple therapy is strong stuff.  Will be a long 2 weeks but hang in there, Steven.  Hugs to you.



__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
innerview


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Steven, so sorry to hear this. Thinking of you.  And hoping like eveyone that this is a mistake.  Still this just sucks! Wish I could give some answers but I still have a long way to go myself.

Mark



__________________

Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
ty


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You are in my thoughts and prayers Steven.  I with the others on thinking the results may be flawed.  That test may have just picked up the antibodies, which will be with us forever, and not the actual virus.  We are here for you, ty



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
Cinnamon Girl


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Same from me Steven, sending all best wishes to you.   I`m with the others, I think it will  more than likely turn out to be an error.  Try not to get downhearted.

We`re all rooting for you.

~ Jill xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
davesf


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Awww...what a total kick in the crotch. Steve, you are in my hopes, thoughts, and prayers. May this be some type of error. We will be anxiously waiting the two weeks with you to get the next results. Best, Dave

__________________

All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Derekrex


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Best of luck brother.

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pamigo


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Good luck Steven.

Know those waits between labs are surreal.

Pamigo

__________________

Geno 1a, 30+ yrs, Non-Responder 3 times intron/ribo TX in 90s and 00s. Triple Incevik on 2/9/12. ~stopped treatment due to side effects. Started Harvoni 11-18-14 VL @ 6.8m reduced to 70 @ wk 2..so far so good. 4 wk Undected! whew! SVR 4, 3/23/15
ss


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Going back in 2 weeks for redo im praying thanks for ur concern

__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
news


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Steven, This is spooky. I have not heard of this sort of thing on Incivek triple. It happened a lot on double, and folks came back when triple treatment came around. I would ask for a retest ASAP. Could be the test is flawed. This is important and you deserve to know. Alan

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
ss


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Its my 30th week been off incivek since january . This is my 7th month and all tests came back undectable. Went to dr today and viral load was reported as Detected even though the viral count was under 12. Has anyone had experiences like this

__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
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