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Post Info TOPIC: had to quit treatment.. any thoughts?


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RE: had to quit treatment.. any thoughts?
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Hi Taz,

Sorry to hear of your predicament, but when it comes to tooth problems and abscesses, there's nothing worse and they need to be dealt with before they cause worse problems.

I reckon with 32 weeks under your belt, you stand a really good chance of SVR and fingers crossed for you aww

Love Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.



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Taz, it looks like you hung in there as long as you could.  We always sacrifice one thing for another on this tx.  32 weeks is a good, long time; I'm hoping you will achieve SVR.  Please keep us posted.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.



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thanks to all of u guys!! ya'll help to make everyone feel better.. will have to get tooth cut out. it is up in the gum. yukkk.. wil have to go to liver doc first to get platelets test. smile



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 



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innerview: yes i dropped dramatically  at week 2  undetected since week 4. so i hope i hope i hope....  if it wasn't for tooth i would have hung out.. but got tired of whole right side of head hurting all the time!! ashamed



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 



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I think with 32 weeks you have a real good chance of staying clear and getting SVR. I sure hope so, anyway. Good luck with the tooth. I really don't like dentists. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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TazKat wrote:

 had to quit at 32 weeks. the tooth that i broke off into the gum has been hurting like hell. along with whole side of right face & head hurting. doc not pleased. so.... i did do 32 weeks. so keep fingers crossed that i stay undetectable.. Taz~

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TazKat

 Hi Taz!

32 weeks! wow that sounds pretty good to me. I really hope you remain UND!!!  Have you been UND since week 4?

I may end up doing 36 weeks (because I was not und at week 4) but my mind is still set on the 24 weeks that all the literature boasted and which is what sold me on this tx.

Keep us posted.  and all the best with that tooth.



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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!




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Hey Kathy, what a bummer. I'm crossin my fingers for you.... I bet it will be ok.... now go get that tooth fixed! nod.gif Hope you get an appointment real soon, it's possible they are going to pull the tooth? Do take care, teeth can cause such trouble, I hope you get relief soon. Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Taz--I sure am hoping that you will remain UND--32 weeks is a good run. I had tooth and lump issues just prior to starting tx. Cannot imagine having to deal with that pain and doing tx. You are brave soul for hanging on as long as you did. Hope you are feeling better now!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!



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so news i have completed 32 weeks. that is what 8 months. so there is a good chance of being svr??  i sure hope so.



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 



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with the tooth being cut way up in the gums means oral surgery which i couldn't do on treatment. that is really why. it has been killimn me.. i wanted to hang in as long as i could, but got worse. i feel bad about having to do it, but i can;t go thru 3 months of tooth possible abcessing & the whole side of me head hurting day after day!!! no



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 

jrc


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news wrote:

Not being there it is hard for me to understand wanting to quit. I am sure you were absolutely miserable. But I can't understand quitting after 32 weeks. The good thing is that you may remain UND. I just wonder if after six months will they still call it SVR if you don't complete the treatment? I guess you'll see. Good luck in all you do, and I hope the many weeks of treatment that you finished will stick with you forever.

Alan


 @alan anyone who tests und 6 months after tx is SVR regardless of completion or not.

@taz wishing you the best



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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR



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Not being there it is hard for me to understand wanting to quit. I am sure you were absolutely miserable. But I can't understand quitting after 32 weeks. The good thing is that you may remain UND. I just wonder if after six months will they still call it SVR if you don't complete the treatment? I guess you'll see. Good luck in all you do, and I hope the many weeks of treatment that you finished will stick with you forever.

Alan

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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Posts: 479
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 had to quit at 32 weeks. the tooth that i broke off into the gum has been hurting like hell. along with whole side of right face & head hurting. doc not pleased. so.... i did do 32 weeks. so keep fingers crossed that i stay undetectable.. Taz~

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TazKat


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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 

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