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Hep C Discussion Forum -> Post Treatment -> Hey Guys been awhile got a questins avout itching after treatment
Post Info TOPIC: Hey Guys been awhile got a questins avout itching after treatment
LanaiSurferGirl


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RE: Hey Guys been awhile got a questins avout itching after treatment
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Malcom is right about the bilirubin...I have experienced this pretty bad in the past and extra bile salts can cause your skin to itch.



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
LanaiSurferGirl


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I was itching after treatment and had some rash/dermatitis on my chest, neck, behind ears, and on my eyelids.  My dermatologist said she had a hep c patient the week before with exact same symptoms.  She perscribed me triamcinolone acetonide ointment and it has been a miracle!  I am on it for 10 days and at day2 it was already cleared up.  I am still treating for 10 days but so much happier :)



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
mallani


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Hi Tazkat, hope the itching has improved. Have you had your bilirubin checked lately? If this is normal, the itching is unlikely to be related to your liver or gallstones. As you can't do the AP's again, I would try to get on a GS7977 trial. Your doc should be able to find out whether this is possible.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
TazKat


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i saw my liver doc on thursday & she had told me there would not be anything else out there for me for 5 yrs.. depressing. i an't ever do the protease inhibitor ever again.. anybody know or hear of anything else? ashamed



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Cinnamon Girl


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Hi again,Taz, there are new tx therapies in the pipeline, and the one that looks the most promising at the moment is GS7977. Have a look at this thread of Jim`s in the "Non Responders" area, he`s almost at the end of an interferon free clinical trial with this drug and doing amazingly well, with virus undetectable from day 14.  He has kindly kept a journal of his progress -

http://hepcfriends.activeboard.com/t48295757/7977-journal/

All the best, Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
TazKat


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52baddog  geno type 1a

i was on incivek. was on 32 weeks had to get off due to toothache. two weeks later i had viral test done & had relapsed. so not sure when. i was thinking while i was on the onterferon & riba. my dosage of riba had been lowered extensively. so.. i wonder agaon.. :)  now to wait on something new with NO interferon i hope. hope the itching is from dehydration & no hormones. :) thanks guys!!!!



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
52baddog


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Hi TazKat:

What genotype are you? and were you on triple treatment with incivek when you relapsed? Try milk thislte and liver care, they might help.



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Geno type 1b, F1 vl 640,000 enrolled in Gilead's sofosbuvir/ledipasvir -week 1 66, week 2 <25
JoAnneh


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Margo great link on itching! I saved it.
TazKat, try copy and paste it to google
Sorry u relapsed. I have chirrosis and had lots of itching before
Treatment and my doc said it wasn't from liver.
He tested bilbirum but I knew it was from my liver!!
Hope u find new drug to try soon. Keep us posted
JoAnne


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Hi Taz!  Sorry you`re having problems with itching, must be driving you nuts!  hmm  Margo`s link worked ok for me, but I`ll post it again, it`s well worth reading -

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

All the best to you, hope you get some relief soon.  Jill xx

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
TazKat


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that link wouldn't work for me!!??? sorry for ur relapse too Margo!!!



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Margo


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Hi sorry to hear that you relapsed, but don't give up, new meds are around the corner! I relapsed last time in my 47th week out of 48, sucked unbelievably...Regarding itching, check with your doc if you have gallbladder disease, itching is very well related in my case to that. Also read this article my doc sent me when I was bugging him about my freaking itch, I hope it helps. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
TazKat


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i have been itching like crazy. seems everywhere. i am also on NO hormones. i went to skin doc because i started itching til i got little sores. he gave me steroid cream, then went to a reg doc & he gace me a cream & antibiotics that seem to clear SOME of it up. my head itches, feet, legs stomach.. freaking everywhere. my viral load was at582,000 three months ago when i relapsed. could his bad ass itching be related with hep c? i know it can happen or is that i am stage 3 flirting 4 making it worse..  geez so many questions.. has anybody heard if any other meds are being developed without  protease inhibitor? this all just sucks./ idid 32 weeks of treatment  & relapsing sucks!!! no



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
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