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Hep C Discussion Forum -> Post Treatment -> 12 Week Post Results - UND!!!
Post Info TOPIC: 12 Week Post Results - UND!!!
Bills


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RE: 12 Week Post Results - UND!!!
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Great news Phil and Alan

Keep it coming  future is looking better

BS

 



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Neil_Canuck


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Congratz Alan and Phil !!

Hoping to join the UND group myself but am a bit disheartened that at 12 weeks I was still showing small VL of 40. I don't know what the stats are for people with low VL at 12 weeks that cleared by week 24. Like Malcolm said to me, with cirrhosis it's a different set of rules. The meds have a longer time to work through the liver/body entirely I suppose. Anyway, fingers still crossed that the dragon will be slain. If not this year then within the next 2 once the new families of drugs start to appear. Was excited to see a new approach being taken focusing on the host cell as opposed to going after the virus itself...a new and novel approach and as long as these pharmaceutical companies see a profit to be made on our misfortune then they will continue to find ways to kill the virus.



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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
Judy S


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Whoo-hoooo!!  For Phil AND Alan! I'm SO happy for you both!  We've been getting a mixture of good and bad news lately here; I'm so sorry for all who have relapsed after such a rough time on this harsh tx.  But as has been mentioned, we do need to hear ALL the results, both good and bad.  Everyone's still learning with this virus; there will always be newer and better txs.  We all were the test subjects with Victrelis and Incivek. 



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
mallani


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Congratz Alan. Inspirational 'NEWS'. Very happy for you mate!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
nohcvforme


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Congrats to both of you! My 12 week post blood was drawn Oct 22, so hoping for the same great news.

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davesf


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Right on, one more to go.

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
news


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I just wish all of us could have stayed UND. It tears me up each time I hear a report of virus found. Thank goodness the trials continue, and the treatments seem to be getting better.



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Phil G


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Well done, Alan. Now relax until the next test. I am very happy for you, yet so sad for those lately with not so good news.  



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Cinnamon Girl


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Wow Alan, how great is that?!!!   I`m so happy for you, I`m sitting here with a big grin on my face, congrats to you!  biggrin

Big hug, Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
news


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Hello, Phil

Even though I am a month late, congrats on a fine set of labs. Guess what! I just joined you. The CRNP just sent me an email with one word in like a 48 pt. font saying ZERO!!!!!

Feels real good. We some bad, virus killing son-of-a-guns.

Alan



__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Shep


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Yea Phil--I am so happy for you!! You are just a bit ahead of me. Glad you are feeling so much better!! I really want to keep my skinny clothes!!

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
Judy S


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Excellent news, Phil!  My dr also says it's not an exact science.  For the record, my Riba was reduced at Week 4 from 1200 mg to 800 mg daily.  It was always the generic Riba.  I also had to take a 1-week break from PegIntron.  And then had to stop in the middle of Week 23.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
innerview


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Phantastic Phil! All the best brother!

Starting to feel somewhat "normal" myself. Actually picked up the guitar this week. Man, my fingers are sore!!! But it still feels good.

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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
jrc


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Congrats You have a 99% chance of SVRbiggrin



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Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
JIme


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Congratulations Phil.  The only thing I don't like is your re-aquaintance with stress.........welcome back, I think.....lol.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
davesf


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Yeah! One more left to make it official but very strong odds you're there.

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
peanutbutter


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Phil for the win. Congrats

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Diagnosed in 2008. Geno 1a. 6 month treatment of Incivek. UND at 4 weeks, and have remained that way as of 2 months POST treatment.
LC


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I am so glad to hear that! That's got to be a huge load off your mind!

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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
hrsetrdr


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Phil G wrote:

Still <43 NOT DETECTED. No declaration of SVR by my doctor, as he uses both 12 and 24 week tests, but don't see him til next month.

All other blood work (CBC and Hepatic Function Panel) are normal for the first time in at least 15 years. ALT and AST at 21 and 15, down from 200 and 300.

Generally feel pretty good and relatively normal. Activity and strength back up to near normal, which isn't exactly anything to brag about. So has weight. Grown out of the skinny clothes I had to buy during tx. Some pre-existing things seem to be a little more pronounced, or at least I'm noticing them more - mainly sinus problems, tinnitus, and back pain.

Got off blood pressure meds towards the end of tx, but have restarted them. Coffee consumption is back up, weight has increased, and I have rediscovered the stress of work and life in general.

If it helps anyone's concerns during tx: My riba was reduced from 1000 to 600 at week 17 for the remainder of tx, and it was mostly generic stuff. I also did a 5 week lead in instead of 4, so only did 23 weeks of Victrelis instead of 24. To quote my doctor, its not an exact science.

Phil,   glad to hear that you're still UND and that the LIFE forces are trickling back into your body.        A few weeks after halting tx I noticed my BP running high-er than I liked(was great while on-treat), so went back on my Hydrochlorothiazide med.



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
greenqueen


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Wonderful news, Phil! smile

If it helps anyone's concerns during tx: My riba was reduced from 1000 to 600 at week 17 for the remainder of tx, and it was mostly generic stuff. I also did a 5 week lead in instead of 4, so only did 23 weeks of Victrelis instead of 24. To quote my doctor, its not an exact science.

Thanks for mentioning the above - really helpful to anyone who's worried about Riba reduction aww

Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
Mary Jane


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Awesome.. thanks for sharing.. I needed that .. I'm just trying the one day at a time.. peace and love MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
LanaiSurferGirl


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yay!



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
ss


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Great News Phil!



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Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
Cinnamon Girl


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That is excellent news, Phil, really pleased for you!  biggrin Great to hear you`re feeling so much better and stronger...just try to go a bit easy on yourself and keep those stress levels under control, it can be a shock to the system getting back into "normal" life after tx.   smile

All the best, onwards to SVR!  thumbsup.gif  Jill xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Iris Dragonfly


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You go Phil! Good to hear your feeling more like yourself, maybe now that you can be a little more active, some the aches will subside. Onwards>>>>>>>>>>>>> BB, Iris

Hey Malcolm, that's a fabulous feast !!



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
mallani


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Fantastic news Phil! What a relief for you. It's been a feast of undet. lately, and I'm so happy to add you to the list. Happy recoverybiggrin



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Phil G


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Still <43 NOT DETECTED. No declaration of SVR by my doctor, as he uses both 12 and 24 week tests, but don't see him til next month.

All other blood work (CBC and Hepatic Function Panel) are normal for the first time in at least 15 years. ALT and AST at 21 and 15, down from 200 and 300.

Generally feel pretty good and relatively normal. Activity and strength back up to near normal, which isn't exactly anything to brag about. So has weight. Grown out of the skinny clothes I had to buy during tx. Some pre-existing things seem to be a little more pronounced, or at least I'm noticing them more - mainly sinus problems, tinnitus, and back pain.

Got off blood pressure meds towards the end of tx, but have restarted them. Coffee consumption is back up, weight has increased, and I have rediscovered the stress of work and life in general.

If it helps anyone's concerns during tx: My riba was reduced from 1000 to 600 at week 17 for the remainder of tx, and it was mostly generic stuff. I also did a 5 week lead in instead of 4, so only did 23 weeks of Victrelis instead of 24. To quote my doctor, its not an exact science.



__________________

Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
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