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Hep C Discussion Forum -> Post Treatment -> post treatment viral load = im ****ting bricks waiting
Post Info TOPIC: post treatment viral load = im ****ting bricks waiting
JoAnneh


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RE: post treatment viral load = im ****ting bricks waiting
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Kiwi, we are all waiting w you!
Love the lottery idea! And that new drugs are on
The way too. I knew when I started it would be
A long road. I finish in April so next Oct!
Kiwi, enjoy each day try not to fret and trust in
God to make all things good no matter the outcome.
After 48 weeks, surely u will get good results
Love you

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
K2


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Gotta be the eternal optimist. Yep nerves are gunna be there. But you're a winner by completing a demanding tx already. And despite the ups or f_ing downs, a trooper like you will digg in and do what gotta be done. Try to chill until results come in. willing great news for ya mate.x

__________________

genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Judy S


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Ooooooh I'm nervous, too, Kiwi!  Did my 12-week-post-tx labs yesterday.  I'm fortunate that the Quantitative comes back to me in 3 - 4 days, and the CBC and others are back in about an hour.  Kaiser emails me the notification, then I sign on to my health record with Kaiser online and there they are.  Then I Hypersnap the results for my electronic files, and enter all the numbers into my spreadsheet.  Yep, pretty anal, lol.

The waiting is so hard.  I'm optimistic but let's say cautiously optimistic.

My CBC from yesterday looks great!  Everything back to normal except for MCHC (Mean Corpuscular Hemoglobin Concentration) is a tad low.  But Wow...WBCs are 4.9!!  RBCS are 4.63!  Hemoglobin is way up to 13.1, Hematocrit at 41.3 Platelets up to 215, Neutrophils up to 63.1, Lymphocytes to 29.2, Monocytes 5.4, and I actually have Eosinophils and Basophils again.  The rest of the CBC is all within range.  I'm so happy about that! 

I think it's best to remain optimistic, but also keep in mind that newer and better txs are always going to be around the corner.  We have to do all we can to take care of our livers; be good to our bodies.   smile



__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
davesf


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Ouch, waiting is reeeaaalyy hard.  The most nervous part of treatment is the anxiety between draw and results.  That's when it becomes the most real.  In California we can have a copy sent to us in addition to the doctor (with doctors permission).  I have taken the liberty of writing in CC: patient on the lab paperwork myself before taking it in to the lab.  I also have them fax it to me instead of mail so I actually typically receive it three days after labwork (before my doc even gets his copy).  

Their are three letters coming your way Kiwi:  UND!

 



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
mallani


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Hang in there Kiwi. 'Good things come to those who wait'.

Alan, glad you made it through the superstorm- hope the chooks are OK!



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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Waiting impatiently with you, kiwi. I know it will be fine, but still very impatient.

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
kiwi


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rang the clinic yesterday got my nurse lady. asked if results were in coz im impatient and worried. she laughed and said was i expecting a miracle, coz it takes a couple of weeks. and i only got them done last week.

i said well too bad 'dont they know this is bloody important''' she laughed again

i have a good relationship with nurse lady, even tho i get pissed sometimes with their ''support system'' which is pretty marginal to say the least. ah well least i smiled. gota wait till next week.

she knows im nervous.

thanks guys. you are awesome. dunno wot i woulda done without you all.

 



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
hrsetrdr


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kiwi wrote:

well i confess, after reading round here, bout the virus coming back. (kim im so sorry) i am scared out of my brain waiting for these results. got friends saying, its zero, claim your healing, and all that positive stuff, but i just cant help being worried.

waiting is something im hopeless at. jeez. on a positive note my wbc came up from 1.5 to 1.8 so least they are goin in the right direction.

thanks for lettin me vent. some of my friends just dont get it. they think im worrying unnecessarily.

 I am in the same position- waiting, waiting waiting to find out if the virus comes back or not.  I won't be tested for VL until March of next year, so I'm just carring-on and living day-to-day.

Yea, I have friends that are being "positive" and telling me that I've got the virus beat, etc.   I know that  my having had to halt treatment prematurely stacks the odds against me...but yea I don't argue and just say that miricles are possible.


As you mentioned your wbc results are looking better(as no doubt are your other labs) so you're bound to feel physically & mentally better really soon. 



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Shep


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Hey Kiwi
LIke everyone has said--it is to be expected to be nervous and on edge waiting for that VL--especially after the ordeal of tx. But I also feel pretty good about your outcome!! It is gonna be good! I have to do another test at the end of Novemeber and it is always in the back of my mind.

Let us know the minute you get those results back--I think I saw Alan's firework display from my house--it did light up the sky!

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
Phil G


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Completely understand. I was that way for every VL during tx. Same at 3 months post, but maybe a little better, I think because I had already considered both scenarios and how I would word my post to this forum, either way. Is that insane? Hoping to be a little calmer at 6 months but wouldn't bet on it.

My wife just got the results of her re-test. Her doctor had recommended it at 6 months from my first und. She was negative again. I think I hate waiting for her results more than mine.



__________________

Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
davesf


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Hope for the best while preparing for the worse silmultaneously.  That being said, it's human nature to be most nervous between the draw and the results.  If my 6 months come back bad, I'm going to be honored that I'm part of the small percentage that took one for our team so statistically speaking y'all have a better chance.  That's because my support team here has been amazing and is a family of sorts.  Of course, being the eternal optimist I know my next test will come back perfect (as will yours).  We have a 2000 person Halloween ball that takes place down the street from us.  Several friends have asked if we'd host our usual pre-party.  We delayed responding to the last minute until I got my 3 month labs back.  Happily we hosted our largest one so far.  Good things are ahead for you Kiwi.  All the best,  Dave



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
krowdog


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kiwi wrote:
 some of my friends just dont get it...

We get it...been there, done that.

Like Malcom said it's a lottery, except your chances are WAY WAY better ;))

You've got my very best wishes.

Brad



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
mallani


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Gidday Kiwi, completely understand your concerns. As there's nothing you can do about it, 'accept the things you cannot change'. It's all a big lottery and I hope your number comes up.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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I still have one more big fireworks cube I been holding on to. Adam and I shot one off for kiwi's last shot, then realized she still had a week of pills to go. Oh well, it was a fine display, even if it was a week early. So when the results come back (4 weeks, I believe) we'll just shoot that last box off. Seems like a fitting occasion. I know you can't help worrying, kiwi, but I am confident you are going to be fine.

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Biggyb


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I do understand also, having the virus coming back twice on me. But let's just be hopefull..Fingers crossed X



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
12Step Guy


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I understand; trying to go against your greatest fear isn't just like flipping a switch.  We all know your commitment to a positive outcome, you wouldn't have put up with all the misery that you have been through. Wish I could be there when you get the good news.

How are you going to celebrate? 

 

 

In struggling against anguish one never produces serenity; the struggle against anguish only produces new forms of anguish.

Simone Weil

 




__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
kiwi


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well i confess, after reading round here, bout the virus coming back. (kim im so sorry) i am scared out of my brain waiting for these results. got friends saying, its zero, claim your healing, and all that positive stuff, but i just cant help being worried.

waiting is something im hopeless at. jeez. on a positive note my wbc came up from 1.5 to 1.8 so least they are goin in the right direction.

thanks for lettin me vent. some of my friends just dont get it. they think im worrying unnecessarily.



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
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