Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> Post Treatment -> Finally found a place...
Post Info TOPIC: Finally found a place...
zuzusfam


Veteran Member

Status: Offline
Posts: 57
Date:
Finally found a place...
Permalink  
 

Hey Everyone! It has taken me a little time to get back to being me. The evil thoughts are gone, I am back at the gym and feel as though I have a life. It was tough though. I had my "90 day blood draw to see if I am still undected" last week and am waiting for results. It will also be interesting to see what my other blood levels are. I still have 2 injection reaction sites on my thighs from shots I took in October. They are a light tan but still noticeable. I do not have any scars from the rash, but can still see some very faint light brown spots on my legs. I am hoping by summer they will disappear. The biggest post treatment side effect is my hair. It is still falling out. Not in chunks, but many strands at a time. It is sooo thin and sometimes I have to do a comb over or comb over from the back. smile I do have new hair coming in so that's a plus. (It's like baby hair -- very fine, soft and close to my scalp.) I also had to go to a make-up counter and learn how to put on eye brows. I still have some eye brow hair, but like my scalp, they were very thin and some of the hair was missing. My eye lashes are still intact but not as thick as they used to be. (It's too bad that the random hairs on my face were not affected!!! wink)

Love you all!

Julie



-- Edited by zuzusfam on Tuesday 26th of March 2013 02:18:00 PM

__________________

53 y.o. female, diagnosed in 1998. Started tx Oct 8th 2012. Genotype 1a. VL 600,000 before treatment; VL 98 11/12; UND 12/12. Reduced interferon to 135mcg 12/12. 12/17/12 stopped incivek due to rash. 12/20/12 Stopped all meds due to sx
Iris Dragonfly


Guru

Status: Offline
Posts: 1169
Date:
Permalink  
 

Hi Julie, Am nodding my head. Hope you get back to where you were soon. Blessings dear, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naļve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
2willy


Senior Member

Status: Offline
Posts: 256
Date:
Permalink  
 

the old saying is 2 steps ahead and one back is the definition of a healthy life.  Being looking at this slot on the forum wondering if I may be the only other that may end up here, I also have some blood kidney and breathing problems that may take me off of treatment.  Sometimes I just do not know also but still try to keep going, good luck and enjoy what you are doinging you will over come this

Bill and Family



__________________

Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Julie, I`m glad you`ve found a place you feel comfortable posting in. smile

Thanks for sharing your thoughts.  I think tx can have a huge psychological impact on a lot of us, whatever the outcome, but having to stop when you did must be a very hard thing to deal with.  You went into tx with high hopes and you did your best to stick it out as long as you could, so do remember that none of this was your fault.

Seems like you`re looking to the future with a good positive attitude and no doubt you`ll be able to work through these issues and come out of it a stronger person.  Do keep in touch, you`re welcome here any time.

Wishing you all the best of luck.  ~ Jill xx





__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
zuzusfam


Veteran Member

Status: Offline
Posts: 57
Date:
Permalink  
 

I guess I didn't scroll down far enough on the Forum page but have finally found a place where I feel I "fit in." I am treatment intolerant. Did 10 weeks of tx before taken off all meds due to sx. I am glad my body showed me with the rash, that this wasn't the right combination for me. I just wish it would have told me a little earlier, or I would have listened a little more closely. There are many things I regret about tx. (Yes, I am working them out with my psychiatrist.) I regret starting but do not regret what I have learned. Hindsight is 20/20 though. I really want to get back to the mental and physical place I was in before tx. I am working on it. Both of them, for me anyway, go hand in hand. I want to get back to the gym, but with influenza out there, it is sort of scary. I truly do NOT want to get sick. My alternative: walking then maybe that will lead me back to jogging. It's not the same as feeling the energy in a club but for me, it will have to work for now.

Thanks to all who read the posts and nod their heads at home because they "get it" whether or not they reply. I admire the folks who have been thru drug therapy more than once. I admire the folks who are on trials. I celebrate SVRs, undet results, last pills and last shots. I empathize with those how are in the middle of treatment and are wondering "is this a side effect," having butt burn (fire in the hole) (one side I did NOT have), anal itching (sometimes I had that one), not being able to sleep, sleeping all day, setting timers or feeling like your life is being ruled by them, and have brain fog.

This is a great forum and was something that I could actually read and comprehend while I was on tx. I still check posts because I feel you guys are my friends and I like checking in with you.



__________________

53 y.o. female, diagnosed in 1998. Started tx Oct 8th 2012. Genotype 1a. VL 600,000 before treatment; VL 98 11/12; UND 12/12. Reduced interferon to 135mcg 12/12. 12/17/12 stopped incivek due to rash. 12/20/12 Stopped all meds due to sx
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> Post Treatment -> Finally found a place...
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.