Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: New to forum


Guru

Status: Offline
Posts: 733
Date:
RE: New to forum
Permalink  
 


I like that fellas and ladies.....whatever it takes.....have a great day!



__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 



Guru

Status: Offline
Posts: 820
Date:
Permalink  
 

Dillo wrote:
but if the tx doesn't work it won't be my fault..

cause I plan on slaying the beast...whatever it takes. :)


 Good for you Dillo, Thats exactly how i feel.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~



Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

Jim I am kinda old...

and my balance has never been that good...

I doubt I can even stand on my head much less do anything else while I do...

but if the tx doesn't work it won't be my fault..

cause I plan on slaying the beast...whatever it takes. :)



__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.



Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

You're in the right place Dillo to let every worry, problem and issue out instead of holding it in. Why carry the extra burden if you don't have to? I know we can't do anything medically, but we can at least give a cyber hug, an ear and encouragemet when needed. Hugs! x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

Thanks Malcom

I was more worried about developing an Incivek rash this close to being through with it. I don't know if you know but Incivek Was given a black box warning by the FDA  last December because of a couple of deaths of people who developed the rash and didn't stop treatment when told to.

http://www.bostonglobe.com/business/2012/12/20/vertex-adds-black-box-warning-label-after-least-two-deaths-from-hepatitis-drug-combination-using-its-incivek-treatment/07QQFrYwdrB2I3JwNqHrxK/story.html

I don't wanna stop ;)

It's cool...it's getting better.



-- Edited by Dillo on Monday 22nd of April 2013 01:23:52 PM

__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.



Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi and welcome ,Dillo.

You've almost finished the hard bit (Incivek) and Undetected at 4 weeks is a great start. Keep them coming.

Your rash may be due to the Riba and hopefully will settle down. Good luck. Cheers.

 



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



Guru

Status: Offline
Posts: 733
Date:
Permalink  
 

Dill,

2 weeks you could do standing on your head. You almost there. Keep drinking h2o and lather up.....lol.....



__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 



Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

Thanks Everyone
Living alone I don't get much in the way of support so nice to have a place that's rooting for you. I do have my lab that supports me though ;) or I support her lol.


Zlikster I wish you a lot of luck with your treatment also.

Lisa The good moments come and go. I try not let the bad ones out (at least publicly) ....got to keep a few friends lol

I was worried about the new rashes start of the weekend cause of all I had read about Incivek rashes (plus the itching driving me crazy) but I have increased my water intake and been coating myself with moisturizer and they seem to be lightening up. Less than 2 weeks to go on Incivek!

JImi Glad you found a treatment that worked for you!

JoAnneh Glad yours worked too. Can't wait to see your SVR!








__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.



Guru

Status: Offline
Posts: 1077
Date:
Permalink  
 

Welcome! You will feel better
Once u if finish Invicek.
I just finished 48 of triple (Invicek)
Friday.
Keep up the good fight!

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!



Guru

Status: Offline
Posts: 733
Date:
Permalink  
 

Hey Dillo,

Welcome to the bright side of the street.   Good luck!



__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 



Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

Hi Dillo,

You're very positive despite everything happening with you. It is great news that you are already Un detected and a good indication for SVR.

Good luck with treatment, I read more and more people reaching SVR and it is very encouraging! :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



Guru

Status: Offline
Posts: 791
Date:
Permalink  
 

good luck Dillo



__________________

GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!




Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

Thanks guys


__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.



Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hello Dillo and welcome to the Forum

Congrats on makin to the 11th week,  your treatment is not the easiest and with your other issues you are to making through a rough time. I give all the credit in the world for your efforts.

You might want to use the search engine for the questions you have for a faster response.

I am in the Abbots Labs Turquoise II Trial

You will find the forum members are willing and ready to help with all things HCV and show great care in the process.

Hoping you find your way

Matt

image.jpg

 



Attachments
__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



Guru

Status: Offline
Posts: 820
Date:
Permalink  
 

Welcome Dillo. Stick around.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~



Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

Hi as you can see I am new to the forum :D

I was diagonosed with Hep C a couple of years ago but stayed away from treatment seeing how then there was just the interferon and riba treatment that didn't sound too promising.

I also have heart problems and it wasn't recomended that I have a bioposy because I have been on Plavix for quite a while (stents).

Last Dec my new Hepatoligist did some kind of blood test that he said was about 94% correct and it said my liver was somewhere between stage 2 & 4 and he recomended treatment. He said even though better treatments might be out in 2 to 3 years that woud be better with my heart stents and my type 2 diabetes I had a good chance now since I have a favorable gene (?) and that if I waited my liver might not be in the best shape to accept treatment as now.

I really don't know how long I have had Hep C but it seems it could have been quite some time. I am 58yo male.

I am on Incivek, riba and interferon. I am beginning my 11th week. My doc said I was UND at 4 weeks.

Doc said if UND at 12 weeks my treatment will be 24 weeks total. I imagine 48 if not (seems to be the norm).

I am crossing my fingers as he has reduced my dosage of riba from 600mg twice a day to 200mg twice a day due to problems with kidney functions.  He said not to worry that the 200mg twice a day is the base dose and most people are adjusted to what thier kidneys could handle. He aslo said since I need a shot of procrpt (spelling) every two weeks average and I am anemic, the riba is doing it's job.

I haven't had some of the classic sx it seems with the interferon but of course brain fog, fatigue headaches, and the infernal itching comes and goes.

I have begain to develop more of a rash it seems after this last injection and called the Doc on call who said it sounded like getting an Incivek rash. Kind of itchy but with the Aveeno type moisturized and bath wash I use it is somewhat managable. I'll be seeing the Doc about it asap next week.

Anyway just saying hi ;).

I like the variety of different views and information on this forum.

 



-- Edited by Dillo on Saturday 20th of April 2013 11:38:59 PM



-- Edited by Dillo on Saturday 20th of April 2013 11:39:47 PM

__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.