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Hep C Discussion Forum -> Post Treatment -> Specialist appointment
Post Info TOPIC: Specialist appointment
Bloomster


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RE: Specialist appointment
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Hi TeddyTrout, thanks for sharing about how your journey has been.  It seems like you must be looking after yourself very well and you are giving yourself every chance of SVR this time.  When does your treatment finish?  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
TeddyTrout


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I too had healed up from being able to clearly see the advanced bridging fibrosis /cirrhosis on several  ultrasounds to not seeing any damage at all on the ultrasound after my 72 week run at treatment in 05-06. At 24 weeks into it, I was still showed positive rna but not quantize enough to get a VL count. At week 32 I showed UD. I was a break through failure some time after week 52-72.  After that it took me 10 months to recover enough to return to part time teaching of two periods a day. Every blood test since then has shown me with normal everything including alts but my GGT always was a bit high and I didn't take any alcohol that a high GGT is known to show. I had gotten so healthy I was dubbed the most healthiest sick person  my doc had ever known in so many ways that they had to take two PCRs and a biopsy over 5 years just to prove I still had Hep-C. The biopsy had shown I had regenerated back to my 1999 levels of 2/3. I question my doctor whether I should have waited for the newer treatments coming up but was convince I needed to enjoy the new triple treat and the old line "3rd times a charm line" was heard a lot. I personally know it really had to do with getting some clients( me) to actually finish the treatment to help justify the government expenditure of $200,000? per client. I was the last client in the first group to do this new triple treatment and I was told I was the only one to finish the 48 week part. The Inuvik group I heard had a real bad time of it and had to stop treatment. I know of one other person in the program to finish on the same day I did but she was on a 26 week treatment. I get to see my liver doc on the 28th next week and will most likely know more about how things are doing with the new programs. This time I was UD at week 12 so even if I don't make SRV I thinking that at the very least I will have regrown some new liver cells. Excuse the spelling and sentence structure of some of this rambling. Cheers    



-- Edited by TeddyTrout on Thursday 24th of October 2013 06:54:33 AM

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Don't sweat the small stuff, it will only give you hair loss.
Cinnamon Girl


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That`s fantastic, Caroline, very good to hear!  I agree that the earlier diagnosis of cirrhosis for your husband does sound fairly dubious, but the main thing is that his liver is now showing as being normal, what a relief for you both!

Best of luck with hubby`s 6 months result, but it looks pretty certain that it will be SVR, so no need to worry about the exact date of the test. 

Keep in touch and all the best to you both!  smile  

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Bloomster


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Thanks Malcolm as always for your encouragement.  I don't have the fibroscan score, but will get these when we go back in January. 



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
mallani


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Hi Caroline,

Congrats to you and hubby. Wonderful news.  It really doesn't matter when you get the next VL.  It'll be Undetected. The usual thing is to get a VL test at EOT +24 weeks. I waited until EOT + 28 weeks, as I wanted the test done in the same Lab.  Do you have a reading for the Fibroscan?  It would be interesting to see the reading that led to a diagnosis of cirrhosis. The readings will be in kPa units. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Bloomster


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Hi everyone, hubby and I went to have his specialist appointment today.  We already had the 12weeks post blood results which were undetected, but had to get results on ultrasound and fibroscan.

Ultrasound was all good and the fibroscan showed liver as normal.  The specialist said she did not know how to interpret his fibroscan showing a normal liver when previously they said he had cirrhosis.  So not sure on that one, but at least it sounds positive.

Also just a question, the nurse said the 6 month bloods should be done from 1 month after finish of treatment which to me seemed contrary to what everyone is doing here.  We counted the 12 weeks bloods from the last pill popped and was going to do the 24 week bloods from the same date which was going to be 9th Dec 2013. She however told us to get bloods done in late Jan 2014.  Any thoughts on this or differences in what your specialists have told you?  Thanks guys for any input.  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
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