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Hep C Discussion Forum -> Post Treatment -> No SVR
Post Info TOPIC: No SVR
dustbear


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RE: No SVR
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My heart goes out to you. May you soldier on and win this once and for all.



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
newmex


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Dang it, so sorry Neal. But just a temporary setback, they have new stuff coming down the pike daily it seems. Hang in there, from what I hear the newer drugs are better any way with less side effects and higher SVR. If there is any thing I can do let me know



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John
DeRanger


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One step back, but you will make two steps forward.  My specialist told me about the new treatments and said these will be easier to take and they have a better response rate.  Hang in there, you will achieve SVR.



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1a, 35+ years; liver cancer survivor 7-2012 surgery; triple therapy 12-2012 (Interferon, riba, victrelis) - end 48-week treatment Nov. 29, 2013 - post tx 24 weeks undetected - SVR.
Biggyb


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Very, very sorry Neil,



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Loopy Lisa


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Hi Neil,

I can only imagine your disappointment after such a long fight. There isn't much solace we can offer when life throws such an unexpected punch. Keep faith you will recover. Some people on here have failed up to three times before becoming cured, but they did finally! That will be you in the future, and we will be congratulating. Stay strong...Hugs!



__________________

Genotype: 3b

VL.ïż½over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Neil_Canuck


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Thanx to all for the good wishes. It is a tough one but I'm in better shape than some of our

forum friends and I don't believe my life is in any immediate threat. My specialist is sending

me reqs for blood work to do in 6 months time so I'm pretty sure he must feel the same way.

I always knew this could be the outcome of the Tx but you have to hope for the best especially when 

end of Tx shows UND. Que sera sera or in todays lingo...It is what it is.

We have no choice but to soldier on. I've always been a realist so you learn to roll with the punches.

 

Semper fi



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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
Bloomster


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So sorry to hear this news Neil.  My heart sank on reading it as treatment is so hard.  Be encouraged that there are new treatments on the horizon and that your time to shine will indeed come.  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
ucbgal


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neil,

it saddens me to learn you didn't achieve svr. we all know the risks,sx and no 100% guarantee for svr and accept our fate  none the less.

in life i've found 1 true guarantee & it's my belief in myself to accept challenges w/ determination and head held high. your journey was done with integrity,determination and courage. you are an inspiration for all of us.

rest,cherish life and your loved ones.

sandy,ucbgal



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Cinnamon Girl


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Neil, I`m so very sorry to hear this, what a disappointment after waiting all this time.  And I agree, hearing the news over a voicemail is so horrible, I wish doctors and specialists wouldn`t do that.  As Jim said, at least you`ve given your liver a good long holiday from the virus all the while you were UND so it wasn`t for nothing. 

Take good care of yourself until the time is right for your next round with one of the new drug combos.   You`ll get there next time, I`m quite sure.

Keep in touch, we`ll still be here for you anytime. 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi Neil,

Really sorry to hear that mate.  At least your next Rx will be a piece of cake compared with what you've gone through, and your liver has had a rest.  It was always a worry being Detected at 12 weeks- I didn't mention it then, but my doc stops Rx for Vict. patients if still Det. at 12 weeks.

See if there are any Merck Trials available.  MK-5172 is effective against all the Victrelis RAVs, and combining it with MK-8742 would eliminate the need for Interferon.

Your time will come so just recover and get ready for the next round. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Matt Chris


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Hey Neil

This is a tough day for you, but all is not lost. There are many more treatments coming down the road for us cirrhotics, with a whole lot higher percentage of cure rates with shorter and hardly any FX's.

Sometimes it's hard to figure but we go on and continue to fight and the timing is good because the next two years will bring nearly 10 better combo choices to achieve SVR .

I know that first month is hard but think about the future knowing the prospects are better than before this last treatment especially without Interferon. 

Keeping the faith

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Tig


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Sorry you got this kind of news I think at the very least, the person delivering this kind of news should do it personally. There is something real impersonal when doing it via voicemail! The new treatments will hopefully be your permanent ticket to SVR! Best of luck Neil! 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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JIme


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Sorry to hear this Neil but at least you gave your body a break from the virus for a while. Stay as healthy as you can and be ready for the next round. It will come quicker than you think. Us dragon slayers are tough old birds. Your time will come.

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
tonib


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Oh Man that sux!!! So sorry Neil! I only had the 12 weeks to be unresponsive, but to go the 48...wow what a blow! Sorry Neil, hang in there the new treatments are coming and they seem to be easier, and more successful!
My thoughts are with you at this time! xoxo

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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
Kellie


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damn, i'm sorry Neil. the next treatment will be easier and shorter. you'll be there for it too.



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Zlikster


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damn man :( Sorry to hear. Seems we have a new round of battle ahead...

i hope they get you on the Sovaldi journey asap :)



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
hrsetrdr


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Neil, this must have been a blow, very sorry to hear. Hopefully you may be able to take advantage of one of the new treatments available. Best of luck to you.

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Neil_Canuck


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Returned home from shopping today to get voice message from specialist that 6 month psst treatment blood tests showed virus still active. Guess my battle not over yet. 



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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
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