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Post Info TOPIC: New member from Canada
Gracie


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RE: New member from Canada
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Same genotype too...!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
mallani


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Hi again Linda,

Fat is not a requirement for Victrelis.  Australia finally approved Victrelis and Incivek late last year, but the Government has said that no new drugs will be funded by our PBS for at least 5 years. Drugs like Sovaldi may be approved this year, but without Government funding, very few will be able to afford it.  As you say, at this stage, Sovaldi must be used with Interferon and Ribavirin for Geno 1's.  Even when a second DAA is added and the Interferon dropped, cirrhotics will need 24 weeks of Rx. That's about A$200,000 without the second DAA!  Unless you're rich, a Trial is the way to go. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Bunny


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Hi Malcolm

thanks for your reply.  My Hepotologist could have treated me ten times, he said but everything there was had the Interferon with it.  You are very fortunate.  How did you manage with all the fat you had to eat?

i didn't think Australia was behind the US in getting new drugs out.  That is interesting .  Canada just got the  Victrelis a year ago.  Now Health Canada has approved the Sovaldi but for us genotype 1's we still have to use the Interferon.



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Linda Zimmerman

 

geno 1a  cirrhosis stage 4. Took the old SOC treatment 3 years ago for 7weeks and had to stop.  Waiting for a trial or treatment with the new drugs .  Have had HCV for37 years.
mallani


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Hi Linda,

Nice to have another mature person on the Forum, so welcome.  Like Canada, Australia is behind the times compared with the USA.  I was lucky to have a Hepatologist that could access Victrelis, so did the 48 weeks and got my SVR.  Cirrhotics that are older have a hard time on treatment, so if you can get on a Trial of the new DAA's go for it.  You need to avoid Interferon after your vision problems, so the Merck combination or the Gilead duo would be the best bet.  Best of luck, and ask any questions you like, or use the 'Search' button.  Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Bunny


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Thanks SuziQ   It took me awhile to figure this all out.  Nice to have someone to show me the ropes.



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Linda Zimmerman

 

geno 1a  cirrhosis stage 4. Took the old SOC treatment 3 years ago for 7weeks and had to stop.  Waiting for a trial or treatment with the new drugs .  Have had HCV for37 years.
suziq


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Hi Linda, 

Good to have you here !!!!  There is sooo much information on this forum--I do enjoy it so. 

Fill out the signature on your profile so the ones with memory loss (like me) can remember your info' It will be displayed at the bottom of all your posts.  I think you will be amazed at all the info here that we couldn't get on other forums.  Also check the email box below your posts and you will be notified whenever anyone posts to a section you are checking out.  This is such a luxury compared to the other forum. 

SuziQ   



-- Edited by suziq on Thursday 9th of January 2014 12:12:55 AM

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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Bunny


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Hi 2willy

i tried the SOC treatment but the Interferon started to damage my vision.  Stopped after 7weeks.  I have not been able to be treated dice then.  Canada needs to get on the band wagon for those of us with genotype 1.  I live in Manitoba and unless I want to travel for 13 hours there is nothing out here for me.  Frustrating to say the least.



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Linda Zimmerman

 

geno 1a  cirrhosis stage 4. Took the old SOC treatment 3 years ago for 7weeks and had to stop.  Waiting for a trial or treatment with the new drugs .  Have had HCV for37 years.
Bunny


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Hi Gracie

it's nice to talk to another Canadian .



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Linda Zimmerman

 

geno 1a  cirrhosis stage 4. Took the old SOC treatment 3 years ago for 7weeks and had to stop.  Waiting for a trial or treatment with the new drugs .  Have had HCV for37 years.
2willy


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Sudbury Ontario



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
Gracie


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ME! New Brunswick!

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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Bunny


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I am wondering if there are any members here from Canada?smile



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Linda Zimmerman

 

geno 1a  cirrhosis stage 4. Took the old SOC treatment 3 years ago for 7weeks and had to stop.  Waiting for a trial or treatment with the new drugs .  Have had HCV for37 years.
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