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Hep C Discussion Forum -> Post Treatment -> 6 months post
Post Info TOPIC: 6 months post
Bloomster


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RE: 6 months post
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Very sorry to hear your news.  Try to be encouraged that new treatments are on the horizon and your day of triumph will indeed come!  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
mallani


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Hi again Nicole,

It doesn't help to wonder what went wrong. You're not cirrhotic at your age, with a fairly normal biopsy 4 years ago. You had such a good response to the leadin that I was certain you'd do well. I guess working such long shifts didn't help particularly with the anaemia you had. I would have a good long rest and try to organise life so that treatment next time is more relaxed.  Personally, I'd avoid the antiproteases and wait for Ledipasvir to be approved. This will be a single pill a day, mixed with Sovaldi. For you, there's no hurry. Cheers.



-- Edited by mallani on Saturday 8th of February 2014 01:56:38 PM

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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
libgirl07


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My eot was und..   I'll have to look up my dosage reduction and procrit amount.  I just wonder why after I responded this would happen.  Maybe I'm cirrhotic and don't know?  Maybe I should have treated for 36 to 48 weeks?   There were a handful of times I missed some Victrelis.   :(



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Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 
mallani


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Hi Nicole,

Really sorry to hear the news.  It's pretty rotten that you're the only person to relapse after a Victrelis RVR (that I've heard of). After your bad time on Rx, at least next time will be easier. Whether you want to jump back in and try the new combos is up to you. You can certainly afford to wait for other DAA's that will be approved this year. Take it easy.

Sorry to ask at this time, but how much Riba reduction and Procrit did you have ? Also, did you have a VL at 24 weeks or EOT? You only mention the 17 week VL.

You lost this fight, but next time will be easier and more successful. All the best.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Cinnamon Girl


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I can`t say for certain, Nicole, but we`ve had several new members who`ve joined over recent weeks and who are now on this treatment, since Sovaldi was approved by the FDA and it became possible for this `off label` combo to be prescribed.  You`d need to talk it over with your doctor really as these drugs are very new.



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
libgirl07


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Are all doctors willing to do off label usage



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Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 
Cinnamon Girl


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So sorry to hear this news, Nicole, I really sympathise.  It must feel like such a blow to you right now, this is a setback but you can still go on and clear this virus with one of the new drugs combos now available.   

One of our members `Darkstar` is currently doing treatment with a Sovaldi and Simeprevir (Olysio) `off label` combo after his previous treatment with the incivek triple therapy wasn`t successful, and he was Und after 2 weeks.  Here`s his thread if you`d like to see..

http://hepcfriends.activeboard.com/t56297993/sofosbuvir-plus-simeprevir-undetectable/

You did the best you could, so be kind to yourself and please don`t despair, you`ll get there in the end! 

Wishing you all the best with the next round...your doctor will talk you through your best options. 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
libgirl07


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Now what? My doctor said they now have the medication that you only take for 12 weeks but i could wait to treat for 6 months and get the non interferon tx. I'd prefer to just get it over with right now. What is the medication? Im trying to research but I'm so upset I cannot focus.

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Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 
Matt Chris


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Hello Nicole

I'm sadden to hear your latest news, I know how it can overwhelm a person but stay as active as you can and know many people have beat this on the second go around and especially now with the new agents and treatments you odds of beating HCV is greater then ever.  You have a lot more living to do at your young age and only a short time until you beat this Dragon for good.

Sending hugs

matt   



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
newmex


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Nicole, I am so sorry. please hang in there. I know its a lot of stress and very painful right now, but the easy treatments are just down the road. Again so sorry, and you know we are all rooting for you!! Theres always a next step.



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John
libgirl07


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I relapsed.  I feel like I'mgoing to have a nervous bbreakdown 



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Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 
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