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Hep C Discussion Forum -> Post Treatment -> Post Treatment Hep C Side Effects Question
Post Info TOPIC: Post Treatment Hep C Side Effects Question
Mark Y


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RE: Post Treatment Hep C Side Effects Question
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Thanks again for everybody's responses. Headaches have never been an issue with me and I've only noticed the joint pain becoming quite bothersome over the past 2 years. It's really been the severe fatigue and brain fog that's been my biggest challenge. There's days when it's a chore just to stand up, much less walk but I have a very active job that keeps me moving and I've just managed to will myself through it. I honestly probably won't know how to act if I'm fortunate enough to clear this virus and be relieved of these symptoms. Just took my 1st meds today and am very positive. I'm wishing good luck to everybody here!   



__________________

55 yr old male. GT 1a. Diagnosed in 1985. Stopped pega/riba in 2005 due to side effects. Started Solvaldi/Olysio 2/14/14. VL 3,700,000. 2/21/14 VL 244. 3/07/14 VL Undetected.
suziq


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I had thought that without interferon that there would be no or few side effects.  That was true during the first 12 weeks, but the last 6 weeks I did have side effects--mainly lots of stomach pain and general aches and pains.  The first two weeks post treatment I spent mostly in bed with stomach pain, diahrrea (none during treatment) and general exhaustion.  I am 4 weeks post treatment and just beginning to feel better.  Go for my 4 week EOT labs today.  Another person on my same trial emailed me that she went to the ER a week or so after treatment with similar pains.  They found nothing and her next EOT blood work was still UND. 

I had few side effects from my 47 years of Hep C and was shocked that I had cirrhosis. I was equally surprised to have side effects from treatment without interferon (but with riba). 

I have been blessed with good health and almost no illness over the years so did not expect any reaction to treatment. I just think the meds "did a number" on my stomach.  BUT I think a few weeks of not feeling well is nothing compared to what I read about the old SOC. And my trial had almost 100% SVR in earlier trial. 

I have every expectation of feeling a little better each day and high hopes of remaining UND.  My head is clearer than in a long time.  At this point, it just seems to point out all the things I have left undone.  Kind of wish it would shut up until I feel a little better. 

Just noticed JIme's nap remark--I don't seem to want to nap anymore either.  I do not however expect to participate in triathlons at my age.  My son once held world's record in double triathlon for several years, but the ability certainly didn't come from me.  I did go and watch a number of times.  What stamina they all had.  I was truly impressed. Congratulations,JIme.

SuziQ       



__________________

Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
JIme


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What Kellie said.

It took me a while but now almost 18 months post tx I feel great. I work out almost every day and have participated in many running and triathlon races this past year. I sleep about 6.5 hours a night on average and I try to eat healthy most of the time. The joint pain took the longest but I have not had a nap in a long time, And I loved my naps.

I found that the more I moved around the better. Right after tx ended this was not easy but it has become 1000% better as time has passed. Keep moving and it will get better. Good luck!

__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Mark Y


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Hi Kellie, Thank you for your uplifting post! The severe fatigue is something I've lived with for years and I can't hardly imagine life without it, I'm so looking forward to this! I'm slowly improving my diet as well and plan on beating this, thanks again!



__________________

55 yr old male. GT 1a. Diagnosed in 1985. Stopped pega/riba in 2005 due to side effects. Started Solvaldi/Olysio 2/14/14. VL 3,700,000. 2/21/14 VL 244. 3/07/14 VL Undetected.
Matt Chris


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Hey Kellie

Great to hear that you have reached such an improvement in your energy levels.

Also appreciate your dedicated to your good eating habits, I also have been trying to end my relationship with sugar as well.

Keep up the good eats

matt     



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Kellie


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hi mark! i have more energy now then i ever had. i had very bad fatigue too. that was one of the main reasons for tx. my NP promised me when i was finished i would have more energy and she nailed that dead on -

i'm coming up on 5 months post tx from 24 weeks incivik triple. running 4 to 5 miles a week, walking the off days. the joint pain comes and goes and the headaches are mostly gone.

my diet is really good now. i'm juicing everyday, eat vegetarian and stay away from sugar, gluten and dairy (it's a bummer because i love cheese).

happily my brain function is wonderful too. pulling straight a's in school. tx was really hard but so worth it.

so there is life after treatment. just eat well, move everyday and think good thoughts. i honor you for taking care of yourself and getting rid of this virus.

 



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Mark Y


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I appreciate the info guys. I've been through pretty extensive testing and everything points to the Hep C as the contributing factor to the extreme fatigue. I'm certainly hoping that's the case and can finally get some energy back after this treatment is over!



__________________

55 yr old male. GT 1a. Diagnosed in 1985. Stopped pega/riba in 2005 due to side effects. Started Solvaldi/Olysio 2/14/14. VL 3,700,000. 2/21/14 VL 244. 3/07/14 VL Undetected.
mallani


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Hi Mark,

This is the great unknown.  Like myself, many patients had little or no symptoms from longstanding chronic HCV, even with cirrhosis.  Post treatment surveys often show that patients feel worse after Rx despite having cleared the virus.  I'm sure this will change as we get away from the Interferon-based regimes.  Many of us change our diet and lifestyles during Rx, and I think this helps longterm. The fatigue may, or may not be, HCV-related. It will almost certainly improve. Best of luck.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


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Hi Mark,

The answer to your question really is a subjective one. I've witnessed individual responses to treatment effectiveness from immediate improvement to month's long delays. Unfortunately some have waited much longer. But fortunately the great majority see quick improvement of things like energy and motivation. Many people I've spoken to have had joint and muscle pain related symptoms that have improved during Tx and completely resolved within months following SVR. Your success and improvement will depend a lot on your reaction to Tx and condition. The good news is you will likely see good improvement on many levels moving successfully forward. Good luck!

Tig

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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Mark Y


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I'm really curious on how long after you have cleared the virus do the side efects of Hep C leave. My worst side effect from the virus has been severe fatigue, almost debilitating at times and I'm so looking forward to eventually feeling better. Can anybody that's beat this monster share some personal experience/information? Any input is greatly appreciated, Thank you!  



__________________

55 yr old male. GT 1a. Diagnosed in 1985. Stopped pega/riba in 2005 due to side effects. Started Solvaldi/Olysio 2/14/14. VL 3,700,000. 2/21/14 VL 244. 3/07/14 VL Undetected.
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