Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: Sorry I haven't been back in a while but..


Senior Member

Status: Offline
Posts: 118
Date:
RE: Sorry I haven't been back in a while but..
Permalink  
 


My dearest Sandy, all of my blood level are completely perfectly normal, HgB 158  and holding. My Dr always said I was the healthiest sick person she ever new.  It saddens me to hear that he is refusing to give you Procrit, I had it given to me 85% of the time I was on treatment. It did make me vomit  once a week but at least I stayed around 1.24 I think, my old post will say. Heck I even trough away some of it away and I think i offered it up to anyone that wanted it here on the board. I'm still doing therapy on my rotator Cuff surgery I had 6 weeks ago, I fell and slipped on the ice and thought I re-tore it but the therapist thinks it will be ok with time and to keep doing the exercises  in a slow pace.  I'm still really messed up from some of the sides and I'm really twisted about my future as I have not worked full time in 12 years and I'm definitely out of shape. I am definitely scared of failing the grade. anyways Thanks all Cheers, 3 days till Augusta GA



__________________

Don't sweat the small stuff, it will only give you hair loss.



Senior Member

Status: Offline
Posts: 297
Date:
Permalink  
 

teddy trout,

 am so pleased to learn of your astounding news & accomplishments w/ your teaching skills. i think you know i retired after 29 yrs. teaching to resolve the hepc for the 2nd time in my life.

how pleased you & yours must be to attain svr 3 months eot & reduce ferretin levels drastically.

currently i'm 3 mo. svr although have elevated ast by 10 points. also ferretin went down from 1999 to 720. this tuesday i begin blood letting only if my hgb is greater than 11.  doctor won't write script for procrit although my hemo is at 10.5. i'm between a rock & a hard place!!!!!!

just out of curiosity do you suddenly feel better w/out the ferritin overload? also do you have low hemoglobin & thallamessimea minor as well? this is my primary problem as of date & just want relief before my liver enzymes rise again!!!!!

looking forward to hear any/all advice from someone in my predicament.

be well.

sandy,ucbgal

 



__________________


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Good to hear from you again, Jack, and congrats on your SVR12, fantastic!  smile

It`s wonderful to hear how far you have moved on with your life now and you have accomplished so much already.  Have a great trip with your wife, you certainly deserve a break after your long and difficult tx!

Wishing you all the best as you move forward with your continued recovery and your plans for the future, and do keep in touch.

Thanks for checking in and sharing your news, onwards and upwards towards SVR!!

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

Congratulations, every success sorry drives the rest of us forward. I hope the recovery continues to go forward with leaps and bounds. :)



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi Jack,

Congrats on your SVR 12. Good to hear you're doing well.

Enjoy the Masters. Hopefully Adam Scott will triumph again. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm

Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Hi Jack,

So good to hear from you! It has been too long since I saw the ol' Teddy Trout avatar! I always liked that one. So glad you've had the strength to get back into teaching, but I'm certain that kind of schedule is taking every bit of recovered energy you have. My hat's off to you my friend and hope the good news and strength continue to improve, as well as an improvement in your COPD. That alone will give you a welcome boost of strength and vigor like no other. It sounds like you've got an excellent plan for the future and we're all thrilled to hear your good news. We still have a number of members and caregivers dealing with these extended Interferon treatments and your wisdom will always be valuable here. So I hope you'll take time out of your schedule to visit and share your knowledge. Thanks for checking in and letting us share your happy Hep C free life!! Best of luck to you...

Tig



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hey Jack

Super congrats, than is fantastic news "All Right" 

Its good to hear your energy level is allowing you so much life to live.

It's also great to see your Ferritin come down so far, WOW!

Keep up the great results

matt 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



Senior Member

Status: Offline
Posts: 118
Date:
Permalink  
 

I'm tested SVR at 12 weeks and will be seeing the Hepatologist in May for the 6 month test. I Have been really pushing myself and even returned to substitute  teaching as a Industrial Vocational  teacher and they have me doing everything else as well for K-12. I have really enjoyed being back and have really enjoyed teaching the 7s and 8s. I seem to be one of the only real IA Subs in the two school divisions I Sub for. I have been really very employed. I think I have had 12 days off since Jan 6, I'm still very fatigued and my COPD is still hitting me hard but getting better as I get further away from my finish chemo date. I had my Rotator Cuff totally repaired and it ended up being a major  repair job instead of a simple Rotor Rooter job, so I been really hurting lots but I seems to be doing very good. I'm been really pushing the rehab hard and been told I need to slow down and let it heal more. It's been hard for me to slow down as every fiber in me wants to come alive again after 16 years of bring disabled and told to make my will up. The Technical training institute here has signed me on as well to sub for their Vocational and Carpentry courses and have hinted that they have a new position opening full time as a  Work Placement officer for the collage but I'm not sure what I'm going to really to do in the near future as I'm still recovering. The Sore muscles and joints have not gotten any better but my Ferritin level have dropped from 876 to a supernormal 75 so no more blood letting needed. My wife and I are taking 3 weeks off and going o Augusta GA on the 12th and staying with friends and doing the last day of the Masters, Thought I would drop you all a line and let you know that I have really enjoyed and appreciated the support and kind works of encouragement during those horrible 48 weeks of Hell. But I guess three times was the charm and maybe I get to stay a little bit longer and do what ever the gods saved me to do on this earth. Well really tied and going to bed. Cheers Jack 



-- Edited by TeddyTrout on Saturday 5th of April 2014 04:50:38 AM

__________________

Don't sweat the small stuff, it will only give you hair loss.

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.