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Post Info TOPIC: I'm back again!
Isiscat2011


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RE: I'm back again!
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Sandy:

You two are in good hands and this combo should be a piece of cake compared to what he has endured in the past.  I'm sure your docs already mentioned this but people are also seeing improvements in their glucose levels once that virus takes a hike.  

What a journey, huh?  The fourth time will be a charm.  All the best to you and your husband.



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Cinnamon Girl


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Hi Sandy, welcome back from me too!  smile

You`ll find a few of us are still around from the last time you were posting here, and much progress has been made with Hep C treatments since then with so many good results coming through from our members doing the new drug treatments.  I`m so pleased to hear your hubby has had Sovaldi/Olysio approved! 

You`ve been through a few very rough years together and I wish you both all the best of luck this time around.  With such an effective drug combo I`m sure this will be the one!

Do keep in touch! 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
sandypsych


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You have a great memory!  Yes, we are still at U of M hospital for our treatment now.  It is quite a gifted and competent group of doctors/nurses/staff there.  Their patience and knowledge has really been a blessing to us.  His Doctor is feeling more like the Ribaviran was the culprit in the skin issues, though no one can say for sure.  But after seeing so many people being UND, it really gives me hope.  He was diagnosed with cirrhosis about five years ago, liver enzymes are still high but his biggest struggle is with fatigue.  Sounds like that is fairly common.  Diabetes is still a challenge, but manageable.  One step at a time, that's what I remind myself each day.  

We have been through a lot, but we are so lucky that we have insurance, good medical care, jobs with flexibility and supportive friends and family.  So many folks on here struggle without some or all of those resources, that there is no way I could complain about things!

Congrats to all of you that are UND!!!  That is amazing!  It seems like a brave new world out here.  

 

Thanks for the thoughts and support

Sandy 



__________________

Hubby profile:  Genotype 1a.  Hep C since late 70's.  Cirrhosis.   Interon/Riba 2x.  Incivek/interf/riba:  Und at 8 weeks, but had to stop due to DRESS syndome.  Olysio/Sovaldi started 6/18/2014.  Cleared virus 11/05/2014
mallani


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Hi Sandy,

Welcome back. In an ideal world, going on new treatment with another antiprotease would not be a good idea, with hubby's history. However, Sovaldi will do all the work, with Olysio as a backup. It's a good idea to leave out Ribavirin. All the best this time. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Isiscat2011


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Hi Sandy:

I remember you from 2012.  Your husband had a terrible time with tx, a severe allergic reaction with oozing skin sores and a full body rash, and the doc ended up discontinuing tx and referring him to a university treatment center.  Is that where he is being treated now?

You said he tried the Victrelis next and again he had severe reactions.  Olysio is also a protease inhibitor (the same class of drugs that Incivik and Victrelis) but hopefully he will have better luck without the Interferon and Riba.  I'm sure his doc has taken into consideration that your husband hasn't done well with this class of drugs, right?

Your poor hubby.  He's been through the ringer, and you have too.  What troopers you both are!  

So, how is his liver and his health doing?  He also has diabetes as I recall.  How are you holding up, Sandy?  



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Barnacle


Senior Member

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Definitely do that combo. 4 wks UND here minimal side effects. I almost feel guilty I got off so easy but every time I mentioned treatment in the past my GP would say, you're still not too bad just wait there is better stuff on the horizon. Well it's here and more is coming.


__________________

57yo male gen 1a since '70s. Fib F3-4 VL >2M Tx started 5 Apr 14 Sov/Oly/Rib

wk 4 UND wk 8 UND, wk 12 EOT UND...keep em coming 24wks UND = SVR!
Fireman Rob


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Ah, my heart goes out to you and your husband. Please let us know how this incredible treatment goes. Congrats on obtaining it!

 



__________________

Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
sandypsych


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Hi All

 

I think that I'm considered a 'returning new member'.  My husband has been diagnosed with Hep C for several years.  Tried the HALT-C clinical trials many moons ago (no luck), then Interferon/Ribavarin (sick with low platelets).  More recently tried Incivek triple therapy, cleared at 8 weeks, but had to stop after severe skin reaction. (I still credit several here with giving me the information needed to recognize when to realize that enough was enough!).   Eight months later tried the other triple therapy (Victrilis, etc) and within 48 hours developed the rash.   He was so heartbroken that I think that the disappointment was worse than the disease.

Well, today we learned that he was approved for Solvaldi/Olysio treatment together (minus Ribaviran/Interferon).  After reading so many positive comments about the treatment that people are getting with these new drugs on here, I'm very hopeful.  This discussion forum continues to be a place of support, encouragement, knowledge and at times humor (much needed) so it was the first thing I thought of when I heard we are in for more treatment.  

Here is hoping that the forth time is a charm!

Sandy



__________________

Hubby profile:  Genotype 1a.  Hep C since late 70's.  Cirrhosis.   Interon/Riba 2x.  Incivek/interf/riba:  Und at 8 weeks, but had to stop due to DRESS syndome.  Olysio/Sovaldi started 6/18/2014.  Cleared virus 11/05/2014
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