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Post Info TOPIC: New to this,
Turnsit


Veteran Member

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RE: New to this,
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Hi, you are going to do fine, you are open and up front about your feelings, that alone takes courage. I have had 1b fpr 42 years and at age 62, I can still cycle my race bike 35 miles on the ocean highway in hot sun, now of course I must cycle at night and settle for 20 mile treks but thats ok. Rest lots, eat well, keep busy, time passes quickly. Hope you have some happy days in front of you! Aloha



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A. M. Turner
Turnsit


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I cried the whole year on interferon and riba, just sat in the tub and cried. Its ok to cry on or off treatment, it helps to heal...



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A. M. Turner
jimbob


Senior Member

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Hi Sarah, and welcome to the board.

That 'crying' game you speak of has been experienced by all on here who have had the same meds as you. It has a mind of its own and will come at the most unexpected times. The evening news became a daily routine with me. I teared- up when the Iranian kids were arrested for dancing to the catchy Pharell Williams song.

Just know that you are not alone, and others on here most likely have experienced it , and will have either remedies or very good advice to help you.

You are young and that is a big plus.

Good luck with tx, and best wishes.

jimbob

__________________

jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Turnsit


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What treatment drugs are you on? You are young so be of good heart, you will get well, no douby about it. I am on solvaldi and olysio. I spent 6 months on a sheep farm in southern australia, 6 thou acres in 2007 after my first treatment, one of my best friends is an Aussie...best to you.



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A. M. Turner
TazKat


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Welcome. This group of friends are the best. Vent when u need to, we are always here to listen & help in any way that we can. Well mainly they all help me. I am doing 4th attempt at treatment which ALL have included the interfereon & riba. You are young & believe me you got that on your side.. Good luck!! smile



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Housewife01


Newbie

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Thank you to everyone, even these small messages are taking so much weight off my shoulders! I find it's so easy to get lost in my own head but this makes me realise there is a finish line and one day we can ALL cross it,



__________________

geno type 3a.

treatment- RVN/PegIFN 6 months. Start date 30th May 2014.
Housewife01


Newbie

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I'm usually such an active person but I'm just so tired all the time and find myself crying over nothing at all which is different for me. My nurse told me these would happen but I think I just assumed it wouldn't happen to me.



__________________

geno type 3a.

treatment- RVN/PegIFN 6 months. Start date 30th May 2014.
Fireman Rob


Senior Member

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Welcome Sarah, I'm so glad you caught this now and not later. Good luck on treatment- I'm sure you will do great! If you have questions, there are many knowledgable people here to help. Have a great day!



-- Edited by Fireman Rob on Sunday 8th of June 2014 11:14:19 PM

__________________

Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
Loopy Lisa


Guru

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Hi Sarah,

I'm a 3 too but quasi species b. It is the standard treatment for now all though all oral therapy will be available in most countries in the next few years.

Sorry you are finding treatment hard, it is not a great combination but you are young and as you have had it a short time maybe you are done in 16 weeks. 

We are all here if you need support, there is a great group here that have achieved SVR, non responders and failed therapy.

Good luck :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Isiscat2011


Guru

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Posts: 1724
Date:
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Welcome Sarah:

You have come to the right place.  You are one of our youngest members so you could bring out some maternal/paternal instincts in us, but in a good way, not in the Mommy Dearest, Joan Crawford way!  

Your age and the relatively short period of time you have had the virus will work in your favor.  Your genotype is also a bit easier to get rid of.  

Whatever you are going through, in terms of side effects or feelings, you can talk about and we will try to help.   

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Huey


Guru

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Posts: 678
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Housewife01 wrote:

Hello,

 

my name is Sarah and I'm from Australia and I am 22.

ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through what I am going through.

 

im sorry if that was such a word vomit!

i don't really know how this works but I like new friends.

 Hi, Sarah,

  I am a 3a too.  I am in the middle of this treatment on week 15,  I think I have had mine for 35 years or so but only know about it a little more than a Year ago.  I can tell you how my experience was with this Tx but that does not mean your experience will be the same.  I know that Geno 3 has a unique Characteristic and this is that it causes insulin resistance  and it will show up in the test you will be taking as elevated sugar or glucose.  This will make you feel dizzy like your low on sugar but in reality what is going on is your cells are not using the sugar and it builds up.  And During the time you are having the RVR (Rapid viral Response )  The bottom drops out of the Viral Load and you drop to UND in 4 weeks or less. you will have the worst side effects, But after you get to that point you start to feel better.  The hardiest part is the first 4 weeks.



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Cinnamon Girl


Guru

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Posts: 5629
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Well done, Sarah, yes I can see what you wrote. 

Ok, so that`s the standard treatment for genotype 3 in Australia, and it`s the same treatment as I did too.  I see you`re started tx (treatment) very recently and quite often people find that after the first couple of weeks or so the side effects do settle down when you`re body has got more used to the drugs.  It`s quite a shock to the system at first!  What are the side effects you`re finding most difficult at the moment?



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Housewife01


Newbie

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Posts: 4
Date:
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Thank you.

 

i think I changed my signature and my viral load was around 2 million.

thank you so much it's such a relief to find this!



__________________

geno type 3a.

treatment- RVN/PegIFN 6 months. Start date 30th May 2014.
Cinnamon Girl


Guru

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Posts: 5629
Date:
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Hello Sarah, welcome to the forum!

I`m glad you found us, this is a very friendly and helpful group so you`re amongst friends here!  Well done for starting your treatment, and I`m sorry to hear you`re finding it hard going.  Could you tell us more about what treatment drugs you`re on and what your genotype is, please Sarah?  That will really help us when we reply with advice and information.  You could also write that information in your `signature` (look in your user profile details and click on `Signature`) and then it will appear underneath all your posts. 

The good news is that you are young and haven`t been infected with Hep C for very long (especially compared with many of us here) so the virus won`t have had time to cause any significant damage to your liver.

Looking forward to hearing from you again, and best of luck!



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Housewife01


Newbie

Status: Offline
Posts: 4
Date:
Permalink  
 

Hello,

 

my name is Sarah and I'm from Australia and I am 22.

ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through what I am going through.

 

im sorry if that was such a word vomit!

i don't really know how this works but I like new friends.



__________________

geno type 3a.

treatment- RVN/PegIFN 6 months. Start date 30th May 2014.
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