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Hep C Discussion Forum -> New Members Area -> DIANNA DIARY - HUBBY HAD LIVER TRANSPLANT 2 YEARS AGO
Post Info TOPIC: DIANNA DIARY - HUBBY HAD LIVER TRANSPLANT 2 YEARS AGO
dianna


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RE: DIANNA DIARY - HUBBY HAD LIVER TRANSPLANT 2 YEARS AGO
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Has anyone else had a liver transplant had awaiting the new drugs.  Would love to hear from you.



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Dianna
dianna


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Yes I just did a google search and found that information out.  I wish I could get hold of some medication from the US but that is not possible.  We will just have to be patient and await our time.  In Australia things come years later down the track. Thanks for the site it is so huge and very interesting to read.

The results are excellent.

I hope your results are all clear at the end of your treatment.



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Dianna
longld


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Sovaldi is the marketing name for Sofusbvir, Riba is short for Ribavirin/Ribasphere.

I hope your dear hubby gets the treatment - many transplant patients now get the treatment before the transplant to kill the virus before the transplant - though some may not have the time to get this treatment, takes up to 48 weeks.........

 

Here is a link to a study of 104 liver transplant patients who had HCV:  http://www.hepmag.com/articles/transplant_Sovaldi_2501_25515.shtml

Results from the study of 104 post-liver transplant participants with recurring hep C were presented at the 49th annual meeting of the European Association for the Study of the Liver (EASL) in London.

The study participants, who had exhausted all other treatment options and who had poor prognoses, were treated with Sovaldi (sofosbuvir) and ribavirin, along with interferon at the discretion of their clinicians, for up to 48 weeks. Out of those participants for whom there is available information, 62 percent have achieved a sustained virologic response 12 weeks after completing therapy (SVR 12, considered a cure). In addition, the same percentage has shown improvements in various clinical conditions related to liver decompensation or improvement in their liver function tests.

The drug regimen was well tolerated and suppressed hep C at high rates.



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62 Yrs Old, CHC Geno 3, Cirrhosis, Kidney Transplant (13 yrs), On Sovaldi/Riba Treatment (24 week) since Feb 01,2014

Viral Load 7M on 1/8/2014,  UND at EOT 7/18/2014
dianna


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Hi Longld

Thanks for your reply.  Sovaldi/Riba is Sovaldi Sofosbuvir.?

I am hoping the hospital automatically puts my hubby on the trials to kill the virus otherwise the virus over years will eat away at the new liver. Can only hope?



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Dianna
longld


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Dianna,

  Yes, I am a Kidney Transplant patient who is Gen3 and am in the middle of a 24 week treatment with Sovaldi/Riba.  I was tested at week 12 and was UND.   My understanding is that some Liver transplant patients were in the Sovaldi trials and did well - no kidney transplant patients have finished treatment yet.  My battle has primarily been with low red blood cell count - two transfusions so far but hanging in there with lots of help from my friends on this forum!



-- Edited by longld on Thursday 12th of June 2014 03:18:41 AM

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62 Yrs Old, CHC Geno 3, Cirrhosis, Kidney Transplant (13 yrs), On Sovaldi/Riba Treatment (24 week) since Feb 01,2014

Viral Load 7M on 1/8/2014,  UND at EOT 7/18/2014
dianna


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Hello to all the members on this site

It was a the last leap year we had in 2012 my hubby had his liver transplant, what a journey, it took him 18 months to get back to some normality.

The new treatment Sofosbuvir has come to trials in our hospital just now but are treating Geno Type 3.  Have been advised Geno type 1 will be doing trials soon, my hubby is Geno type 1 and requires the treatment to get rid of the horrible virus.  In reading the results it is excellent in getting rid of the virus totally.  Has anyone had a transplant had been on the drug and become undetected.

Would love to hear your story. Thankyou



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Dianna
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