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Hep C Discussion Forum -> Post Treatment -> Post treatment & wondering if this is normal - OLYSIO/SOLVALDI
Post Info TOPIC: Post treatment & wondering if this is normal - OLYSIO/SOLVALDI
Omnamahshivaya


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RE: Post treatment & wondering if this is normal - OLYSIO/SOLVALDI
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Thanks. Yeah I don't think I have cirrhosis if the fibroscans are accurate. So, I'm assuming it's the meds, lack of sleep and other stress factors going on in our lives right now. I'm so grateful though so I can't complain.... :)



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OMJ - started treatment April 25, 2014

Prior to treatment VL 14 million. Liver Levels Abnormal but under 70.

Sovaldi/Olysio

VL: SOT = 14 million.    SOT +2 weeks = 28

AST/ALT: Normal

Week # 7 = UND
Dzdayscomin


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I would think it has a lot to do with how much damage has occured prior to tx as to how you will feel post tx.

If you don't have significant damage to your liver I would think you would start feeling some improvement rather soon, in my case I think after only 7 weeks post tx I'm probably not going to see real dramatic improvements, probably just subtle things over a longer period of time that will be offset by other issues that come with more severe liver damage.

I do know the more active I can be the better I feel.

We still really don't have a lot of data (as far as I know)on the long term sx of the off label use of these drugs so we can just hope that the good it has done is better than any bad that may happen as a result.

Also my days and nights get mixed up too so sleeping a regular schedule is out of the question, but I understand that is a result of cirrhosis and liver damage, and I've struggled with this long before treatment...I just told myself not to get angry and realized I'm just tired and short of giving up my job I just deal with it.



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53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
Omnamahshivaya


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Thanks everyone. Yes, I feel "depressed" and it's probably from a lack of sleep as the meds suddenly stopped. Also, have a lot on my plate too and nobody but you guys (thank you so much!) who really understand any of this.

I guess I thought I'd feel beyond great right when I was complete but forgot everything is gradual.

 



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OMJ - started treatment April 25, 2014

Prior to treatment VL 14 million. Liver Levels Abnormal but under 70.

Sovaldi/Olysio

VL: SOT = 14 million.    SOT +2 weeks = 28

AST/ALT: Normal

Week # 7 = UND
Isiscat2011


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Well, your body has been through some changes in the past 3 months, and it just needs some time to adjust to everything.  The mood changes could be the result of not getting enough sleep.  Also, it is only natural to feel some anxiety now, just as it was when you first started tx.  Just relax, take a nice walk every day if you can (even a short one) and eat well.  :)



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
sandypsych


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By "last gasp" I meant the meds (NOT your body!).  Just meaning that the meds are moving out of your system.  

Sorry for the confusion!



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Hubby profile:  Genotype 1a.  Hep C since late 70's.  Cirrhosis.   Interon/Riba 2x.  Incivek/interf/riba:  Und at 8 weeks, but had to stop due to DRESS syndome.  Olysio/Sovaldi started 6/18/2014.  Cleared virus 11/05/2014
Huey


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It is your body changing as the meds wear off,  I recommend trying warm milk or Valerian root if you can't have the lactose.



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Omnamahshivaya


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Thanks for the reply. what does the "'last gasp'" mean?



__________________

OMJ - started treatment April 25, 2014

Prior to treatment VL 14 million. Liver Levels Abnormal but under 70.

Sovaldi/Olysio

VL: SOT = 14 million.    SOT +2 weeks = 28

AST/ALT: Normal

Week # 7 = UND
sandypsych


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I don't know but it certainly makes sense.  I have heard of other folks have withdrawal reactions when they stop other medications.   I suspect your body is just ridding itself of the medications, and you are experiencing the 'last gasp' of the drugs in your system.  If it continues after 7 days or so, maybe contact your doctor. 



__________________

Hubby profile:  Genotype 1a.  Hep C since late 70's.  Cirrhosis.   Interon/Riba 2x.  Incivek/interf/riba:  Und at 8 weeks, but had to stop due to DRESS syndome.  Olysio/Sovaldi started 6/18/2014.  Cleared virus 11/05/2014
Omnamahshivaya


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Just wondering if a significant amount of people have had any irratic sleep issues and mood swings post tx. it's been a couple days post tx and I'm noticing symptoms I had when I first started tx -- like waking up often. not being able to fall back asleep. wondering if this could be a side effect of the meds leaving my body or maybe I'm just concerned about other issues.

Feels like the meds.



__________________

OMJ - started treatment April 25, 2014

Prior to treatment VL 14 million. Liver Levels Abnormal but under 70.

Sovaldi/Olysio

VL: SOT = 14 million.    SOT +2 weeks = 28

AST/ALT: Normal

Week # 7 = UND
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