Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> New Members Area -> no longer lurking
Post Info TOPIC: no longer lurking
LC


Senior Member

Status: Offline
Posts: 473
Date:
RE: no longer lurking
Permalink  
 

Good for you Vanessa!  I'm enrolled in a 12 week treatment, and I will have had 6 visits to them by the end of that time.  The odds are good that you will reach SVR, and there is always going through your insurance with other meds if not.



__________________

Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Matt Chris


Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hey Vanessa

Welcome to the forum family, we have many that have been on HCV trials. I would recommend you go for the Abbvie trial if you have a good medical team backing up the study. it does require a lot of visits to the clinic but you tend the learn a ton about all things HCV,

  I think Abbvie mostly has treated its trial patients well and they have good products and high SVR results.

If you fail to reach SVR it should not preclude you from other drugs especially the Gilead "Sovaldi" there will be more GT2 drug combos coming out in the next 2 years so I would not be worried about having options to retreat. 

matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Matt Chris


Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hello Tess

Welcome to the forum you have found a good place as you are well aware.

At nine weeks you're probably having a bit of Riba Rage and depressed energy levels because of reduced red blood cell count (hemoglobin) its a common effect of Ribavirin, The good thing is it will rebound after treatment is completed which will bring back your energy level.    

Keep on eating healthy and try to exercise if possible.

matt 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
justvlm


Veteran Member

Status: Offline
Posts: 53
Date:
Permalink  
 

Hello, Tess.

It's nice to meet you.  My clinic director called and I've agreed to the AbbVie screening tomorrow.  I have several irons in the fire that would make treating now a very good idea.  I'll know more tomorrow and will post in the Clinical section.

 



__________________

GT 2, DX 10/2007, BX stage 0/1; grade 0/1... treatment-naive

11/2014 fibroscan F1-F2 (8.2)

Pretreatment VL 1.9 million

Start Sovaldi + Riba 11/23/15

Undetected  at 4 weeks tx

12 week post treatment results. CURED !
Tess1971


Member

Status: Offline
Posts: 36
Date:
Permalink  
 

I am new here and have been lurking for a while also. Did one post on the post treatment forum. I have had hepc since 1971 when I got sick with hepB and nonAnonB at the time. Seems I completed cleared hepb with only antibodies and no surface antigens. However, no one back then knew what to think of the nonAnonB so it was ignored for years. My LFTS were always in high normal range and occasionally slightly over. In 1997 I had blood work that showed the hepc antibodies and positive of surface antigens. I have avoided treatment for many years as interferon was out of the question for me as a working single mom. Now that sovaldi is here I decided now is the time since I can tell it is catching up with me. Too tired to do much of anything, even think straight as well as other differences.
I am in week 9 of sovaldi and ribavirin. It is literally getting under my skin. The boohoos come on so easily too. I do eat healthy, cheated occasionally. Used to party well up until 97 when I found out about the nonAnonB being hepc.

__________________

Type 2b, 3485370 IU/mL VL, sovaldi/ribavirin-12weeks, treatment end 11/15/14 SVR-UD, SVR-5-UD, SVR-14 & 32-UD. (64 yr old with hepc since 1970s)

 
justvlm


Veteran Member

Status: Offline
Posts: 53
Date:
Permalink  
 

mallani wrote:

Hi Vanessa,

Why bother with AbbVie? The SVR rate for Geno 2 is >97% with 12 weeks of Sovaldi/Ribavirin. I doubt whether AbbVie would be as good. Cheers.

 Thanks Mallani,

I suppose I am hoping I can get the arm without Ribavirin.  I can't find anything that forecasts when GT 2 might see treatment without ribavirin.  But I'm concerned about the trial drugs as well, if I don't get SVR will they preclude me from future drugs.  I'm still trying to make sense of all this.



__________________

GT 2, DX 10/2007, BX stage 0/1; grade 0/1... treatment-naive

11/2014 fibroscan F1-F2 (8.2)

Pretreatment VL 1.9 million

Start Sovaldi + Riba 11/23/15

Undetected  at 4 weeks tx

12 week post treatment results. CURED !
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi Vanessa,

Why bother with AbbVie? The SVR rate for Geno 2 is >97% with 12 weeks of Sovaldi/Ribavirin. I doubt whether AbbVie would be as good. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Huey


Guru

Status: Offline
Posts: 678
Date:
Permalink  
 

Geno 2 has one of us veteran members on the way to being cured, SVR+4... I am a 3 and I too have had the Sovaldi with the Riba. It is do able but don't under estimate it. I managed to work through treatment but wound up quitting my job soon as it was over, . 

We are all in this together, Keep your stick on the ice. 'Red Green Show'



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
Permalink  
 

Hi Vanessa, glad you found this forum.  It's a great place for all things HCV related (and sometimes not smile).  Folks here are knowledgeable, caring, compassionate, and very supportive.  Seeing others experiences and trials in dealing with this virus, helps to keep things in perspective.  Looking forward to reading your posts.   Be well 



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

justvlm wrote:

Hello everyone.  I've been lurking here off and on for a long time.  I opted to not treat after being diagnosed in 2007, biopsy of stage 0/1, grade 0/1.  I'm not sure if the GI fired me or the other way around.  She just couldn't believe I wouldn't ingest poison for 6 months, question her superior knowledge.  She was quite sure I'd manage just fine.   Oh well, that is ancient history.

Fast forward.  I hope to hear soon if I can qualify for the AbbVie trial for 2 &.3s.  It does have a ribaviron arm, but best I can find that's going to be the tx for GT2.

Just wanted to pop in to say hi and look forward to meeting everyone.

 

Hi Vanessa, welcome from me too!  Glad you decided to join us and you`ll find plenty of friendly and helpful people here! 

From your history I think you did the right thing by waiting for a chance to do an Interferon-free treatment and all the best of luck with getting onto the Abbvie trial..no-one wants to be force fed poison for 6 months if they don`t have to!  wink

Keep in touch and let us know how you get on.  We do have a forum area called `Clinical Trial Participants`, so fingers crossed we see you there before too long!  smile  ~ Jill

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Milliganus


Senior Member

Status: Offline
Posts: 168
Date:
Permalink  
 

Dzdayscomin wrote:

Marcy we are all hoping and praying for you as well, you are always so supportive to all that swim these waters. ....I personally thank you for that. 

What a wonderful human being you are!

God Bless you!

Duane

 Aw shucks Duane....your too kind. smile



__________________

Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
Dzdayscomin


Senior Member

Status: Offline
Posts: 471
Date:
Permalink  
 

Marcy we are all hoping and praying for you as well, you are always so supportive to all that swim these waters. ....I personally thank you for that. 

What a wonderful human being you are!

God Bless you!

Duane



__________________

53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
Milliganus


Senior Member

Status: Offline
Posts: 168
Date:
Permalink  
 

Welcome and congrats on moving from lurking status!   I waited for treatment for many years.  My biopsies were always fine, so I wasn't willing to put myself thru IF treatment.  I just finished up a clinical trial so I'm hoping for SVR.  No side effects, virtually painless.



__________________

Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
LC


Senior Member

Status: Offline
Posts: 473
Date:
Permalink  
 

justvlm wrote:

Thanks all. 

LC... It was the recent exchange between a resourceful mouse and some sassy kitties that made me think 'I like these peeps, I gonna hang out with them'. aww   ps....I love your guard dog !biggrin

It is so wonderful that the general conversations about tx isn't how to survive this or that or all these horrid Sx. 

That's so cool! biggrin  There are some great people on here! 



__________________

Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
justvlm


Veteran Member

Status: Offline
Posts: 53
Date:
Permalink  
 

Thanks all. 

LC... It was the recent exchange between a resourceful mouse and some sassy kitties that made me think 'I like these peeps, I gonna hang out with them'. aww   ps....I love your guard dog !biggrin

It is so wonderful that the general conversations about tx isn't how to survive this or that or all these horrid Sx. 



__________________

GT 2, DX 10/2007, BX stage 0/1; grade 0/1... treatment-naive

11/2014 fibroscan F1-F2 (8.2)

Pretreatment VL 1.9 million

Start Sovaldi + Riba 11/23/15

Undetected  at 4 weeks tx

12 week post treatment results. CURED !
LC


Senior Member

Status: Offline
Posts: 473
Date:
Permalink  
 

Hi Vanessa, good for you! Fingers crossed that you get into that trial.

__________________

Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
beingsassy


Senior Member

Status: Offline
Posts: 132
Date:
Permalink  
 

Welcome Vanessa

i am also G2. I waited over 20 years to start tx because I didn't want to do interferon. There are so many new drugs available and the success rates are improving. Please stick around and ask questions. Our gurus have a great store of information snout the disease and different treatment option. You'll also find lots of support and a safe place to just vent or share a joke or two. Look forward to reading more posts from you. Good luck

Gigi



__________________

genotype 2 completed sovaldi and ribavirin on 6/4/14. SVR on 12/3/14
Tig


Admin

Status: Offline
Posts: 9279
Date:
Permalink  
 

Welcome Vanessa! How dare you question such knowledge!!! Ha, ha! You aren't alone, many people have made the decision to avoid those drugs and we are now witnessing a huge improvement in treatment protocols. You should do very well, especially as a GT 2. The success rates have been steadily improving, with high SVR rates and few side effects compared to our old friend Interferon.

Do stay in touch, we have a great group of friends here! I look forward to hearing more about you and invite you to leave a brief bio/history in your profile signature section. Good luck to you...

Tig



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
justvlm


Veteran Member

Status: Offline
Posts: 53
Date:
Permalink  
 

Hello everyone.  I've been lurking here off and on for a long time.  I opted to not treat after being diagnosed in 2007, biopsy of stage 0/1, grade 0/1.  I'm not sure if the GI fired me or the other way around.  She just couldn't believe I wouldn't ingest poison for 6 months, question her superior knowledge.  She was quite sure I'd manage just fine.   Oh well, that is ancient history.

Fast forward.  I hope to hear soon if I can qualify for the AbbVie trial for 2 &.3s.  It does have a ribaviron arm, but best I can find that's going to be the tx for GT2.

Just wanted to pop in to say hi and look forward to meeting everyone.

 



__________________

GT 2, DX 10/2007, BX stage 0/1; grade 0/1... treatment-naive

11/2014 fibroscan F1-F2 (8.2)

Pretreatment VL 1.9 million

Start Sovaldi + Riba 11/23/15

Undetected  at 4 weeks tx

12 week post treatment results. CURED !
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> New Members Area -> no longer lurking
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.