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Post Info TOPIC: Harvoni Day 2


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RE: Harvoni Day 2
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TerriT - CONGRATULATIONS!    It must feel awesome to have finished, and I hope you're able to have that glass of wine some day soon to celebrate!

 



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65;  Dx 1997 1a; VL 1.1m; TX naïve; SOT 7/20/15; 12 wks viek/riba 1200mg

09/14/15 draw: Undetected 8 wks into tx

10/12/15 draw: Undetected at EOT

01/05/16 draw: Undetected at E0T+12



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So you should be halfway through by now.  Hope your side effects have leveled off.  I had almost none, but I have to say it was hard for me to drink a lot of water and I think that would have helped...especially since I have been reading about how important water is to liver rejuvenation.   I have completed and Viral Load is "undetectable".  YAYYY!.  Now I want to find out if I can have my life back....I would so enjoy a glass of wine. 



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Great to read others getting started on the Harvoni. Meems it should be a pretty smooth ride.  I had ongoing and random headaches and some increased joint pain.  A cakewalk compared to the Interferon/riba.   Michael, I too was on my 4th tx with the Harvoni, you will do fine.  I'm 11 weeks post rx and awaiting my 12 week eot labs due the end of the month.  Good luck to all starting and on tx.



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.



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Hi Michael, welcome!

Congrats on starting your Harvoni, you`ll find it so much easier than your previous experiences with interferon shots.  So this will be your 4th round of treatment then, full marks for perseverance, that must have been tough! 

You stand an excellent chance of clearing the virus for good this time and I`m glad you found us.  You`ll be in good company here and I`d like to point out our `Harvoni Treatment Train` thread, feel free to take a seat and make yourself comfortable for the ride!  Here`s the link for that...

http://hepcfriends.activeboard.com/t58762824/all-aboard-for-the-harvoni-treatment-train-enjoy-the-ride-fo/

Yes, I have heard about B12 injections for fatigue and in fact I had a series of infusions some years ago which I found very helpful. 

Having said that, it`s best to avoid all supplements in any form while on treatment, and if in doubt check with your doctor.

Make sure you keep yourself well hydrated throughout your treatment, that helps a lot with potential side effects, like headaches for example. 

Best of luck, we`ll look forward to hearing your updates!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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started today at 7am, minor chills but was still able to exercise this morning.

after 3 rounds of interferon this should be a piece of cake

was told b12 injections could help with fatigue.... Anyone else heard that?

 

great forum homely one day closer to being cured



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Thanks so much!



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All blessings


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blankstareThank you for the nice welcome! 

 



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All blessings
KPB


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TerriT,

I am now on Harvoni day 15,  I am taking my pill at 5:00pm each night.  Day 5 was my worst day, I woke up that morning after a 9 hour sleep feeling very nauseated, and with a bad headache.  Now, I believe water is my best friend, I treat water like it was prescribed.  I make sure I drink a 16oz bottle of water every 4 hrs. and I even place a water bottle on my night stand and every time I awake in the night I drink, I have not been sick since.

good luck



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SOT 06-01-2015,  VL - 1088513 , LOG - 6.04, Genotype - 1A , Fibrosis -  F3 , 59 yr. old male ,

VL - < 15 ,  LOG - < 1.18, @ 3 week blood test 

EOT 07-27-2015,  VL -   UND  ,   @ 9 week blood test  , 

NEXT BLOOD TEST - 08-01-2016



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Hi Meems, welcome aboard, this is an incredibly supportive group. I am starting wk. 3 today. My first wk was amazing in that I felt so much better than I had. Week 2 I believe from what I have read, some, like me realized some of the effects of the Anti virals.  I have had an increase in apatite and gained a few lbs., but now starting wk 3 I feel better than last week.  My BP is up, will call Doc today.  Glad you made it here! coolheat aka Marsha  



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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED



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Meems wrote:

This is day 3 for me! I am excited and grateful. Hard to get to sleep but feel oddly refreshed on just a few hours sleep. Interested in any and all comments.


 Hi there Meems, welcome to the forum!

Congrats on starting your Harvoni treatment and I hope you continue to feel good!   Please feel free to join in with any of the discussion threads, this is a very friendly group. 

Do keep in touch, and best of luck!  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Hi Terri,

Good to hear how well your Harvoni treatment is going, and sounds like you`re on top of the side effects.  Make sure you keep yourself well hydrated by drinking enough water, that can help a lot with the headaches.

Thanks for the update and best of luck...not much longer to go now!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Well, I am now starting week 10.  Three weeks to go. I have had some mild headaches (like maybe 4).  The only thing I noticed is that I seem to want to eat more than usual but even that is not out of control.  I feel very fortunate.  Now, if I just show virus free...........wooohoooooo!

 



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This is day 3 for me! I am excited and grateful. Hard to get to sleep but feel oddly refreshed on just a few hours sleep. Interested in any and all comments.


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All blessings


Guru

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Hi there, Terri, welcome to the forum!

The side effects from Harvoni do seem to vary quite a lot from person to person but they`re likely to ease up once your body has got more used to the meds.  

You`re not alone in having Hep C for so long, many of us here had been infected for decades before we did our treatment and finally cleared the virus.  Luckily Hep C progresses very slowly for the majority of people.  I must have been infected for over 40 years too when I did my treatment 4 years ago and thankfully it was successful, and I`m sure yours will be too! 

As for when the best time to take your pill, some people find it`s better to take it in the morning although it might best to take it at a time that best suits your routine so you`re less likely to forget to take it, as you have a stressful job.   Here`s a previous discussion on when to take the pills, you might find it interesting to read...

http://hepcfriends.activeboard.com/t59478020/when-do-you-take-your-harvoni/

Very best of luck to you, do keep in touch!



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Congratulatons to you fourlocos...I hope I have the same good fortune!.



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Some of the best sleep I had was on Harvoni.  I know others had trouble sleeping.  But I had the same experience as you.  I slept two hours and it felt like I had a full night of sleep.  It was a refreshed feeling.  Then again many mornings it took me longer to get going because I did feel drugged.  I finished my 8 week treatment back on Feb 3rd.



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GT 1b first time treating with Harvoni 8 weeks.  4 weeks UND 8 week UND.  8 weeks after treatment UND.

 12 weeks SVR.  Reached 24 weeks SVR!



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Greetings all:  I took my first pill Friday night 4/10/15.  So far so good.  I was unsure whether to take it in the am or pm.   I don't know if side effects are cumulative but I guess I'll find out.  I felt it come on about 45 minutes after taking the pill.  Then I got cold and very sleepy.  Sleep is strange.  I wake up feeling like I've been in a dead sleep for hours only to find out it's only been an hour or so.  The rest of the night is normal.  I hope things stay mellow.  I have a stressful job. 

I may be wrong but I think I may have had this for 40+ years.  I'm not sure how that can be possible and I'm still here.   Best of luck to all my fellow "travelers".



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