Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> Post Treatment -> Und during Harvoni but unquant (
Post Info TOPIC: Und during Harvoni but unquant (
Heidilynn


Member

Status: Offline
Posts: 8
Date:
RE: Und during Harvoni but unquant (
Permalink  
 

1 mo post treatment undetectable. Yay!,



__________________

Heidi

1A dx 2001; had int+ riba  relapsed

12 wk Harvoni Unquant  EOT even though undetect during tx

waiting for 4 wk viral load

54 yo married fe  writer, English prof, retired RDH, 2 grown children

 
FeelingGood


Member

Status: Offline
Posts: 29
Date:
Permalink  
 

I have kaiser and my results for EOT should be here by Friday.  I was undetected at 8.5 weeks and hoping for the best.  There is another poster here who was undetected at 8 weeks and detectable <20 at eot.  She is a Kaiser patient as well.  Could it be the lab they are using?



__________________
angelseven


Senior Member

Status: Offline
Posts: 230
Date:
Permalink  
 

This same thing happened to a couple other people and they are now SVR, don't worry!!!
Heidilynn wrote:

feeling nervous. During my 12 week harvoni I was undetected but last day my lab came back as u quantifiable (<20) but not undetected. Doc said that happens sometimes and that many studies count unquantifiable as undetectable. Just freaking out because it sounds like numbers are increasing. Anyone else had this happen? Will get new labs 4wks post tx

 



__________________

62 year old female      1a, f1-2, had virus 40 years   STARTED HARVONI for 8 weeks 11/19/14, relapsed one month after tx  ended in 1/15.  Fibrosis level was only .5 after fibroscan 12/15. Began treatment with Mavyret on January 20, 2018 for 16 weeks!  Ending May 12.
Heidilynn


Member

Status: Offline
Posts: 8
Date:
Permalink  
 

Thanks. I requested my doc mail me the physical report. 



__________________

Heidi

1A dx 2001; had int+ riba  relapsed

12 wk Harvoni Unquant  EOT even though undetect during tx

waiting for 4 wk viral load

54 yo married fe  writer, English prof, retired RDH, 2 grown children

 
Bills


Guru

Status: Offline
Posts: 648
Date:
Permalink  
 

Hi  Heidi

I'm one of those people who will always look for another way.  As Tig said you can back door your hep c doc and get another doctor to get the test. Your insurance should allow this if say your being treated for something else and he wants to check blood himself.

Just be sure you are asking for the right test  My regular MD made a mistake and wrote a requisition for  the simple test that shows your Positive for hep C ( been exposed to the virus ) So it was a waste of time for me with him. I had to show him a requisition for the quantification test so he could write it properly. By the time I got his result i got my result from my Hep c doc anyway. If you don't know what that test is maybe someone here can guide you. I'm only an expert in tricking the system not as knowledgeable in the technical data  LOL

But try not to worry as they are saying no spikes in the liver numbers is a very good indication nothing is going on

BillS

 

 

 



__________________

Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Heidi,

I wouldn't be concerned but you can demand a copy of your Lab result. This legally belongs to you. The report should state the LLOQ for whatever PCR test they are using.

Or, relax and go with the flow. You haven't relapsed. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Heidi,

That's ridiculous! It seems apparent that there's something questionable about the results. To my knowledge there is no test currently available that has a LLOQ (Lowest Level of Quantification) listed as <20. It's an odd number. Is it possible to request a test from your Primary Care doctor? I have seen them have a bit more understanding when their long time patients need help like this. Some specialists seem too preoccupied to veer from their set course.

Aside from that, I think you should keep positive and hold on to the belief that all will be right. The time will go by fast and your final test will be upon you before you know it. In the meantime, rest easy knowing that your ALT/AST show no indication of relapse!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Heidilynn


Member

Status: Offline
Posts: 8
Date:
Permalink  
 

My doc won't redo the lab. She is making me wait for the 4 week post tx.   %^&(*^&%%$



__________________

Heidi

1A dx 2001; had int+ riba  relapsed

12 wk Harvoni Unquant  EOT even though undetect during tx

waiting for 4 wk viral load

54 yo married fe  writer, English prof, retired RDH, 2 grown children

 
Heidilynn


Member

Status: Offline
Posts: 8
Date:
Permalink  
 

Yep same lab. I didn't see the paperwork. Doc just calls and reports because apparently Kaiser can't legally post those numbers for me. She said unquantifiable means <20. 



__________________

Heidi

1A dx 2001; had int+ riba  relapsed

12 wk Harvoni Unquant  EOT even though undetect during tx

waiting for 4 wk viral load

54 yo married fe  writer, English prof, retired RDH, 2 grown children

 
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi Heidilynn,

I can understand your confusion, as that's a weird result. Is it the same Lab where your other tests were done?

Unquantifiable <20 is very odd- I don't know any tests that have a LLOQ of 20.

I suspect it's a Lab error, considering your ALT is only 25. I wouldn't be concerned, but call your doctor. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Heidilynn


Member

Status: Offline
Posts: 8
Date:
Permalink  
 

Thank you. It feels great to interact with such knowledgable people who can help us advocate four ourselves. I appreciate it. 



__________________

Heidi

1A dx 2001; had int+ riba  relapsed

12 wk Harvoni Unquant  EOT even though undetect during tx

waiting for 4 wk viral load

54 yo married fe  writer, English prof, retired RDH, 2 grown children

 
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Heidi,

Do your best to relax and get ahold of your doctor tomorrow. The rest of your numbers are excellent! We're always here, so let us know what you find out tomorrow. Hang in there!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Heidilynn


Member

Status: Offline
Posts: 8
Date:
Permalink  
 

Thanks Tig

 

Normal enzymes: ast 17, alt 25, all phosphate 71, albumin 4.5, bilirubin .6

 

ill call doc tomorrow. I need peace of mind



__________________

Heidi

1A dx 2001; had int+ riba  relapsed

12 wk Harvoni Unquant  EOT even though undetect during tx

waiting for 4 wk viral load

54 yo married fe  writer, English prof, retired RDH, 2 grown children

 
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Hi Heidilynn,

I would request an immediate repeat of your viral load. It would be very unusual to be undetected throughout treatment with Harvoni and suddenly be detected, especially since it's unquantifiable at EOT. I have seen that with previous protocols, but not the new oral DAA's. The detected return could be false and I'd want to confirm it. It would put your mind at ease, big time. Call your doctor tomorrow and request it. Explain your anxiety and nervousness and tell him/her that you don't want to wait another month to find out. Did you have any other tests, like your ALT/AST done at the same time? Post them if you have them.  Let us know and good luck.



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Heidilynn


Member

Status: Offline
Posts: 8
Date:
Permalink  
 

feeling nervous. During my 12 week harvoni I was undetected but last day my lab came back as u quantifiable (<20) but not undetected. Doc said that happens sometimes and that many studies count unquantifiable as undetectable. Just freaking out because it sounds like numbers are increasing. Anyone else had this happen? Will get new labs 4wks post tx



__________________

Heidi

1A dx 2001; had int+ riba  relapsed

12 wk Harvoni Unquant  EOT even though undetect during tx

waiting for 4 wk viral load

54 yo married fe  writer, English prof, retired RDH, 2 grown children

 
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> Post Treatment -> Und during Harvoni but unquant (
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.