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Post Info TOPIC: 8 week EOT question's


Guru

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RE: 8 week EOT question's
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Hi William, so sorry you`ve been in hospital with bleeding varices, that must have been a horrible shock and very unpleasant.  The banding should keep the bleeding from happening again, but it must have left you feeling very drained. 

Like Matt, I was surprised that you`re still having problems with varices at this point, and after clearing the virus, but hopefully you`ll gradually see some improvement in liver function. 

Great news that you`re still undetected, I know you`ve been waiting to hear and that must be very reassuring.

Take good care of yourself, and do keep in touch and let us know how you are.  We`re here for you any time!



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

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Hey Basser

Sorry to read of your unscheduled trip to the hospital, hopefully all will improve as time passes. Can't help but to wonder why you would have this at this time after being 6 month EOT plus your 12 or 24 weeks of treatment . One would think time much time would have diminished your odds of it from happening.  Any thoughts?

matt 



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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hi all.finally got my 6month px VL.all good undetected.the thing is being f4 am having probs with liver.was taken in hospital last tuesday.had varices bleed in me.was bleeding from mouth and when opening bowels.am a bit fed up as i was doing quite well.has knocked me back.they banded varices.and bleeding stopped within a day or two.am at home now glad to get back to some peace and quite.hopefully will get a full nights sleep.am seeing surgery team about liver transplant.do know that if i didnt have cirrohsis there would be a good chanch of getting a goodlife.will just take it easy a day at a time.great thing is being hep c free.there is a really great chance of getting my mojo back.am going to have a good rest eat healthly and see how i feel in a weeks time.         good health to you all                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                  william



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 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16



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Thanks Liam, and I understand about the different reference ranges. 

So those are looking fine, and you`ve already had an `undetected` vl result at 4 weeks post EOT, so I`m sure you have nothing to worry about.

I think most of us expect to feel a lot better very soon after finishing tx but in many cases it just doesn`t happen that quickly.  I know it`s very frustrating, and you`ll be so relieved to reach that 12 week point and find out for certain!  Try to relax as best you can and I hope  you start noticing an improvement in your energy levels soon. 

Keep us posted, and take care! 

Ps - Hope you`re enjoying your stay in Thailand!  smile

 



-- Edited by Cinnamon Girl on Monday 15th of June 2015 05:12:54 PM

__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Thanks Tig appreciate your words.'

take care

Liam



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GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!



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Hi Jill,

THankyou for your reply, my ALT is 44 the reference range is 30-65 U/L and my AST is 23 reference range 30-65 U/L

I am currently in Thailand where I got these blood tests done, they use a different reference range to Australia.

Thanks for your words of advise

cheers

Liam 



__________________

GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!



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HI Liam, good to hear from you.

I agree with Tig that you just need to give yourself more time, it`s quite usual to be feeling fatigue and low energy at only 8 weeks post tx.  Your platelets are on the low side but that isn`t something that would  be causing you to feel tired, I`m sure you`re just still in the recovery phase.  24 weeks on such powerful drugs is a long time, and the effects from ribavirin are known to hang on, in fact it takes about 6 months to clear from your system.

If your bloods are within normal levels then I`d be very surprised if you weren`t still undetected at this point.  Do you know what your ALT and AST levels are?

I know what an anxious time it is while waiting for such an important result as your 12 week post tx viral load, but do try not to worry, I`m sure you`ll be fine! 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 

Tig


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The fatigue is probably just a post treatment effect that will improve with time. Your platelets aren't something I would be concerned with. I have seen them at half that number and people do fine. It messes up your clotting ability when they get too low, but you shouldn't have any problems at your level. Even if they drop significantly, there are many things that can be done to correct it if needed. Given time, you should see everything normalize, I wouldn't stress over your numbers.

Post treatment recovery can take weeks or months, especially since you were on Ribavirin. It took me between 6-12 months to finally get my strength back and Riba is well known for taking its sweet time to clear.  I doubt seriously that you're detected, the odds are remote at best. With your liver profile being within normal limits or close, tells me you have no inflammatory processes going on in the liver. Do your best to relax and know that pre test anxiety is normal. We all experienced that and can relate to how you're feeling. Don't worry buddy, it's going to be fine!

 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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I just had my 8 week EOT bloods done excluding viral load test. All are normal except my platelets which are 139( at 4 weeks EOT they were 151) the range is 140-440 and my GGT is at 12 range 15-30.

Would this be the cause of my tiredness that seems to hit me every afternoon or am I just still detoxing from 24 weeks of riba/sol? I actually feel much the same as I did before I started treatment.

Also was wondering is it possible to have normal bloods and still be detected.? 

I know I am suppose to relax and start healing after treatment but the wait for 12 week bloods is proving a very anxious time for me. I guess I just expected to have more energy by now.

Thanks all

Liam 

 



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GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!

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