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Post Info TOPIC: Success but curious
What would you do? [0 vote(s)]

Dump it down the toliet
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Burn it
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Brian1412


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RE: Success but curious
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It isnt such a stretch to stick with yhe protocol. Set by manufacture. And or the fda:  look for assistance . It is out there. If your dr says 3cycles.  That is whst needs to be done



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Brian1412


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It is my hope there is nobody considering cadhing in 401k. Or mortaging their house to get or continuing. Trestment. Dont do it.!!!!!!!!! Dont take a loan. Anything like that. It is not necessary.. if you find you or a loved is in that position. Stop them. It isnt neccesary. The money to treat is attainable more so by the day.

There. Are those here around when this started for me. I am the second perdon to break thru the money wall and the heslth system i was in has now has had 800 people thru treatment... the money is ouy there and it will grow. They have finally at the point thst ultimately. Less ecpensive to treat for the cure rather than wsit and treat...

Dont use retirement funds your bank account. Etc.

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Brian1412


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Bingo !!! If your having. Issues with insurance or Medicare. Call you congressman!

Especislly if you start your cylcle and some crat decides you cant go to next round fue to lack of funds.

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Brian1412


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Why didnt you immediately send it back if it wasnt yours? Thst means someone someone is missing their meds!!!!



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Brian1412


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What does the federal goverment have to do with it?



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Gracie


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It depends on genotype, fibrosis stage, previous treatment etc. Can't believe you had to cash in your 401k. Did you try gilead support path?  Other have been refused harvoni have managed to get on the Vic Pak which has great results as well. If your paying $32,000 for each month, it's quite a decision to add the third month.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
sweetpea


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Started Harvoni 6/27 2015.Insurance wouldn`t pay.Cashed in my 401k.Pharmacy tried to charge 66,000.00 for 28 days .used acoupon it came down to 32,000.00.Geno type 1a vl 20000000.Feel great.Dr. only wanted me to do 8 weeks.Begged for extra 4 weeks Day 26 Feel great no side affects.The true dosage is 12 weeks treatmentfor better results.Its not the treatment that is bad,its the system treating us bad.Take the full round,dont miss aday

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Robin Holman
Gracie


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I had one complete unopened box of rebetron left from my first treatment, still in the wrapper. They wouldn't take it back. Said no way to know how I handled it, where I stored it etc. They would never be allowed to give it to somebody else, at least in Canada. While most people can be trusted, when meds are this powerful and expensive, the chances it wasn't handled properly would be too great to risk it. 

I asked her about using the box, and she said I could if I wanted to. That it wouldn't hurt me, although I think it could have hurt me, as we now see the lasting effects of these strong meds, and it was Inteferon and RIBA.

It's a shame, as somebody could use this, for sure. Not sure how you could get it to somebody who could use it though. I would not be able to throw it out, burn it or anything like that. I'd probably keep it and hope to be able to use / donate it to someone someday.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Tig


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Hey Luke,

Welcome to the forum from me too! You will meet a lot of caring and knowledgeable friends here, that I know! We're all nothing but concerned about your safety and success in achieving SVR and Harvoni is a golden bullet without a doubt.

I agree with Grouper, try hard to find an outlet for that extra bottle. Were I in your shoes, I'd ask your doctor to give consent to use the extra bottle. It only adds to your odds of success, even if it's slight. I wouldn't be able to destroy something so valuable. Certainly not before I had that EOT +12 undetected (SVR12) report in hand. 

Whatever you choose to do, congratulations on fighting for treatment and getting it done! SVR is sweet!!! Good luck...



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Groupergetter


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Lukeone, my apologies if I came off short to a first time poster on the forum.  Just seemed a bit odd that someone's first post would be a poll about burning or flushing a bottle of Harvoni. I found this link: http://www.ncsl.org/research/health/state-prescription-drug-return-reuse-and-recycling.aspx  If you scroll down it gives state by state prescription drug return policy.  There are lot's of wonderful and knowledgeable people here, always willing to share.  Hoping you find SVR.  Be well

 

In looking at the dates on the laws in the link above I suspect some may have changed (the dates in many cases aren't current.)

 



-- Edited by Groupergetter on Wednesday 17th of June 2015 06:05:26 AM

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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Gracie


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Very strict laws regarding dispensed medicines. They would not be allowed to take it back, even unopened. Same for all prescribed medicines. Too much at stake I'm afraid. What a waste, but truthfully, the cost to make that bottle is not even in the same galaxy as what they sell it for.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Groupergetter


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Luke, did you open the meds knowing that they weren't going to be used by you?  Did you contact the pharmacy that sent them?  Perhaps you should contact your specialist?  I suspect there are physicians out there that would find a use for this.



-- Edited by Groupergetter on Wednesday 17th of June 2015 04:33:45 AM

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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
lukeone


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Why fishy? My primary said it would be destroyed if turned in.  My point in posting was to bring awareness to the waste of resources in the Federal Government.

 

Thanx



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Kirby Horn
Groupergetter


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Luke, call your physician and tell him/her what happened, they will make use of the medicine.  Hope your 4 and 12 week eot labs come back undetected.  Burn it? Flush it?  I don't think so. This sounds fishy to me.   Take care



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
lukeone


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Greetings,

I the new guy, and I began the new Harvoni treatment on 03/21/2015 and as of today there is no, ZERO virus detected in my labs.  I am so happy, but let me say it was a difficult path to success.  The involvement of my Congressman and my Senator were required to get my medical provider and pharmacy to finally get the treatment.  I was only in stage one, and their so called protocol required me to be sicker.  I said to hell with that, and fought and won.  There is a strange occurrence though is totally unbelievable.  Because of my early stage genome 1, my provider set me up for the sixty day treatment which as I mentioned was successful.  Low and behold the pharmacy sent a third months supply by accident.  What is so ironic is I have to dispose of, or destroy the $30,000.00, thirty day supply, of this miracle medicine they sent me by mistake.  They can't take it back once it leaves their facility.  What a waste



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Kirby Horn
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