Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> Post Treatment -> SVR 12
Post Info TOPIC: SVR 12
Tig


Admin

Status: Offline
Posts: 9281
Date:
RE: SVR 12
Permalink  
 

Hi Perry,

So good to hear from you old friend! I'm glad you got the Happy Birthday message too. Sorry your son (& yourself) had to go through such a health scare. I'm glad he's doing better and hope that's behind you both.

Your ability to keep moving forward has always amazed me, as well as the rest of the gang here. You run more each week than I have ran in 15 years! I'm not sure but I think our mate, Perry is part machine, lol! He continued to run marathons while in the throws of a lengthy Interferon and Ribavirin treatment regimen that began two years ago. I believe he has some sort of top secret fuel cell powering his legs and feet! Your secret is safe with us Perry.

Please keep in touch. We've got some incredible people here now, many still check in routinely from both of our treatment time frames. The newest protocols are so different and effective now. Take a minute when you have time to look at the latest information. Our Warriors are really slaying their Dragon's with merciless abandon! There has been some fabulous advances. Check it out!

Take care my friend, it's so nice to see you succeeding!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi all. Yes its been a while and just popped in and saw a birthday wish from Tig from a couple of days ago. Another year and must be about 18 months since finishing tx - 62 now and still enjoying life. the last few months have been a bit trying with a lot of life events happening around me but am now coming up for breath - health and running have enabled me to get through it all so onwards and upwards again - 1 foot in front of the other. Still averaging over 100 miles a week and not to far off 5000 miles running for the year. Was really hoping to be back in the states this year but with everything it will be definitely next year with a lot of running. Am continuing with marathons at present with the odd 80 - 100 miler thrown in so a lot of fun being had. Still planning length of NZ run and a biggie in the states for next year. One of the life events was my 23 year old being in and out of hospital with a nasty reaction to prescribed meds which regressed him a long way for about 2 months ( neuroleptic maligmant syndrome) but he has come out of it now - it was long sleepness nights for a while. Anyway that's enough rambling from me. Hope all are well - or as well as can be -I think of you all often. Take care and keep smiling.



__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

I hope so ari-anna. Christchurch is my old home town and my dear old mum still lives in Centaurus rd - not far from where the old skating rink was. Need to dothe Chch marathon sometime so who knows. Take care and I'm sure w will catch up at some stage

 



__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Ari-anna


Veteran Member

Status: Offline
Posts: 78
Date:
Permalink  
 

Hmmm Perry, all North Island marathons you are planning - I'm from the Mainland, it's the Christchurch Marathon on 5 June.

Those are some very beautiful places you are running in - all going well I am hoping to do some more interesting/scenic events in the future. It's possible I may make a Nth Is one as I have a friend in Wellington who walks in half marathons.

Maybe one day we will both be at the same event!

 



__________________

Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi Ari - Anna. Whats youre half youre planning? I,m doing triple peaks in Hawkes bay sat week, then Waitarere Full marathon April, Palmerston Full in may and wellington in June.



__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Ari-anna


Veteran Member

Status: Offline
Posts: 78
Date:
Permalink  
 

Hi Perry,

inspiring story, esp all your running during treatment. I'm currently training to walk my first half marathon 5 June. Basically had to put dreams on hold during treatment - however I am up and about now with two 10k walks under my belt and a 14k walk coming up 20 March.

It's really helpful for me to hear about other people out there keeping fit.

Kind regards

Ari



__________________

Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

you boring us? Never, Perry. Keep writing us and running. And I will keep your son in my prayers. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

 Once again you blow my mind Perry. I'm still convinced you are a superhuman of some type. You are certainly an inspiration to us and I always enjoy your progress reports. Keep up the great work. I would say "sky is the limit" but for you I think the "stars" would be more fitting. smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Hey Perry,

It's great to hear from you old friend!! I see you're still putting one foot in front of the other and I still marvel at how you were able to do it all the way through treatment. It's just an incredible story. Everyone here needs to read some of Perry's accomplishments during treatment. It just amazed us all and continues to bring utter respect for his determination. He was and always will be an inspiration. I'm going to place a link to one of his threads that was most active during his treatment, hope you don't mind Perry, but you're kind of a folk hero around here!

I have little doubt that you will continue on to achieve everything you set out to do. Telling you to take it easy during treatment didn't seem to slow you down much. Perhaps you ran a few half marathons instead of full ones. All I can say is wow.... Good luck to you and your son!

http://hepcfriends.activeboard.com/t59065612/started-treatment/



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hello Perry,

You are truly amazing! As Gracie said an inspiration to all of us!

A wonderful example that life beyond SVR can be whatever we care to make it.

For me a 20 mile bike ride is a huge ordeal.

I'll think of ya on my next walk and try to convince myself to go that extra mile ... (I can't even fathom 100 miles ... LOL).

No need to tell you to keep up the great work ... you're leading the pack ... 

I enjoy hearing of your exploits please keep us tuned in on how they go ... we'll never tire of hearing of such heart warming successes. smile

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Gracie


Guru

Status: Offline
Posts: 618
Date:
Permalink  
 

Perry... You are one amazing man! I ran 6km yesterday, training for a 10k. Lol. That would be just a little warm up for you. What an inspiration you are to us all!



__________________
  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi all. Thought it was high time I called in to say hi and let you know life carries on being good. Running ( of course!!!) is still a big part of my life and continue to do 120 + mile weeks - have recently done a 100 miler around our wonderful Lake Taupo which took a bit longer than expected but still managed in 21 and a half hours. Have a 47 km run in 2 weeks, then a few marathons with a 24 hour later in the year. My big USA run looks as though it may be next year now due to circumstances - my high needs boy ( soon to be 23 ) who has a partial trisomy 13 hopefully will be in longterm care which will be great for him by the end of the year . However I am hoping to get to Phoenix at the end of the year for a 6 day race where I would be planning on reaching 500 + miles in the allotted time. Sorry to bore you all with the running exploits. Hope all are as well as you can be and getting on and enjoying life. Take care all.

__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Greg D


Senior Member

Status: Offline
Posts: 159
Date:
Permalink  
 

Thanks for checking in Perry. Glad to hear you are well and loving life. Good luck with the chops and all the very best to you and yours in 2016!



__________________

60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Good to hear from you Perry! Sounds to me like you have continued to excel and the SVR news never grows old. Having amassed a 6200 mile total is a staggering number. How you were able to do that while suffering through an Interferon and Riba regimen is beyond me. I'm still expecting to see you pop out of a phone booth with a big S on your chest!

All the best to you this coming new year. Good luck on your upcoming runs, you will continue to inspire all that read your journey!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Congrats Robin...happy holidays.

 

I do hope Perry posts his travels thru the US when it occurs as it would be awesome to meet, cheer him on. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi all - hope all are as well as can be expected and battling through the day to day issues of treatment or getting back on with life. I will consider this year a good year as I reached SVR 12 - the 24 weeks through treatment was a battle but as II do with running long distances I went into it expecting anything and everuthing so wasn't surprised as well as being determined to get on with what running I could and this certainly helped - I just looked at my log of miles completed this year and currently stand at 6200 miles so happy with that. Have also been battling with getting my teeth sorted - they were finaly killed after the treatment - and now have top plate in with the bottom few left being pulled in January and bottom plate being put in. This should make a huge difference to health. Apart from that am feeling really great and loving life. Still got the goal of the big run next year and will really increase mileage early in the year. Anyway take as much care of yourselves as possible during the season and may 2016 bring all that you wish.

__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Congratulations Robin!!! What wonderful news, woohoo! It has been our pleasure to stand with you as you progressed. I hope you drop by and keep us updated. This is quite a gift you can put under your tree this year. Enjoy your Hep free New Year!

HI FIVE!!!

image.jpeg



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Redbird29


Veteran Member

Status: Offline
Posts: 76
Date:
Permalink  
 

Hello Everyone -

It has been a bit since I have been here and I wanted to check in with the news that I got my labs back yesterday and am SVR12! 

I am very grateful for the support of everyone has given and I wish you all joy and blessings on this upcoming holiday season.

Peace, Love, Happiness and Health ~ Robin



__________________

GT 1A Tx Naive Harvoni 8 WK

SOT 6/25/15 VL 468,000 AST 44 ALT 56 

EOT 8/25/15 VL - UND AST 21 ALT 30

ONE YEAR POST TX - UND AST 20 ALT 22
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Hello again Perry.

 You are like the Energizer bunny. You just keep going, and going, and...

It's always nice to hear you are doing so good and that's great you'll be coming to the USA. 6000 miles... = Awesome!

Keep it up Mr Superhuman! biggrin



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Hi Perry,

Thanks for sharing your great news! I always enjoy seeing your name on the list of new messages. You continue to be an inspiration to us all. I'm looking forward to your run across the country next year. How about I run from the Atlantic to the Pacific with you? Yeah, I think Atlantic Ave. meets Pacific St. about one kilometer from the start line. I could probably make it that far, ha, ha! Seriously, you can count on all of us following your progress across the country. I would love the opportunity to meet you along the way. Maybe we can make that work. It would be an honor to see you.

The lab values are excellent, but I expect nothing but good news from you. Just keep putting one foot in front of the other. It has worked well for you the entire time I've known you. No reason to change that winning routine now! Good luck my friend...



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi all - a quick update - just been and seen specialist as a followup from last bloodtests - all back in range - ALT - 17, AST - 26, Ferritin - 225 ( went from 704 to 1057) so all good. Our hospital is getting a fibroscan in the next couple of months so will be sent in for a followup soon after. All going well USA next year from August to November for a 6000 mile run - should be fun!!!!!!

__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Hi Perry,

I missed it too! Glad to hear everything continues to improve. I don't know how you keep up the pace you do (no pun intended). Needless to say I'm always impressed!

In a perfect treatment regimen, they would include post treatment dental care. Especially for those that dealt with all of the after effects from Interferon. I don't understand why they make dental care so expensive and difficult to obtain. It should be part of every healthcare policy and offer more than $1000 year maximums. That could be fuel for an entirely new discussion. I wish you luck getting that taken care of. Maybe you could find a sponsor???biggrin

Stay in touch and best of luck in your travels!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Perry...sorry, we overlooked your latest update!

It`s wonderful that you`re still going from strength to strength, you continue to amaze us all with your energy, commitment, and endurance!  I`m not sure how you do it, but I`m certainly very happy for you.

I`m with you on the teeth issues, I`m desperately trying to hang on to the ones I`ve got left!

Let us know how the results turn out from your next labs.  We`re always pleased to hear from you, you give us all hope and inspiration!

I`m off to have a run up and down the garden path... bye for now!  

 

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi all - thought it was time to drop in and say hi. Almost 6 months since finishing tx. I continue to run and still averaging about 120 miles per week. In these last 6 months I,ve done 3 marathons ( 3hrs 37, 3 hrs 46, 3hrs 35 ) , a 48 hr run ( 200 miles) and 133 km ( about 80 miles) run so with that in mind I,ve bounced back pretty wekk from the gruelling 6 months of tx. Go in for next iron level test next week and see specialist on 17th Nov. It will be interesting to see if they have come down as they were double what they should be at end of tx. Also still having major teeth probs so its getting close to time to get what I,ve got left pulled - just have to win lotto first. Apart from that am getting right into life and planning next years big run. Will drop in everynow and again. take care all and look after yourselfs as much as you can,

__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

 Perry, you are amazing. And inspirational to me during my physical rehab from injury. If I can find anywhere near the determination you have then the sky's the limit. Keep up the awesome work and the encouraging reports.



Attachments
__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Okay Perry, come clean, what planet are you from? You have shown us unlimited energy when you should have been in bed suffering the fatigue we all experienced. Not you though, you took that, turned it back on your attacker and kept running, literally! I'm going to give up wondering where you find the strength to do what you do. I'll accept the fact that you're one of a kind and be grateful I have come to know you. You are an example of something special indeed!

I'll start training, just in case. But I must admit, the only place I run to, are the Bank and the bathroom. It has been 15 years since I ran a mile or more, so a few kilometers may be asking a lot, lol! I imagine you could hop on one leg faster than I can run on two! Who knows though, you might inspire me! I do have my bike ready to go, just in case...

Keep it up Perry, your travels  and abilities keep us all wondering what's next, not to mention amazed and entertained. Stay safe and keep the updates coming!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi all. Just to let you know I completed the 132 ( bout 82 miles) run yesterday. Started just before midnight Friday night and finished mid-afternoon Saturday - appeox 15 hours on the roads. It was fun , it was hard but I kept smiling. The course was extremely hilly but the area is beautiful. It was a 66.3 km run but I started at the finish , ran to the start, had a coffee then headed back to the finish. The legs are a bit trashed today but they will get better . Its actually hard now to tell whether any of the pain or tiredness is connected to recovery or the running. Probably a bit of both. Bit of a rest now and had better get on with planning next years big adventure. You'll have to start training Tig so you can do a few kms with me. Take care all.

__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi Greg. Yes have read of Terry Fox's journey and he is a hero and incredidably inspirational. a friend of mine has just biked past his statue.



__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Matt Chris


Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hey Perry

Super congrats on your SVR 12, its a beautiful day to run a 12K.

matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
247kath


Member

Status: Offline
Posts: 19
Date:
Permalink  
 

Congratulations on SVR and running for your sons day centre! I applaud you!! I only have 4 and a half days of clinical trial meds left and have been trying to stay active as I've done endurance events for years. I did a 22 k road ride today and am looking forward to getting back to running!! 

You are truly an inspiration:)

Cheers

Kathy



__________________

Treatment naive -Genotype 3a -no fibrosis. Found out in 90's that I had HCV. Started clinical trial June 9/15 Harvoni/ribavirin
Scruffy


Guru

Status: Offline
Posts: 500
Date:
Permalink  
 

WOW thats truly amazing!!!! 

Wishing the best for you and your Son.



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Greg D


Senior Member

Status: Offline
Posts: 159
Date:
Permalink  
 

If I may chime in again Perry. While I am sure of the love and support that you receive is so mutually cherished by you and those who love you, no one can appreciate and truly understand what you are doing like those of us who have endured treatment. You are an extraordinary individual.

Should a day arise where inspiration and strength is needed you may want to read of another runners journey. His name was Terry Fox and he is a Canadian hero.

In my eyes, you are a hero too. Thanks for the inspiration! All the very best to you Perry.

 



__________________

60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 
coolheat


Senior Member

Status: Offline
Posts: 209
Date:
Permalink  
 

Perry, congratulations, I am VERY HAPPY FOR YOU !!!!!!  Runners are the biggest part of our business.  What you are accomplishing is amazing, especially with all you have been through.  Contact Runner Magazine they would love your story.  I'm sure there are a lot of people out there who would be so inspired by your journey. If you were running on a circular track, the legs and hips can get out of sync. a little because of going in circles. Usually they change up direction quite a few times to give the inner or outer leg a break.  We work on some 70 and 80 year old endurance runners, and tons of 60 yr olds.  We haven't had any hep c people, but lots of other physical challenges. Everyone is motivated by those like you who are able to push yourself into what you love through physical endurance.  I was so bad my physical endurance was the car to the store door.

Keep on Trucking



__________________

65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
basser


Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

great news mate.have been following your posts.amazing what you have done while on meds you certainly deserve your all clear.you have worked hard for it.have a great svr free life                                                                                                                                                                                                                                                        william



__________________

 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
Permalink  
 

Congrats Perry on your SVR!  :)  Incredible that you can go at this pace.  You and your family are truly Blessed.    Be well.



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Well done, Perry!!  I`m totally in awe of your achievement, that`s really fantastic!!

You must have incredible strength of mind to have got your fitness level high enough to complete thiis marathon run while still in the process of recovery from treatment.

It`s wonderful that you were able to raise funds in this way for the benefit of your son`s day care centre.  Your family must be very proud of you, and actually so are we!!  

Take care and keep in touch!   



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Hi Perry,

Wow, that's incredible! I don't know how you do it. What a special thing to do in honor of your son! He's got one awesome Dad, you can tell him that for me, but I'm certain he already knows that. Your ability and will to persevere in light of the things you had to go through and must be experiencing still (to some degree), leaves me speechless and that's hard to do! Keep up the important work and continued luck with all of your running!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi all. Just a quick update on my latest running escapade!!!!!! At about 16 weeks EOT it was going to be interesting to see how I went on this - a 48 hour run around our local car racing circuit which is 3 km per loop. It was a fundraiser for my 22 year ols sons day centre he attends ( he has a very interlectual disability). I started at 8am Monday morning and finished 8am Wed morn. I made it to the 200 mile mark so happy with that. There is still recovery to go from the tx but getting there and now have to adjust my eating regime during these kind of events - I found I really need to have more than I used!!!! Now for a bit of rest before I attempt 132 kms in just over 2 weeks - the things I do for fun!!!!! Take care all,

__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Great news Perry. Very happy for you!



-- Edited by wmlj1960 on Saturday 15th of August 2015 03:06:04 PM

__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
MzmiffY


Veteran Member

Status: Offline
Posts: 81
Date:
Permalink  
 

Fantastic news perry! well done!



__________________

42yrs/ f3-f4, gen 1a, 48 wks of Interferon,Ribaviran and Boceprevir. 

VL pre tx-384303, VL @ 4 wks 11095, 8wks- UND.

UND@ EOT, SVR 24!

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Cheers all - thanks for all the kind words. yes Greg there were many times that I had to get my sorry a#@$#@# off the ground and kick it out the door. The so called wall that runners often talk about almost became my friend - there were many times we would meet on my daily outings but I got to the point where it was a " hi - hows it going and see you later!!!". At the end of the day the exercise helped me so much and it is really paying dividends now. I've still got that book to get onto again - there are many interesting chapters!!! take care all.

__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
Permalink  
 

Congratulations Perry, I'm sure this is a huge relief, SVR WOOOO HOOOO Happy for you

__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
dustbear


Senior Member

Status: Offline
Posts: 230
Date:
Permalink  
 

Enjoy the happy dance for many years to come!

So glad for you, you must be relieved!

smile



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Penelope PePod


Senior Member

Status: Offline
Posts: 199
Date:
Permalink  
 

Hi Perry,

Congrats to you - very well done!!!

Penny

( Funny how different people are.  When it's me, I'll drive the two miles to Dairy Queen and get a big gooey sundae; but with strawberries so I can call it a serving of  fruit. biggrin )



__________________

65;  Dx 1997 1a; VL 1.1m; TX naïve; SOT 7/20/15; 12 wks viek/riba 1200mg

09/14/15 draw: Undetected 8 wks into tx

10/12/15 draw: Undetected at EOT

01/05/16 draw: Undetected at E0T+12
Greg D


Senior Member

Status: Offline
Posts: 159
Date:
Permalink  
 

Perry,

This is an amazing new day for you and I'm sure has inspired everyone who has been following your journey. Thinking that just because you seemed to breeze through it, I'm sure there were many many times you had to pick yourself up by the seat of the pants and keep doing what you do. I tip my hat to you Perry, big time.

 



__________________

60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Fantastic result, Perry, big congrats on SVR12!!!

I`d love to say I`m going to celebrate your success with a 10 miler, but I`ll be doing a little dance around the living room instead! 

Very pleased for you, you ran the distance and now you have your reward! 

Thanks for being such an inspiration to us all, enjoy every day of your new Hep C free life!  

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Hey Perry,

Congratulations Perry!! You worked long and hard to get this good news. You also ran all the way from start to finish without stopping! That was an ability you amazed us all with. You maintained a physical regimen most of us can't manage on a good day. I still think you have a big Red Superman tattoo on you somewhere and you've been messing with us the whole time, lol! If not, you should. I couldn't be happier for you mate. I'm a little disappointed though... You should've at least ran a full marathon over this good news. A 10 miler probably didn't even make you sweat, would've killed me! When you decide to make that cross country run here in the US, be sure to let us know. I want to be there to cheer you on! Good luck....

                                                                                                                                             SVR 12....................WOOT!!!!!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Just got results in - YES!!!!!! Bloods back in " normal" range. ALT and AST up a bit at 25 and 41 but I'm sure they fluctuate a bit. Went out and danced around a quite 10 miler. Onward and upward - take care all



__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> Post Treatment -> SVR 12
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.