Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> New Members Area -> New to site
Post Info TOPIC: New to site
mallani


Guru

Status: Offline
Posts: 3398
Date:
RE: New to site
Permalink  
 

'If it ain't broke, don't fix it' might apply to some things, but not chronic HCV.

I never had symptoms but ended up cirrhotic.

Without a proper assessment of your liver by biopsy or Fibroscan you can never know how much damage has been, and will continue to be done. It is truly a silent killer.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
basser


Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

hello patricia. welcome to the site.i was like you geno type 1b.finally achieved svr earlier this year.my vl was simular to yours as well.can understand your thinking if its not broke etc.its good to get as much info as possible.this forum is amine of information.am still learning stuff evertime i sign in. all the best to you                                                                                                                                                                                                            william



__________________

 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16
Matt Chris


Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hello Patricia

Welcome to the forum, you have found a good place with highly informative and correctly motivated people that have your best interest in mind.

Hep-C has been correctly described as the silent killer, because its host has no idea that its slowly degrading its liver and energy levels.

Your timing has been great because for 20 years the patients, doctors and researchers have been trying to find the 1 daily pill cure. It has been a panacea for many of people and now its here.

Please get treatment as soon as possible.

matt    



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

 Hello Patricia.

 Our age, genotype and diagnosis dates are similar. I was diagnosed with HCV in 1994 although I likely had been infected years earlier but was never tested. I did not seek treatment in 94 and was still not seeking treatment in January 2014 because I had no obvious symptoms, but when I was admitted to the hospital at that time for stomach pains they discovered my liver was cirrhotic. So, for me anyway, waiting for symptoms before seeking treatment proved not to be in my best interest. Your liver enzyme test results will generally show high if you have significant liver inflammation, but a fibrosis assessment is the most accurate way of knowing the condition of your liver. Just saying that a fibrosis assessment may be worth re-thinking about, just for peace of mind if for no other reason.

 

 OK, enough said about that. biggrin I would like to welcome you to the forum. We have a very knowledgeable and helpful bunch here who are willing to help you in any way we can. I, for one, am very grateful to have found this group in January 2014. It was suggested to me to get educated about my illness and the solution for getting rid of it and to be my own advocate. I did that as a result of this forum and I'm very thankful that I did. If you have any questions then feel free to ask. Have a look around and if you need a definition for the abbreviations used often, like I did, a definition list can be found here.

There will be other members along to welcome you also so have a seat, kick your shoes off and make yourself at home. We're glad you're here! smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Triciayellow


Newbie

Status: Offline
Posts: 2
Date:
Permalink  
 

Thanks for getting back to me Ragdoll. Not seeking treatment. My feeling is, if it ain't broke, don't fix it.  I have no symptoms nor have I ever....but good to know about the Harvoni for future



__________________
RAGDOLL


Senior Member

Status: Offline
Posts: 123
Date:
Permalink  
 

Hi Patricia... I was diagnoised in 1994  1b  and finished V-Pak 12 weeks No Riba, in January 2015. . I was in Clinical Trial and was blessed not to pay for the treatment... It was any easy treatment and I really did not have side effects.  Good luck with your journey and welcome.  



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi Patricia,

Welcome. Geno 1b is fairly uncommon in the USA, but it has a slightly better chance of SVR than the Geno 1a's.

Your Viral Load is moderate. I was a Geno 1b as well and had a similar VL.

Are you seeking treatment? Harvoni and V.Pak are excellent options for you.

Ask your doctor for a liver fibrosis assessment (by biopsy or Fibroscan) as this is very useful in obtaining access to treatments. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Triciayellow


Newbie

Status: Offline
Posts: 2
Date:
Permalink  
 

Hi guys, I was diagnosed in 1997 with hep c. I have never had treatment. Just got some results back.... I am genotype 1b. My viral load is 939,000 IU/mL.  Can anyone tell me if this is high/low?   Thanks guys. Great site



__________________
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> New Members Area -> New to site
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.