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Hep C Discussion Forum -> Post Treatment -> EOT + 3 years bloods
Post Info TOPIC: EOT + 3 years bloods
maddie


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RE: EOT + 3 years bloods
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Continued great news, Malclom!  Wish the neuropathy would resolve itself for you, but so happy to read all other results.

Maddie



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Dx. 2005-liver bx.: stg 2/gr 1. at that time  - GT 1a multiple transfusions in 1981.  Started Sovaldi and Olysio 1/16/14  (No prior treatments) Q80K present.  UND week 4,8 and at EOT.   UND at wk 4EOT, Und at wk 8EOT  SVR 12!!!..SVR 24 :-)
dustbear


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I'm very happy for you Malcolm, altho a lot of what you said is over my head!

I am very interested in your comment about peripheral neuropathy, and as well, Bubble's comment "my Doc says everyone complains about neuropathy."

I have had numbness in my toes and fingertips depending on my activities. Near the end of tx, my feet were numb every time I got out of bed in the morning and also sitting with feet up on the coffee table.  Currently, my toes go numb when I exercise and fingertips go numb when driving the car.  Is it HCV related or the drugs I took? that being riba/inter/boceprevir.



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Shadowfax


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Great news. Thank you for sharing!

As mentioned you give hope to so many of us.



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Jaded


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Excellent news...a remarkable reversal. Platelets at 253k are amazing...definitely non-cirrhotic. I'm very happy for you.

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64 year old EOT 10-28-15,SVR24 April 21 2016  ALT-12/AST-23 June '19 - fibroscan 6.9 F-0 July '19
mallani


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Thanks all!

Syd, my bilirubin has always been normal. It has ranged from 7 to 15. Currently 7 umol/L. Albumin has always been normal and has ranged between 36 to 44. Currently 44g/L. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Ari-anna


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That's wonderful news Malcolm, I am very happy for you. It's also very encouraging for those of us with similar issues to see your progress. smile

Warm regards

Ari

ps, if any needs/wants to take Vitamin B12 I have been using sublingual drops for the past year and they work. As I have had a bowel resection it is essential I take Vit B12 and initially I had 3 mthly injections. Not liking B12 spiking and then dropping over time till it was so low I was really tied before getting the next injection and it spiking again I checked out the drops. My Dr keeps up regular blood tests to make sure and so far it's all a-ok 



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Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
tomyboy


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Congrats Malcolm,

That's great news. You have always been here to cheer myself and Tom and now it's our turn to tell you what an inspiration you have been.  We've all been through our rough patches, and happy to hear how well you are doing.  Tom knows the neuropathy oh so well.  He's learned to live with it and will continue too as well as you.  Please continue to inspire us with your progress.

All the best,

Laura and Tom



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Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

bubble


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Congrats Malcolm. That diet should be posted!  Did you find a youth serum also?  B12 and Vitamin C for those platelets kids!. Oh...my Doc says everyone complains about neuropathy. Your feet are usually the first signs, but still you are quite an inspiration to us all here. Thank you!



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60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
wmlj1960


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Looking good Malcolm! You've been through a rough journey and have come out victorious. I'm encouraged by the recovery of your platelets and hope to follow your lead. Thanks once again for all you do for all of us!smile



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Sydhanrahan


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Congratutions Malcolm. That is very sweet News. Can you tell us what has happened yo your albumin and bilirubin results during this time 

 Happy for you,

Syd 



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Tig


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Hey Mate,

That's fantastic! This has been a great morning for inspiring news. You so deserve all of the improvements you're witnessing. You suffered so much as you pioneered all of the original SOC's. You never gave up and here's an example for all to follow. You never gave up and now it's obvious that you're reaping the rewards for your commitment. We have all learned and benefitted from your journey and knowledge. Thanks and all the best....

 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wendyo


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yay Malcolm, a modern miracle So happy for your continued good health. 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Linuxter


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That's some very sweet news Malcolm!

You're just getting excellent news on top of more excellent news regarding improvement ... how awesome!

I'm so glad to hear the news ... this will really help others, especially cirrhotics see that there is hope ... concrete evidence that the human body, especially the liver is a very resilient organ.

Great News Malcolm, Thanks for Sharing it!

 

Enjoy the Great Health,

Dave



-- Edited by Linuxter on Thursday 3rd of March 2016 08:48:22 AM

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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
mallani


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Hi all,

Had my bloods drawn yesterday. The email results just arrived.

I must admit that I'm always a tad anxious, even though the risk of relapse is <1%.

As I have my results recorded since 1988, I'm happy to say my ALT (23) and AST(18) are the lowest they have ever been. All is quiet on the liver front.

I'm also happy that my HbA1C is down to 6.5 from 7.1. Going on that, I'm going to say I'm no longer a 'mild diabetic'. This is not due to a rigid low GI diet- I believe the better glucose metabolism is due to eradication of the HCV. It's taken a while and I must admit I'm doing a lot more exercise.

My platelets are up to 253k. I think this reflects the reversal of the portal hypertension and the splenic activity. For any cirrhotics worried about low platelets after SVR, give it time.

The peripheral neuropathy is here to stay. I'm convinced it is HCV related. My last hope was that my Vitamin B12 may be low. It came in at 473, with the lower limit of normal being 100.

Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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